Participation in places and activities in public space as perceived by people with cognitive impairment

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The purpose of this research is to provide new knowledge of the conditions for participation in activities and places in public space and society outside the home for people with cognitive impairments, and to identify possible avenues to increase accessibility and provide relevant support.

As staying at home becomes the norm of all care policies, the possibility that these people have to access and be involved in activities outside home needs to be better understood, and improvements targeting different aspects (e.g. support to persons, improved accessibility in places) should be planned and systematically tested. Given that engagement in activities is increasingly recommended to prevent cognitive decline and also that community integration is emphasized to promote life satisfaction, better knowledge of how to facilitate an active lifestyle incorporating activities both within and beyond the boundaries of the home is vital.

This collaborative project builds on findings from our current research in the field of dementia in the Swedish context. Sub-studies are now going on in several countries (Sweden, French speaking Switzerland, Canada, UK, USA) involving a variety of professions (occupational therapy, engineering, geography and sociology) in the five countries. Initially the focus was put on people with dementia, but now it is extended to also embrace other populations (people with acquired brain injury, ABI, Luleå). In all countries, the newly developed questionnaire Participation in ACTivities and places OUTside home questionnaire (ACT-OUT) is used in the research, and in Sweden, Switzerland and UK also combined with qualitative studies. In Sweden, the project is longitudinal.

Leader

 Louise Nygård

Members

Anna Brorsson, Gunilla Eriksson, Annika Öhman, Anders Kottorp (Malmö University), Stefan Lundberg (KTH), Malcolm Cutchin, (Wayne State University, USA), Nicolas Kuhne (Lausanne, Schweiz), Maria Larsson Lund (Luleå), Habib Chaudhury (Simon Fraser University, Canada). Earlier also Heather Fritz, Susan Lawrence, Monica Panzar. 

PhD-students

Isabel Margot Cattin, Sophie Gaber & Sarah Wallcook (see also INDUCT)

Funders

FORTE, EU: Marie Slodowska Curie ETN, University of Applied sciences, Lausanne (Switzerland). Earlier also Strategiska Forskningsområdet Vård (SFO-V), Nationella Forskarskolan i Vård (NFV), Stockholm County Council (ALF). Also, see the following projects on CACTUS’ webpage: INDUCT at KI