Health in Everyday Life (HELD) – Susanne Guidetti's research group

HELD's research program targets knowledge gaps identified in the health care and rehabilitation sector and in issues related to the people's everyday life. The research includes and utilizes the perspectives of the persons/ clients/patients and their families/significant others, and the professionals.

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Health in Everyday Life (HELD) conducting research on health, participation, and everyday life among people living with, or at risk of developing disabilities and long-term health conditions. The research is grounded in a person-centred perspective and encompasses the experiences of individuals and their significant others, as well as the perspectives of professionals working in healthcare and municipal care services.

The research group investigates how people experience and manage everyday activities, roles, and challenges across different life situations. A central focus of the research is understanding how physical, social, and organisational environments can support or hinder activities i daily life (ADL), health, participation, independence, and well-being.

Knowledge generated through qualitative and quantitative research is used to develop, evaluate, and implement person-centred and evidence-based interventions that promote health, activity, and participation in everyday life. These interventions are developed in close collaboration with people with lived experience, family members, healthcare and social care professionals, and other stakeholders to ensure relevance and facilitate implementation in clinical practice, municipal care, and community settings. The research group also develops, adapts, and evaluates outcome measures and research methods for both scientific and clinical use.

The overall aim of HELD is to generate knowledge that contributes to the development of sustainable, person-centred, and effective interventions that enhance people's opportunities to live active and meaningful lives, participate in society, and achieve good health and quality of life.

Long-Term Objectives of the HELD Research Group

  • Develop and implement person-centred interventions that promote health and participation in everyday life.
  • Generate and implement knowledge that supports activity, well-being, and independence throughout the life course.
  • Develop, evaluate, and implement evidence-based interventions within healthcare and municipal care services.
  • Ensure the active involvement of people with lived experience and their significant others throughout all stages of the research process.

Partners and funders

The various projects are funded by for example FORTE, the Swedish Research Council, EIT Health and the Doctoral School of Health Sciences at KI.

Can Mobile Phones Change Stroke Recovery in Rural Areas?

Publications

All publications from group members

Staff and contact

Group leader

All members of the group

Other people connected to the group

  • Boström, Anne-Marie
  • Darwich, Adam
  • Hakkarainen, Sandra
  • Kaddu, Mukasa Mark
  • Kamwesiga, Julius
  • Kiguli, Juliet
  • Kornevs, Maksim
  • Mayega, Roy
  • Meijer, Sebastian
  • Nalugoda, Fred

Doctoral students

  • Anneliese Lilienthal                                                                
  • Karin Högstedt
  • Robert Bulamba
  • Precious Ahabwe                                                                                                                                   

Contributing researchers

Projects

Ongoing projects

  1. identify which eHealth tools and interventions are currently used or could be used as digital solutions to enable participation in daily activities, with a focus on prevention and rehabilitation; and
  2. contribute to the development of a person-centred model that addresses health care professionals’ needs in implementing eHealth-based interventions (Vision eHealth 2025).

    Funded by SFO-V, KI 2024-2026 analysis still ongoing

  • Prevention and Rehabilitation of Stroke in Uganda (in collaboration with AMBSO)

    Project Manager: Susanne Guidetti

    Project group: Gunilla Eriksson, Charlotte Ytterberg, Robert Bulamba (PhD student), Fred Nalugoda, Lena von Koch

    In a collaborative project between the Africa Medical and Behavioral Sciences Organization (AMBSO) and HELD, data are collected to increase knowledge about risk factors and the prevalence of non-communicable diseases (NCDs), with a specific focus on stroke. This area is severely under-researched and low-priority in Uganda, and only a small proportion of people with stroke receive rehabilitation.

    Questions on stroke, risk factors, and health literacy have been added to AMBSO’s survey instruments, generating important information on the incidence and prevalence of stroke and its risk factors, which differ from those in high-income countries. This knowledge can support improved conditions for prevention and rehabilitation.

    The project also investigates and describes the consequences of living with stroke in rural and urban settings in Uganda. Qualitative interviews are conducted to generate knowledge about everyday life after stroke and the rehabilitation needs of people with stroke and their family members. The knowledge generated will form the basis for the co-creation of a secondary prevention programme involving the research team, people with stroke and their families, local health care professionals, village elders, and traditional healers, among others. The PhD student in the project is Robert Bulamba.

  • INSIGHT – Integrated Needs and Stroke Care: Inequalities, Health Outcomes, and Care Pathways After Stroke

    Project Manager: Annika Berglund

    Project group: Henrike Häbel, Mihaela Romanitan, Sara Haile, Susanne Guidetti, Vanja Berggren

    INSIGHT aims to investigate whether there are differences in care processes, treatment, and outcomes between individuals of Swedish and foreign origin who have experienced a stroke in Sweden. The project adopts a national perspective and is based on data from Riksstroke, linked to national health registers maintained by the National Board of Health and Welfare, as well as data from Statistics Sweden (SCB) on migration background and socioeconomic factors. To deepen the understanding of the patterns identified in the registry analyses, the project will also include qualitative data collection.

Completed projects

Dissertations

Susanne Assander

Evolving reablement through occupational perspectives and welfare technology in home care

Aileen Bergström

Participation in everyday occupations and life satisfaction in the stroke-caregiver dyad

Mandana Fallahpour

Participation in everyday occupations among persons with stroke in Iran : an exploration of perceived participation, associated factors and lived experience

Susanne Guidetti

Recapturing self-care after stroke or spinal cord injury : exploration of experiences and evaluation of a client-centred intervention

Martha Gustavsson

Participation in everyday life after stroke : development and evaluation of F@ce – a team-based, person-centred rehabilitation intervention supported by information and communication technology

Gunilla Eriksson

Occupational gaps after acquired brain injury : an exploration of participation in everyday occupations and the relation to life satisfaction

Jenny Hedberg Graff

Upper limb function in children with cerebral palsy : range of motion, botulinum neurotoxin A and accelerometry metrics

Julius Kamwesiga

The perceived impact of stroke and feasibility of a mobile phone supported ADL intervention in Uganda

Camilla Malinowsky

Managing technology in everyday activities : a study of older adults with dementia, MCI, and no cognitive impairment

Linda Nordstrand

Longitudinal development of hand function in children with unilateral cerebral palsy and its relation to brain lesion and treatment

Malin Regardt

Hand function, activity limitation and health-related quality of life in patients with polymyositis and dermatomyositis

Annika Sköld

Performing bimanual activities in everyday life : experiences of children with unilateral cerebral palsy

Kajsa Söderhielm

Supporting person-centred, team-based stroke rehabilitation with ICT : implementation and evaluation of F@ce 2.0

Eva Flygare Wallén

Cardiometabolic health in students and young adults with mild/moderate intellectual disabilities : results from a longitudinal follow-up study and a school intervention

Ann-Marie Öhrvall

Manual ability classification system (MACS) : development, evaluation and applicability