Neuroepidemiology and Health Services Research - Selected publications including theses

List of selected publications and theses within the group.

Selected scientific publications

Perceptive Dialogue for Linking Stakeholders and Units During Care Transitions - A Qualitative Study of People with Stroke, Significant Others and Healthcare Professionals in Sweden.
Lindblom S, Ytterberg C, Elf M, Flink M
Int J Integr Care 2020 Mar;20(1):11

Factors related to met needs for rehabilitation 6 years after stroke.
Ytterberg C, Kristensen HK, Tistad M, von Koch L
PLoS ONE 2020 ;15(1):e0227867

Experiences of next of kin to patients with amyotrophic lateral sclerosis using invasive ventilation via tracheostomy.
Gottberg K, Ytterberg C, Sandstedt P, Johansson S, Kierkegaard M
Disabil Rehabil 2019 Dec;():1-8

Participation in social/lifestyle activities in people with multiple sclerosis: Changes across 10 years and predictors of sustained participation.
Johansson S, Ytterberg C, Gottberg K, Holmqvist LW, von Koch L, Conradsson D
Mult. Scler. 2019 Oct;():1352458519881991

The Importance of the Built Environment in Person-Centred Rehabilitation at Home: Study Protocol.
Kylén M, Von Koch L, Pessah-Rasmussen H, Marcheschi E, Ytterberg C, Heylighen A, et al
Int J Environ Res Public Health 2019 07;16(13):

Disability and Contextual Factors in Patients with Amyotrophic Lateral Sclerosis - A Three-Year Observational Study.
Sandstedt P, Littorin S, Johansson S, Gottberg K, Ytterberg C, Kierkegaard M
J Neuromuscul Dis 2018 ;5(4):439-449

Experiences of Sexuality Six Years After Stroke: A Qualitative Study.
Nilsson MI, Fugl-Meyer K, von Koch L, Ytterberg C
J Sex Med 2017 06;14(6):797-803

Individual Face-to-Face Cognitive Behavioural Therapy in Multiple Sclerosis: A Qualitative Study.
Gottberg K, Chruzander C, Backenroth G, Johansson S, Ahlström G, Ytterberg C
J Clin Psychol 2016 07;72(7):651-62

High-intensity resistance training in multiple sclerosis - An exploratory study of effects on immune markers in blood and cerebrospinal fluid, and on mood, fatigue, health-related quality of life, muscle strength, walking and cognition.
Kierkegaard M, Lundberg IE, Olsson T, Johansson S, Ygberg S, Opava C, et al
J. Neurol. Sci. 2016 Mar;362():251-7

Is one trial enough for repeated testing? Same-day assessments of walking, mobility and fine hand use in people with myotonic dystrophy type 1.
Kierkegaard M, Petitclerc E, Hébert LJ, Gagnon C
Neuromuscul. Disord. 2017 Feb;27(2):153-158

Participation in Complex and Social Everyday Activities Six Years after Stroke: Predictors for Return to Pre-Stroke Level.
Singam A, Ytterberg C, Tham K, von Koch L
PLoS ONE 2015 ;10(12):e0144344

Occurrence and Predictors of Falls in People With Stroke: Six-Year Prospective Study.
Minet LR, Peterson E, von Koch L, Ytterberg C
Stroke 2015 Sep;46(9):2688-90

A 10-year follow-up of a population-based study of people with multiple sclerosis in Stockholm, Sweden: changes in health-related quality of life and the value of different factors in predicting health-related quality of life.
Chruzander C, Ytterberg C, Gottberg K, Einarsson U, Widén Holmqvist L, Johansson S
J. Neurol. Sci. 2014 Apr;339(1-2):57-63

A population-based study of fall risk factors among people with multiple sclerosis in Stockholm county.
Ytterberg C, Einarsson U, Holmqvist LW, Peterson EW
J Rehabil Med 2013 May;45(5):452-7

A 10-year follow-up of a population-based study of people with multiple sclerosis in Stockholm, Sweden: changes in disability and the value of different factors in predicting disability and mortality.
Chruzander C, Johansson S, Gottberg K, Einarsson U, Fredrikson S, Holmqvist LW, et al
J. Neurol. Sci. 2013 Sep;332(1-2):121-7

The relationship between walking, manual dexterity, cognition and activity/participation in persons with multiple sclerosis.
Kierkegaard M, Einarsson U, Gottberg K, von Koch L, Holmqvist LW
Mult. Scler. 2012 May;18(5):639-46

A consensus on stroke: early supported discharge.
Fisher RJ, Gaynor C, Kerr M, Langhorne P, Anderson C, Bautz-Holter E, et al
Stroke 2011 May;42(5):1392-7

