Michaela Dellenmark-Blom

Publikationer
Populärvetenskap och samverkan

Artiklar

Article: EUROPEAN UROLOGY OPEN SCIENCE. 2026;88:39-53
EAU-ESPU-ERN eUROGEN-ERN ITHACA-ERN ERKNet-IFSBH Guidelines on Spinal Dysraphism in Children and Adolescents: Summary of the Guideline.
Radmayr C; Abrahamsson K; Bogaert G; Dellenmark-Blom M; Feitz W; Goyal A; Jouannic J-M; Lammers R; Maternik M; Mosiello G; Roozen S; Sillen U; Stein R; Tekgül S; 't Hoen L; Gontard AV; Walle JV; Yuan Y; Nijman RJM
Article: PEDIATRIC SURGERY INTERNATIONAL. 2026;42(1):162
"It's a journey": Psychosocial perspectives on parenting a young child with esophageal atresia.
Cole L; Micalizzi R; Bennett J; Woods K; Cardoni L; Frain L; Mohamed A; Yasuda J; Ngo P; Widenmann A; Slater G; Zendejas B; Dellenmark-Blom M
Article: ORPHANET JOURNAL OF RARE DISEASES. 2026;21(1):122
Parents' experiences of condition management in children born with esophageal atresia-tracheoesophageal fistula during their early childhood.
Dellenmark-Blom M; Cole L; Micalizzi R; Bennett J; Woods K; Cardoni L; Frain L; Mohamed A; Yasuda J; Ngo P; Widenmann A; Slater G; Zendejas B
Article: EPILEPSY & BEHAVIOR. 2025;173:110750
"Daring to speak of SUDEP" - caregiver and neurologist perspectives on the risk for premature mortality in Dravet Syndrome.
Andersson K; Bjurulf B; Blom MD; Hallböök T; Esserlind A-L; Reilly C
Article: ORPHANET JOURNAL OF RARE DISEASES. 2025;20(1):543
Addressing psychosocial vulnerability in rare diseases: a call to action from a European expert consensus study
Smits RM; Aerts A; Angelov T; Bentele M; de Blaauw I; Dellenmark-Blom M; Duijts SFA; Fjermestad K; Franscini M; Grano C; Hendriks S; Inhestern L; Kenny T; von der Lippe C; Oomen L; Rake JP; Rietman AB; van Rooij IALM; Verhaak CM; Voet NBM; Walton H; van Zelst-Stams W; Kwakkenbos L
Article: ORPHANET JOURNAL OF RARE DISEASES. 2025;20(1):438
Experiences of symptom burden among young children born with esophageal atresia-tracheoesophageal fistula: a US focus group study.
Dellenmark-Blom M; Bennett J; Micalizzi R; Cole L; Woods K; Cardoni L; Frain L; Mohamed A; Yasuda J; Ngo P; Widenmann A; Slater G; Zendejas B
Article: PEDIATRIC SURGERY INTERNATIONAL. 2025;41(1):164
Prevalence and risk factors of feeding difficulties in children with delayed reconstruction of esophageal atresia: a Swedish nationwide study
Ax SO; Ost E; Lilja HE; Omling E; Gatzinsky V; Svensson JF; Kassa A-M; Jonsson L; Tollne A; Stenstrom P; Abrahamsson K; Dellenmark-Blom M
Article: PEDIATRIC SURGERY INTERNATIONAL. 2024;41(1):24
Gastrointestinal quality of life in children born with gastroschisis.
Bräutigam M; Dellenmark-Blom M; Abrahamsson K; Gatzinsky C; Gatzinsky V
Article: ACTA PAEDIATRICA. 2024;113(12):2564-2572
The Swedish PedsQL gastrointestinal symptoms scale and symptoms module showed good psychometric performance.
Bräutigam M; Abrahamsson K; Gatzinsky V; Saalman R; Hadi L; Nilsson S; Dellenmark-Blom M
Article: JOURNAL OF PEDIATRIC UROLOGY. 2024;20(5):939-947
Parents' experiences of treatment and outcomes in high-grade vesicoureteral reflux in infants - One piece in the puzzle of VUR management?
