Publications from PiF

2024

Implementation of a Recovery College Embedded in a Swedish Psychiatry Organization: Qualitative Case Study.
Al-Adili L, Malmqvist M, Reinius M, Helispää Rodriguez I, Stenfors T, Brommels M
J Particip Med 2024 Sep;16():e55882

A Patient-Driven Mobile Health Innovation in Cystic Fibrosis Care: Comparative Cross-Case Study.
Mazzocato P, Luckhaus JL, Malmqvist Castillo M, Burnett J, Hager A, Oates G, Wannheden C, Savage C
J Med Internet Res 2024 Jul;26():e50527

Assessing the perceived value of a user-led educational intervention to support recovery in a Swedish psychiatric organization: A qualitative case study.
Reinius M, Al-Adili L, Rodriguez IH, Stenfors T, Brommels M
Health Expect 2024 Jun;27(3):e14064

Why publish? An interview study exploring patient innovators' reasons for and experiences of scientific publishing.
Dahlberg M, Luckhaus JL, Hasson H, Jansson H, Lek M, Savage C, Riggare S, Wannheden C
Res Involv Engagem 2024 Jun;10(1):54

2023

Objectives and outcomes of patient-driven innovations published in peer-reviewed journals: a qualitative analysis of publications included in a scoping review.
Dahlberg M, Lek M, Malmqvist Castillo M, Bylund A, Hasson H, Riggare S, Reinius M, Wannheden C
BMJ Open 2023 Jun;13(6):e071363

A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research.
Wannheden C, Riggare S, Luckhaus JL, Jansson H, Sjunnestrand M, Stenfors T, Savage C, Reinius M, Hasson H
Health Expect 2023 Jun;():

Empowered patients and informal care-givers as partners?-a survey study of healthcare professionals' perceptions.
Scott Duncan T, Riggare S, Bylund A, Hägglund M, Stenfors T, Sharp L, Koch S
BMC Health Serv Res 2023 Apr;23(1):404

Patients' experiences of Daily Talks: a patient-driven intervention in inpatient mental healthcare.
Reinius M, Steinsaphir Å, Malmqvist Castillo M, Stenfors T
J Ment Health 2023 Feb;():1-8

2022

Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers.
Scott Duncan T, Engström J, Riggare S, Hägglund M, Koch S
J Particip Med 2022 Nov;14(1):e39174

Now What? Collective Sensemaking and Sensegiving in the Cystic Fibrosis Community in Sweden During the Initial Phase of the COVID-19 Pandemic.
Wannheden C, Hasson H, Hager A, Karlgren K, Pukk Härenstam K
Health Commun 2022 Oct;():1-11

Patient lead users experience of the COVID-19 pandemic: a qualitative interview study.
Jansson H, Stenfors T, Riggare S, Hasson H, Reinius M
BMJ Open 2022 08;12(8):e059003

Patient-driven innovations reported in peer-reviewed journals: a scoping review.
Reinius M, Mazzocato P, Riggare S, Bylund A, Jansson H, Øvretveit J, Savage C, Wannheden C, Hasson H
BMJ Open 2022 Jan;12(1):e053735

2021

Sharing Patient-Controlled Real-World Data Through the Application of the Theory of Commons: Action Research Case Study.
Hager A, Lindblad S, Brommels M, Salomonsson S, Wannheden C
J Med Internet Res 2021 Jan;23(1):e16842

2020

Patient researchers - the missing link?
Riggare S
Nat Med 2020 10;26(10):1507