Feasibility and effects of a physical exercise programme in adults with myotonic dystrophy type 1: a randomized controlled pilot study.
Kierkegaard M, Harms-Ringdahl K, Edström L, Widén Holmqvist L, Tollbäck A
J Rehabil Med 2011 Jul;43(8):695-702

Limited fine hand use after stroke and its association with other disabilities.
Welmer AK, Holmqvist LW, Sommerfeld DK
J Rehabil Med 2008 Aug;40(8):603-8

A longitudinal study of variations in and predictors of fatigue in multiple sclerosis.
Johansson S, Ytterberg C, Hillert J, Widén Holmqvist L, von Koch L
J. Neurol. Neurosurg. Psychiatry 2008 Apr;79(4):454-7

Variations in functioning and disability in multiple sclerosis. A two-year prospective study.
Ytterberg C, Johansson S, Andersson M, Widén Holmqvist L, von Koch L
J. Neurol. 2008 Jul;255(7):967-73

High concurrent presence of disability in multiple sclerosis. Associations with perceived health.
Johansson S, Ytterberg C, Claesson IM, Lindberg J, Hillert J, Andersson M, et al
J. Neurol. 2007 Jun;254(6):767-73

Health-related quality of life in a population-based sample of people with multiple sclerosis in Stockholm County.
Gottberg K, Einarsson U, Ytterberg C, de Pedro Cuesta J, Fredrikson S, von Koch L, et al
Mult. Scler. 2006 Oct;12(5):605-12

Cognitive and motor function in people with multiple sclerosis in Stockholm County.
Einarsson U, Gottberg K, von Koch L, Fredrikson S, Ytterberg C, Jin YP, et al
Mult. Scler. 2006 Jun;12(3):340-53

Early supported discharge services for stroke patients: a meta-analysis of individual patients' data.
Langhorne P, Taylor G, Murray G, Dennis M, Anderson C, Bautz-Holter E, et al
Lancet ;365(9458):501-6

Spasticity after stroke: its occurrence and association with motor impairments and activity limitations.
Sommerfeld DK, Eek EU, Svensson AK, Holmqvist LW, von Arbin MH
Stroke 2004 Jan;35(1):134-9

Doctoral theses

Sebastian Lindblom, Understanding the links : the exploration of care transitions between hospital and continued rehabilitation in the home after stroke, 2021

Mia Forslin, Working life in people with multiple sclerosis, 2019

Petter Sandstedt, Disability and health-related quality of life in patients with amyotrophic lateral sclerosis, and caregiving experience from the perspective of next of kin, 2018

Charlotte Chruzander, A 10-year follow-up of people with multiple sclerosis-aspects of disability and health, use of and satisfaction with care, and feasibility of cognitive behavioural therapy, 2014

Susanne Palmcrantz, Long-term effects of stroke seen in young individuals living in the community, 2012

Marie Kierkegaard, Disability and Physical Exercise in adults with Myotonic Dystrophy type 1, 2010

Sverker Johansson, Disability in people with multiple sclerosis with focus on fatigue, 2008

Charlotte Ytterberg, A two-year study of people with multiple sclerosis - Aspects of disability, perceived impact, needs and satisfaction with care, 2008

Anna-Karin Welmer, Associations between body functions, activities and health-related quality of life from onset until 18 months after stroke, 2007

Kristina Gottberg, Studies of people living with multiple sclerosis in Stockholm county: evaluation of methods for data collection and aspects of functioning and use of health care services, 2006

Anette Forsberg, Guillain-Barré syndrome: disability, quality of life, illness experiences and use of healthcare, 2006

Ulrika Einarsson, People with multiple sclerosis in Stockholm: Aspects of motor and cognitive function, activities of daily living and social/lifestyle activities, 2006

Disa Sommerfeld, Body function and activity after acute stroke: Physiotherapy perspectives, 2004

Lena von Koch, Early supported hospital discharge and continued rehabilitation at home after stroke, 2000

Lotta Widén Holmqvist, Development and evaluation of rehabilitation at home after stroke in south-west Stockholm, 1997

Licentiate theses

Elsy Eek, A procedure for quantitative assessment of touch function in hands and feet using Hf/TENS; reliability for patients with stroke and recommended normative values 2009

Annica Wohlin Wottrich, On aspects of context in rehabilitation after stroke : views of patients and therapeutists, 2006

Ann-Mari Thorsén, Five-year follow-up of a randomized controlled trial of early supported discharge and continued rehabilitation at home after stroke, 2005

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