Participation in places and activities in public space as perceived by people with cognitive impairment

The purpose of this research is to provide new knowledge of the conditions for participation in activities and places in public space and society outside the home for people with cognitive impairments, and to identify possible avenues to increase accessibility and provide relevant support.

As staying at home becomes the norm of all care policies, the possibility that these people have to access and be involved in activities outside home needs to be better understood, and improvements targeting different aspects (e.g. support to persons, improved accessibility in places) should be planned and systematically tested. Given that engagement in activities is increasingly recommended to prevent cognitive decline and also that community integration is emphasized to promote life satisfaction, better knowledge of how to facilitate an active lifestyle incorporating activities both within and beyond the boundaries of the home is vital.

This collaborative project builds on findings from our current research in the field of dementia in the Swedish context. Sub-studies are now going on in several countries (Sweden, French speaking Switzerland, Canada, UK, USA) involving a variety of professions (occupational therapy, engineering, geography and sociology) in the five countries. Initially the focus was put on people with dementia, but now it is extended to also embrace other populations (people with acquired brain injury, ABI, Luleå). In all countries, the newly developed questionnaire Participation in ACTivities and places OUTside home questionnaire (ACT-OUT) is used in the research, and in Sweden, Switzerland and UK also combined with qualitative studies. In Sweden, the project is longitudinal.

Leaders

Louise Nygård and Camilla Malinowsky

Members

Anna Brorsson, Liv Thalén, Anders Kottorp, Gunilla Eriksson, Annika Öhman, Stefan Lundberg (KTH), Malcolm Cutchin, (Wayne State University, USA), Nicolas Kuhne (Lausanne, Schweiz), Maria Larsson Lund (Luleå), Habib Chaudhury (Simon Fraser University, Canada).

Earlier also Heather Fritz, Susan Lawrence, Monica Panzar.

PhD-students

Isabel Margot Cattin, Sophie Gaber and Sarah Wallcook (see also INDUCT at KI)

Funders

FORTE, EU: Marie Slodowska Curie ETN, The Kamprad Family Foundation, University of Applied sciences, Lausanne (Switzerland). Earlier also Strategiska Forskningsområdet Vård (SFO-V), Nationella Forskarskolan i Vård (NFV), Stockholm County Council (ALF),

Also, see the following projects on CACTUS’ webpage: INDUCT at KI

Publications

  • Margot-Cattin I, Kuhne N, Kottorp A, Cutchin M, Öhman A and Nygård L (2019) Development of a questionnaire to evaluate out-of-home participation for people with dementia. American Journal of Occupational Therapy 73, 7301205030p1–7301205030p10.
  • Malinowsky, C., Olofsson, A., Nyman, A. & Larsson Lund. M. (2020). Patterns of participation: Facilitating and hindering aspects related to places for activities outside the home after stroke. Scandinavian Journal of Occupational Therapy, 27(3):204-212. doi: 10.1080/11038128.2019.1668958.
  • Olofsson A, Nyman A, Kassberg AC, Malinowsky C and Larsson Lund M (2020) Places visited for activities outside the home after stroke: Relationship with the severity of disability. British Journal of Occupational Therapy 83, 405–412.
  • Gaber SN, Nygard L, Brorsson A, Kottorp A and Malinowsky C (2019) Everyday technologies and public space participation among people with and without dementia.  Canadian Journal of Occupational Therapy 86, 400-411. https://doi.org/10.1177/0008417419837764
  • Gaber, S., Nygård, L., Brorsson A, Kottorp, A Charlesworth, G, Wallcook, S. & Malinowsky, C. (2020). Visualizing Social Participation in relation to Everyday Technology Use and Social Deprivation: A Mixed Methods Study Among Older People With and Without Dementia in the UK. IJERPH.
  • Gaber, S., Nygård, L., Charlesworth, G., Kottorp, A., Wallcook, S. & Malinowsky, C. (Accepter 22 April 2020) Perceived risks, concession travel pass access and everyday technology use for out-of-home participation: cross-sectional interviews among older people in the UK. BMC Geriatrics.
  • Chaudhury H, Mahal T, Seetharaman K and Nygaard HB (2020) Community participation in activities and places among older adults with and without dementia. Dementia. https://doi.org/10.1177/1471301220927230