Swedish Twin Registry: For researchers

The Swedish Twin registry is an (inter)national resource. Data from the registry can become available to academic and industry-based researchers. Read more below what is required to initiate research with the Swedish Twin Registry.

KI has introduced a new web based application routine from August 18, 2020. See specific instructions for the Twin Registry on this page.

Regardless of the type of research interest, all potential collaborations or data access agreements must first be reviewed by the steering committee of the STR.

Application procedure to utilize the Swedish Twin Registry

Policy and conditions

The general conditions for collaboration with the Swedish Twin Registry can be found in our policy document. A revised version will be published in late August, 2020.

Start the process by reading the policy document so that all conditions can be met. The STR’s steering committee meets four times per year and decides on all requests.
In order to process your request, a complete application must be received by the STR ​​no later than one week before a steering group meeting. For more information, please contact us by e-mail to str-research@meb.ki.se.

Date for upcoming steering group meetings 2020

29 September

3 December

Costs

Current price list

How to apply

To be complete, an application must contain the following:

Step 1: prepare documents

  1. A detailed and complete description of the project comprising 3-5 pages, including:
    a) specific aims
    b) general background (including relevant literature references)
    c) requested variables with inclusion and exclusion criteria
    d) methods
    e) description of the research group
  2. CV of the PI (Principal Investigator)
  3. Ethical application and ethical approval (for projects not including new contacts). For projects in which contacts with study persons are to be made, it is recommended that the STR steering committee reviews both contact letters and informed consent formulations before these documents are sent for ethical review.

Step 2: web application - NEW WEB BASED ROUTINE!

  1. Go to the new web based tool for core facilities, iLab, and register/login in the system.
  2. Fill out the STR application form and attach the relevant documents (from step 1-3 above).

Step 3: after approval

If your application is approved, see guidelines for required data specifications.

Support on how to register and use iLab:

For those working at Karolinska Institutet: https://staff.ki.se/media/63145/download

For all other users: https://staff.ki.se/media/63165/download

Support pages for iLab: https://help.ilab.agilent.com/35322-getting-started/299372-welcome-to-ilab-help

Studies within the Swedish Twin Registry

Below you can find some information about our studies grouped by cohorts.

The information comprises:

Questionnaire, a PDF format file (Swedish only, when applicable)
Area of study, variables, codes an Excel format file

All files are password protected.

Contact the Twin Registry to obtain the password by e-mail to str-research@meb.ki.se.

Questionnaires administered in the 60s and the 70s with variable description

Born 1886-1925 Questionnaire 1961

Qustionnaire Q61 ( Swedish only)

Area of study, variables, codes

Born 1886-1925 Questionnaire 1963

Questionnaire Q63 (Swedishq63_red.pdf only)

Area of study, variables, codes

Born 1886-1925 Questionnaire 1967

Questionnaire Q67 (Swedish only)

Area of study, variables, codes

Born 1886-1925 Questionnaire 1970

Questionnaire Q70 (Swedish only)

Area of study, variables, codes

Questionnaires administered in the 90s with variable description

Born 1886-1958 SALT - Screening Across the Lifespan Twin

Interview

Area of study, variables, codes

Born 1886-1958 TwinGene - Pair of twins from the SALT-study

Health questionnaire

Health check up

Area of study, varables, codes

Born 1826-1958 Birth - Birth weight and risk of adult disease in offspring: etiologic determants

Area of study, variables, codes

Born 1944-1958 SALTY - Screening Across the Lifespan Twin Young

SALTY GWAS (Pdf-file, 118 Kb)

Born 1973 Questionnaire

Questionnaire Q73 (Swedish only)

Area of study, variables, codes

Born 1959-1985 STAGE - Swedish Twin Studies of adults: Genes och Environment

Area of study, variables, codes

Born 1959-1985 STAGE ONE - Swedish Twin Studies of adults: Genes och Environment

Area of study, variables, codes

Born 1992-1999 CATSS - The Child and Adolescent Twin Study in Sweden

Telephone interview (2007-) (Swedish Only)

Telephone interview (2007-) (Swedish Only)

Area of study, variables, codes

CATSS GWAS (Pdf-file, 118 Kb)

Presentation of the Swedish Twin Registry (pdf, ppt)

Presentation of STR (pdf)

Presentation of STR (ppt)

Publications based on the Swedish Twin Registry

List of publications (pdf, updated Feb 18, 2020)