Nordenström J; Sjöström S; Dellenmark-Blom M
Article: ACTA PAEDIATRICA. 2024;113(9):2107-2118
Family screening for neurodevelopmental problems and its associations with child cognitive function enable tailored treatment for childhood obesity
Dellenmark-Blom M; Jaervholm K; Sjoegren L; Levinsson A; Dahlgren J
Article: FRONTIERS IN PSYCHIATRY. 2024;15:1332598
Neurodevelopmental disorders in children seeking obesity treatment- associations with intellectual ability and psychiatric conditions
Dellenmark-Blom M; Jarvholm K; Sjogren L; Levinsson A; Dahlgren J
Article: DISEASES OF THE ESOPHAGUS. 2024;37(7):doae016
Disease-specific quality of life as part of the long-term follow-up for children born with esophageal atresia in an academic unit in South Africa-a pilot study.
de Vos C; Dellenmark-Blom M; Sikwete FM; Sidler D; van Wyk L; Goussard P
Article: EPILEPSY & BEHAVIOR. 2024;156:109790
Caregiver perceptions of the impact of Dravet syndrome on the family, current supports and hopes and fears for the future: A qualitative study.
Soto Jansson J; Bjurulf B; Dellenmark Blom M; Hallböök T; Reilly C
Article: INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH. 2024;21(5):624
Linguistic, Content and Face Validity of the Swedish Version of a Quality-of-Life Assessment for Children, Teenagers and Adults with Spina Bifida.
Dellenmark-Blom M; Andersson M; Szymanski KM; Andréasson CL; Vu Minh Arnell M; Sjöström S; Abrahamsson K
Article: CHILDREN-BASEL. 2024;11(3):286
An International Collaborative Initiative to Establish a Quality-of-Life Questionnaire for Children and Adolescents with Repair of Esophageal Atresia in 14 Countries
Blom MD; Witt S; Durkin N; Eaton S; Galan AS; Rozensztrauch A; Sabolic I; Birketvedt K; Zendejas B; Mueller KE; Li S; de Vos C; Soyer T; Porras-Hernandez JD; Fourtaka A; Slater G; Emblem R; Bennett J; Smigiel R; Patkowski D; Spoljaric A; Stilinovic M; Andrasdi Z; Sosa DS; Luetic T; Gerus S; Durakbasa CU; Huang J; Yang S; Zhao Y; Gu Y; Li S; Pasini M; Gottrand F; Kadenczki O; Martinez LM; Wallace V; Widenmann A; Sikwete FM; Rodriguez-Alvirde D; Izadi S; Ure BM; Sidler D; Dingemann J; Quitman JH
Article: NATURE REVIEWS GASTROENTEROLOGY & HEPATOLOGY. 2023;20(11):735-755
The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia-tracheoesophageal fistula.
Krishnan U; Dumont MW; Slater H; Gold BD; Seguy D; Bouin M; Wijnen R; Dall'Oglio L; Costantini M; Koumbourlis AC; Kovesi TA; Rutter MJ; Soma M; Menzies J; Van Malleghem A; Rommel N; Dellenmark-Blom M; Wallace V; Culnane E; Slater G; Gottrand F; Faure C
Article: FRONTIERS IN PEDIATRICS. 2023;11:1253892
Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14 countries
Blom MD; Witt S; Zendejas B; Sabolic I; Porras-Hernandez JD; Durkin N; Eaton S; Birketvedt K; Galan AS; Mueller KE; Rozensztrauch A; Soyer T; Li S; Fourtaka A; de Vos C; Slater G; Spoljaric A; Bennett J; Emblem R; Andrasdi Z; Smigiel R; Patkowski D; Durakbasa CU; Stilinovic M; Gottrand F; Sosa DS; Luetic T; Gerus S; Yang S; Zhao Y; Gu Y; Li S; Rodriguez-Alvirde D; Kadenczki O; Pasini M; Wallace V; Widenmann A; Sikwete FM; Huang J; Martinez LM; Abrahamsson K; Izadi S; Ure BM; Sidler D; Quitmann JH; Dingemann J
Article: JOURNAL OF PEDIATRIC SURGERY. 2023;58(9):1646-1655
Prevalence of Mental Health Problems, Associated Factors, and Health-Related Quality of Life in Children with Long-Gap Esophageal Atresia in Sweden
Dellenmark-Blom M; Ax SO; Lilja HE; Reilly C; Svensson JF; Kassa A-M; Jonsson L; Abrahamsson K; Gatzinsky V; Omling E; Tollne A; Stenstrom P; Ost E
Article: ORPHANET JOURNAL OF RARE DISEASES. 2023;18(1):237
The association of feeding difficulties and generic health-related quality of life among children born with esophageal atresia.
