Health in Everyday Life (HELD) – Susanne Guidetti's research group

HELD's research program targets knowledge gaps identified in the health care and rehabilitation sector and in issues related to the people's everyday life. The research includes and utilizes the perspectives of the persons/ clients/patients and their families/significant others, and the professionals.

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In HELD's research, the experiences of phenomena in everyday life are studied in people at risk of or who have neurological disorders, as well as in their relatives. The environment can also have an impact on the difficulties and obstacles that people with disabilities can face, thereby limiting them. In addition, the research team develops and evaluates new complex interventions as well as studies the effects of the new efforts in close collaboration with healthcare professionals to facilitate the implementation of the results of the research in clinical practice.

The all encompassing aim of the HELD research group is to build knowledge to inform the development and implementation of interventions aiming to enable participation and health in everyday life and improve the health of people who are at risk for or already have neurological impairment (e.g.after a stroke or spinal cord injury) and for their relatives.

Long-term goals of HELD research group

  • Develop and implement a global model for client-centred interventions for prevention and in rehabilitation as after stroke
  • Develop models and implement knowledge to enable participation and well-being in everyday life among people who are at risk for or living with neurological disorders
  • Develop models and implement knowledge to enable participation and well-being in everyday life
  • Develop and implement evidence-based health promotion initiatives for people at risk or already having neurological disorders.
  • Engage people at risk of or have neurological disabilities throughout the research process

Knowledge from qualitative and quantitative studies has contributed to the development of complex interventions with the aim of improving everyday life and participation in daily activities for people with disabilities. Knowledge from qualitative and quantitative studies has contributed to the development of complex interventions / interventions with the aim of improving the health care and rehabilitation of persons with disabilities. After a new intervention has been developed, it is first tested in a pilot study and then in a full-scale randomized controlled study. One example is the now-completed project Life after Stroke II (LAS-II) - a randomized controlled multicenter study of a client-centred ADL (Activities in Daily Life) intervention to improve participation in everyday life after stroke. (ClinicalTrials.gov NCT01417585). The knowledge from qualitative and quantitative studies has also contributed to the development, evaluation and modification of assessment instruments.

Partners and funders

The various projects are funded by for example FORTE, the Swedish Research Council, EIT Health and the Doctoral School of Health Sciences at KI.

Can Mobile Phones Change Stroke Recovery in Rural Areas?

Publications

All publications from group members

Staff and contact

Group leader

All members of the group

Other people connected to the group

  • Boström, Anne-Marie
  • Darwich, Adam
  • Hakkarainen, Sandra
  • Kaddu, Mukasa Mark
  • Kamwesiga, Julius
  • Kiguli, Juliet
  • Kornevs, Maksim
  • Mayega, Roy
  • Meijer, Sebastian
  • Nalugoda, Fred

Doctoral students

  • Anneliese Lilienthal                                                                
  • Karin Högstedt
  • Robert Bulamba
  • Precious Ahabwe                                                                                                                                   

Contributing researchers

Projects

Ongoing projects

  1. identify which eHealth tools and interventions are currently used or could be used as digital solutions to enable participation in daily activities, with a focus on prevention and rehabilitation; and
  2. contribute to the development of a person-centred model that addresses health care professionals’ needs in implementing eHealth-based interventions (Vision eHealth 2025).

    Funded by SFO-V, KI 2024-2026 analysis still ongoing

  • Prevention and Rehabilitation of Stroke in Uganda (in collaboration with AMBSO)

    Project Manager: Susanne Guidetti

    Project group: Gunilla Eriksson, Charlotte Ytterberg, Robert Bulamba (PhD student), Fred Nalugoda, Lena von Koch

    In a collaborative project between the Africa Medical and Behavioral Sciences Organization (AMBSO) and HELD, data are collected to increase knowledge about risk factors and the prevalence of non-communicable diseases (NCDs), with a specific focus on stroke. This area is severely under-researched and low-priority in Uganda, and only a small proportion of people with stroke receive rehabilitation.

    Questions on stroke, risk factors, and health literacy have been added to AMBSO’s survey instruments, generating important information on the incidence and prevalence of stroke and its risk factors, which differ from those in high-income countries. This knowledge can support improved conditions for prevention and rehabilitation.

    The project also investigates and describes the consequences of living with stroke in rural and urban settings in Uganda. Qualitative interviews are conducted to generate knowledge about everyday life after stroke and the rehabilitation needs of people with stroke and their family members. The knowledge generated will form the basis for the co-creation of a secondary prevention programme involving the research team, people with stroke and their families, local health care professionals, village elders, and traditional healers, among others. The PhD student in the project is Robert Bulamba.

Completed projects

Dissertations

Susanne Assander

Evolving reablement through occupational perspectives and welfare technology in home care

Aileen Bergström

Participation in everyday occupations and life satisfaction in the stroke-caregiver dyad

Mandana Fallahpour

Participation in everyday occupations among persons with stroke in Iran : an exploration of perceived participation, associated factors and lived experience

Susanne Guidetti

Recapturing self-care after stroke or spinal cord injury : exploration of experiences and evaluation of a client-centred intervention

Martha Gustavsson

Participation in everyday life after stroke : development and evaluation of F@ce – a team-based, person-centred rehabilitation intervention supported by information and communication technology

Gunilla Eriksson

Occupational gaps after acquired brain injury : an exploration of participation in everyday occupations and the relation to life satisfaction

Jenny Hedberg Graff

Upper limb function in children with cerebral palsy : range of motion, botulinum neurotoxin A and accelerometry metrics

Julius Kamwesiga

The perceived impact of stroke and feasibility of a mobile phone supported ADL intervention in Uganda

Camilla Malinowsky

Managing technology in everyday activities : a study of older adults with dementia, MCI, and no cognitive impairment

Linda Nordstrand

Longitudinal development of hand function in children with unilateral cerebral palsy and its relation to brain lesion and treatment

Malin Regardt

Hand function, activity limitation and health-related quality of life in patients with polymyositis and dermatomyositis

Annika Sköld

Performing bimanual activities in everyday life : experiences of children with unilateral cerebral palsy

Kajsa Söderhielm

Supporting person-centred, team-based stroke rehabilitation with ICT : implementation and evaluation of F@ce 2.0

Eva Flygare Wallén

Cardiometabolic health in students and young adults with mild/moderate intellectual disabilities : results from a longitudinal follow-up study and a school intervention

Ann-Marie Öhrvall

Manual ability classification system (MACS) : development, evaluation and applicability