Swedish Twin Registry: For researchers
The Swedish Twin registry is an (inter)national resource. Data from the registry can become available to academic and industry-based researchers. Read more below what is required to initiate research with the Swedish Twin Registry.
KI has introduced a new web based application routine from August 18, 2020. See specific instructions for the Twin Registry on this page.
Regardless of the type of research interest, all potential collaborations or data access agreements must first be reviewed by the steering committee of the STR.
Application procedure to utilize the Swedish Twin Registry
Policy and conditions
The general conditions for collaboration with the Swedish Twin Registry can be found in our policy document. A revised version will be published in late August, 2020.
Start the process by reading the policy document so that all conditions can be met. The STR’s steering committee meets four times per year and decides on all requests.
In order to process your request, a complete application must be received by the STR no later than one week before a steering group meeting. For more information, please contact us by e-mail to email@example.com.
Date for upcoming steering group meetings 2020
11 December (deadline for applications: 4 Dec)
How to apply
To be complete, an application must contain the following:
Step 1: prepare documents
- A detailed and complete description of the project comprising 3-5 pages, including:
a) specific aims
b) general background (including relevant literature references)
c) requested variables with inclusion and exclusion criteria
e) description of the research group
- CV of the PI (Principal Investigator)
- Ethical application and ethical approval (for projects not including new contacts). For projects in which contacts with study persons are to be made, it is recommended that the STR steering committee reviews both contact letters and informed consent formulations before these documents are sent for ethical review.
Step 2: web application - NEW WEB BASED ROUTINE!
- Go to the new web based tool for core facilities, iLab, and register/login in the system.
- Fill out the STR application form and attach the relevant documents (from step 1-3 above).
Step 3: after approval
If your application is approved, see guidelines for required data specifications.
Support on how to register and use iLab:
For those working at Karolinska Institutet: https://staff.ki.se/media/63145/download
For all other users: https://staff.ki.se/media/63165/download
Support pages for iLab: https://help.ilab.agilent.com/35322-getting-started/299372-welcome-to-ilab-help
Studies within the Swedish Twin Registry
Below you can find some information about our studies grouped by cohorts.
The information comprises:
Questionnaire, a PDF format file (Swedish only, when applicable)
Area of study, variables, codes an Excel format file
All files are password protected.
Contact the Twin Registry to obtain the password by e-mail to firstname.lastname@example.org.
Questionnaires administered in the 60s and the 70s with variable description
Born 1886-1925 Questionnaire 1961
Born 1886-1925 Questionnaire 1963
Born 1886-1925 Questionnaire 1967
Born 1886-1925 Questionnaire 1970
Questionnaires administered in the 90s with variable description
Born 1886-1958 SALT - Screening Across the Lifespan Twin
Born 1886-1958 TwinGene - Pair of twins from the SALT-study
Born 1826-1958 Birth - Birth weight and risk of adult disease in offspring: etiologic determants
Born 1944-1958 SALTY - Screening Across the Lifespan Twin Young
SALTY GWAS (Pdf-file, 118 Kb)
Born 1973 Questionnaire
Born 1959-1985 STAGE - Swedish Twin Studies of adults: Genes och Environment
Born 1959-1985 STAGE ONE - Swedish Twin Studies of adults: Genes och Environment
Born 1992-1999 CATSS - The Child and Adolescent Twin Study in Sweden
CATSS GWAS (Pdf-file, 118 Kb)
Presentation of the Swedish Twin Registry (pdf, ppt)
Publications based on the Swedish Twin Registry
List of publications (pdf, updated Feb 18, 2020)