The research group ICare

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The research group ICare.
The research within ICare focuses on Interaction, Information and Communication Technology (ICT), Innovation, Intervention and Implementation.

The research area

The research in the group is based on the salutogenic idea of what, from the patient’s perspective, promotes health and wellbeing, inner strength and strives for improvement. The emphasis is on the implication of the patient's own statements and the experience of living with a disease and how this is handled in order to improve health and well-being. The research covers method development, intervention studies and implementation carried out in close collaboration between researchers, patients and clinicians. Based on theories of patient participation, interventions are developed and tested from the patients, the care providers and the organizations perspective.

Ongoing Projects

1-Reporting in an application for smartphones and tablets (PhONEME)

Patients are today increasingly treated on outpatient basis which requires the patient to be an expert in their own health but also the provision of safe care from the healthcare givers. This project evaluates an interactive application for use in a smartphone or tablet connected to a Web interface enabling decision support for medical personnel. Via the application the patients reports their symptoms and concerns, and a pre-defined alert system instigates an immediate contact with a nurse when needed. In the application there is also access to evidence-based self-care advice and the possibility to view the reported symptoms through graphs. The content of the application is developed in collaboration with patients and healthcare personnel. The hypothesis is that the application gives extra support and increases the patient’s participation in care which ultimately leads to greater patient safety and cost effectiveness while patients experience a safe and appropriate care.
Ongoing projects include patients with prostate, breast and pancreatic cancer as well as older people receiving home care.

Links to Publications

2-SOC

An important research question is how perceptions and experiences differ between people and if this can be explained by the individual's ability to handle stressful situations, mainly based on the concept of sense of coherence (SOC). The research includes methodological studies of the questionnaire that measures SOC and its predictive value for recovery, relapse and survival.                                         

Financial support

The Swedish Research Council (Vetenskapsrådet)

Swedish Cancerfoundation (Cancerfonden)

The Swedish Research Council for Health, Working Life and Welfare (Forte)

The Kamprad Family Foundation for Entrepeneurship, Research and Charity (Familjen Kamprads stiftelse)

Internal KI funding for doctoral education (KID-medel)

Doctoral School in Health Care Sciences (Forskarskolan)

Research Group Leader

Professor

Ann Langius-Eklöf

Phone: +46-(0)8-524 835 78
Organizational unit: Division of Nursing- Nursing 2
E-mail: ann.langius-eklof@ki.se

Assistent research group leader

Senior lecturer, assistant

Kay Sundberg

Phone: +46-(0)8-524 835 72
Organizational unit: Division of Nursing- Nursing 2
E-mail: Kay.Sundberg@ki.se

Members of the research team

Senior lecturer

Lena-Marie Petersson

Phone: +46-(0)8-524 837 95
Organizational unit: Division of Nursing- Nursing 2
E-mail: Lena-Marie.Petersson@ki.se

Senior lecturer

Veronica Lindström

Organizational unit: Division of Nursing- Nursing 2
E-mail: Veronica.Lindstrom@ki.se

Graduate Student

Mats Christiansen

Phone: +46-(0)8-524 838 40
Organizational unit: Division of nursing- Nursing 1
E-mail: Mats.Christiansen@ki.se

Graduate Student

Tina Gustavell

Phone: +46-(0)8-524 838 43
Organizational unit: Division of Nursing- Nursing 2
E-mail: tina.gustavell@ki.se

Associated

Marie Nilsson

Organizational unit: Division of Social work
E-mail: marie.i.nilsson@ki.se

PhD student

Maria Fjell

Phone: +46-(0)8-524 837 42
Organizational unit: Division of Nursing- Nursing 2
E-mail: maria.fjell@ki.se

Graduate Student

Marie-Therese Crafoord

Organizational unit: Division of Nursing- Nursing 2
E-mail: marie-therese.crafoord@ki.se

Selected Publications

Testing an app for reporting health concerns—Experiences from older people and home care nurses

Adherence to Report and Patient Perception of an Interactive App for Managing Symptoms During Radiotherapy for Prostate Cancer: Descriptive Study of Logged and Interview Data

Patients’ Perspective on Participation in Care With or Without the Support of a Smartphone App During Radiotherapy for Prostate Cancer: Qualitative Study

Effects of an interactive mHealth innovation for early detection of patient-reported symptom distress with focus on participatory care: protocol for a study based on prospective, randomised, controlled trials in patients with prostate and breast cancer

Perspectives of health and self-care among older persons—To be implemented in an interactive information and communication technology-platform

Early detection andts of an interactive mHealth innovation for early detection of patient-reported symptom distress with focus on participatory care: protocol for a study based on prospective, randomised, controlled trials in patients with prostate and breast cancer management of symptoms using an interactive smartphone application (Interaktor) during radiotherapy for prostate cancer

Symptoms and self-care strategies during and six months after radiotherapy for prostate cancer - Scoping the perspectives of patients, professionals and literature.

Stability of the 13-item sense of coherence (SOC) scale: a longitudinal prospective study in women treated for breast cancer.

Sense of coherence as a mediator of health-related quality of life dimensions in patients with breast cancer: a longitudinal study with prospective design.

Feasibility of an interactive ICT-platform for early assessment and management of patient-reported symptoms during radiotherapy for prostate cancer.

Measurement properties of the 13-item sense of coherence scale using Rasch analysis.

Nursing