Örnö Ax S; Dellenmark-Blom M; Abrahamsson K; Jönsson L; Gatzinsky V
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Review: ORPHANET JOURNAL OF RARE DISEASES. 2026;21(1):172
Fostering continuous quality improvement in a European rare disease network: Where are we now?
van der Kamp LM; Galdran SR; Irvine WFE; Rossi D; van Steekelenburg R; Wijnen RMH; Ista E; Spivack OKC
Meeting abstract: BJS-BRITISH JOURNAL OF SURGERY. 2025;112:znaf149.014-xi4
Prevalence and risk factors of feeding difficulties in children with delayed reconstruction of esophageal atresia: a Swedish nationwide study
Ax SO; Ost E; Lilja HE; Omling E; Gatzinsky V; Svensson JF; Kassa A-M; Jonsson L; Tollne A; Stenstrom P; Abrahamsson K; Dellenmark-Blom M
Editorial: JOURNAL OF PEDIATRIC UROLOGY. 2024;20(5):948
Commentary to: "Parents' experiences of treatment and outcomes in high-grade vesicoureteral reflux in infants - One piece in the puzzle of VUR management?".
Hollowell JG
Letter: JOURNAL OF PEDIATRIC UROLOGY. 2024;20(5):949
Response to commentary on: Parents' experiences of treatment and outcomes in high-grade vesicoureteral reflux in infants - One piece in the puzzle of VUR management?
Nordenström J; Sjöström S; Dellenmark-Blom M
Editorial: JOURNAL OF PEDIATRIC UROLOGY. 2024;20(5):1012-1013
Commentary on bowel bladder dysfunction in control children in a pediatric urology office. Ref Rodriguez P, Rehfuss A, Adam Howe A, Giramonti K, Feustel PJ, Kogan BA (J Ped Urol, https://doi.org/10.1016/j.jpurol.2024.04.023).
Sjöström S; Sillén U; Dellenmark-Blom M
Letter: ORPHANET JOURNAL OF RARE DISEASES. 2024;19(1):304
Navigating global collaboration: challenges faced by the international network on esophageal atresia.
Gottrand F; Krishnan U; Widenmann A; Blom MD; Dall'Oglio L; Wijnen R; van Wijk M; Fruithof J; von Allmen D; Kovesi T; Faure C
Review: EUROPEAN JOURNAL OF PEDIATRIC SURGERY. 2024;34(02):143-161
A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the Field
Spivack OKC; Dellenmark-Blom M; Dingemann J; ten Kate CA; Wallace V; Bramer WM; Quitmann JH; Rietman A
Letter: EUROPEAN JOURNAL OF PEDIATRIC SURGERY. 2021;31(5):454-455
Patient-Reported Outcomes-The Value of Observational Assessments.
Witt S; Bloemeke J; Bullinger M; Dingemann J; Dellenmark-Blom M; Quitmann J
Corrigendum: JOURNAL OF UROLOGY. 2021;205(2):638
Erratum: Development and Validation of Symptom Score for Total Bladder-Bowel Dysfunction: Subscales for Overactive Bladder and Dysfunctional Voiding.
Review: EUROPEAN JOURNAL OF PEDIATRIC SURGERY. 2020;30(3):232-238
Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon.
Bloemeke J; Witt S; Bullinger M; Dingemann J; Dellenmark-Blom M; Quitmann J
Editorial: EUROPEAN JOURNAL OF PEDIATRIC SURGERY. 2020;30(3):223-224
Health-Related Quality of Life in Pediatric Surgical Patients and their Caretakers.
Dingemann J; Dellenmark-Blom M; Quitmann JH
Review: EUROPEAN JOURNAL OF PEDIATRIC SURGERY. 2020;30(3):239-250
Health-Related Quality of Life in Patients after Repair of Esophageal Atresia: A Review of Current Literature.
Dellenmark-Blom M; Quitmann J; Dingemann C
Review: EUROPEAN JOURNAL OF PEDIATRIC SURGERY. 2020;30(03):251-260
Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature
Holmdahl G; Dellenmark-Blom M; Nordenskjold A; Sjostrom S
Review: QUALITY OF LIFE RESEARCH. 2019;28(6):1389-1412
Health-related quality of life among children, adolescents, and adults with bladder exstrophy-epispadias complex: a systematic review of the literature and recommendations for future research.
Dellenmark-Blom M; Sjöström S; Abrahamsson K; Holmdahl G

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