Publications from PiF

2023

Objectives and outcomes of patient-driven innovations published in peer-reviewed journals: a qualitative analysis of publications included in a scoping review.
Dahlberg M, Lek M, Malmqvist Castillo M, Bylund A, Hasson H, Riggare S, Reinius M, Wannheden C
BMJ Open 2023 Jun;13(6):e071363

A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research.
Wannheden C, Riggare S, Luckhaus JL, Jansson H, Sjunnestrand M, Stenfors T, Savage C, Reinius M, Hasson H
Health Expect 2023 Jun;():

Empowered patients and informal care-givers as partners?-a survey study of healthcare professionals' perceptions.
Scott Duncan T, Riggare S, Bylund A, Hägglund M, Stenfors T, Sharp L, Koch S
BMC Health Serv Res 2023 Apr;23(1):404

Patients' experiences of Daily Talks: a patient-driven intervention in inpatient mental healthcare.
Reinius M, Steinsaphir Å, Malmqvist Castillo M, Stenfors T
J Ment Health 2023 Feb;():1-8

2022

Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers.
Scott Duncan T, Engström J, Riggare S, Hägglund M, Koch S
J Particip Med 2022 Nov;14(1):e39174

Now What? Collective Sensemaking and Sensegiving in the Cystic Fibrosis Community in Sweden During the Initial Phase of the COVID-19 Pandemic.
Wannheden C, Hasson H, Hager A, Karlgren K, Pukk Härenstam K
Health Commun 2022 Oct;():1-11

Patient lead users experience of the COVID-19 pandemic: a qualitative interview study.
Jansson H, Stenfors T, Riggare S, Hasson H, Reinius M
BMJ Open 2022 08;12(8):e059003

Patient-driven innovations reported in peer-reviewed journals: a scoping review.
Reinius M, Mazzocato P, Riggare S, Bylund A, Jansson H, Øvretveit J, Savage C, Wannheden C, Hasson H
BMJ Open 2022 Jan;12(1):e053735

2021

Sharing Patient-Controlled Real-World Data Through the Application of the Theory of Commons: Action Research Case Study.
Hager A, Lindblad S, Brommels M, Salomonsson S, Wannheden C
J Med Internet Res 2021 Jan;23(1):e16842

2020

Patient researchers - the missing link?
Riggare S
Nat Med 2020 10;26(10):1507