A brief introduction.
Genia - a patient-support system and lifelong learning system
Genia is a mobile patient support system (mPSS) for young cystic fibrosis patients. It’s designed to establish patient, family and health care team partnerships, with an emphasis on placing the young person at the center of the decision-making process.
The system is designed for observations, reflections and sharing in the family living with long-term illness and also to share information with health care providers, giving the patients choice over which information they want to share and with whom. This information can then be used to co-create care goals and plans and provide opportunities for mutual learning and shared decision-making.
The Genia patient support system is in an early stage of use at all four cystic fibrosis (CF) centers in Sweden and is integrated with other health information systems that are used in clinical practice.