Neuroepidemiology and Health Services Research
Neuroepidemiology and health services research is an interdisciplinary field of research. Our research aims to contribute to improved health in people with neurological disability and in their families.
Our research includes studies of associations between neurological disease/injury and health, function, activity and participation in society among individuals and their families. Also health care interventions are studied, both from an individual, group and a social perspective, as well as the overall relation to efficiency and cost.
Our research group also study needs for health care interventions, in people with neurological disabilities and their families, as well as utilization of these efforts and satisfaction with care.
The area has great breadth and variety in terms of content and scientific methodology and includes both observational studies and intervention studies.
- A 10-year longitudinal population-based study of functioning, working capacity, health-related quality of life, patient satisfaction and use of health-care in people with multiple sclerosis Principal investigator: Lotta Widén Holmqvist.
- To live with amyotrophic lateral sclerosis (ALS): health-related quality of life, and use and satisfaction with care during the course of the disease Principal investigator: Marie Kierkegaard.
- A study of the impact of multiple sclerosis on working life and development of a program for cognitive support Principal investigator: Sverker Johansson.
- The missing link - development and evaluation of person - centered transitions from the stroke unit to the home with continued rehabilitation in the home environment - a co-design project Principal investigator: Charlotte Ytterberg.
Charlotte Ytterberg, Associate professor
Mia Forslin, PhD student
Kristina Gottberg, Senior lecturer
Sverker Johansson, Associate professor, University lecturer
Marie Kierkegaard, Research assistant
Sebastian Lindblom, PhD student
Petter Sandstedt, PhD student
Disa Sommerfeld, Associate professor, Senior lecturer
Lotta Widén-Holmquist, Senior professor
Collaborators or partners
Sverker Johansson, Disability in people with multiple sclerosis with focus on fatigue, 2008
Annica Wohlin Wottrich, On aspects of context in rehabilitation after stroke : views of patients and therapeutists, 2006
A 10-year follow-up of a population-based study of people with multiple sclerosis in Stockholm, Sweden: changes in health-related quality of life and the value of different factors in predicting health-related quality of life.
J. Neurol. Sci. 2014 Apr;339(1-2):57-63
A population-based study of fall risk factors among people with multiple sclerosis in Stockholm county.
J Rehabil Med 2013 May;45(5):452-7
A 10-year follow-up of a population-based study of people with multiple sclerosis in Stockholm, Sweden: changes in disability and the value of different factors in predicting disability and mortality.
J. Neurol. Sci. 2013 Sep;332(1-2):121-7
Effects of hand-training in persons with myotonic dystrophy type 1--a randomised controlled cross-over pilot study.
Disabil Rehabil 2013 Oct;35(21):1798-807
Pain following stroke, initially and at 3 and 18 months after stroke, and its association with other disabilities.
Eur. J. Neurol. 2012 Oct;19(10):1325-30
The relationship between walking, manual dexterity, cognition and activity/participation in persons with multiple sclerosis.
Mult. Scler. 2012 May;18(5):639-46
A consensus on stroke: early supported discharge.
Stroke 2011 May;42(5):1392-7
Functioning and disability in adults with myotonic dystrophy type 1.
Disabil Rehabil 2011 ;33(19-20):1826-36
Feasibility and effects of a physical exercise programme in adults with myotonic dystrophy type 1: a randomized controlled pilot study.
J Rehabil Med 2011 Jul;43(8):695-702
Location and severity of spasticity in the first 1-2 weeks and at 3 and 18 months after stroke.
Eur. J. Neurol. 2010 May;17(5):720-5
Use of health services in people with multiple sclerosis with and without fatigue.
Mult. Scler. 2009 Jan;15(1):88-95
Spasticity and its association with functioning and health-related quality of life 18 months after stroke.
Cerebrovasc. Dis. 2006 ;21(4):247-53
Longitudinal variations and predictors of increased perceived impact of multiple sclerosis, a two-year study.
J. Neurol. Sci. 2008 Jul;270(1-2):53-9
Limited fine hand use after stroke and its association with other disabilities.
J Rehabil Med 2008 Aug;40(8):603-8
A longitudinal study of variations in and predictors of fatigue in multiple sclerosis.
J. Neurol. Neurosurg. Psychiatry 2008 Apr;79(4):454-7
Variations in functioning and disability in multiple sclerosis. A two-year prospective study.
J. Neurol. 2008 Jul;255(7):967-73
High concurrent presence of disability in multiple sclerosis. Associations with perceived health.
J. Neurol. 2007 Jun;254(6):767-73
Reliability and feasibility of the six minute walk test in subjects with myotonic dystrophy.
Neuromuscul. Disord. 2007 Dec;17(11-12):943-9
Hemiplegic limb synergies in stroke patients.
Am J Phys Med Rehabil 2006 Feb;85(2):112-9
Health-related quality of life in a population-based sample of people with multiple sclerosis in Stockholm County.
Mult. Scler. 2006 Oct;12(5):605-12
Cognitive and motor function in people with multiple sclerosis in Stockholm County.
Mult. Scler. 2006 Jun;12(3):340-53
Spasticity after stroke: its occurrence and association with motor impairments and activity limitations.
Stroke 2004 Jan;35(1):134-9
Other selected publications
Chruzander C, Johansson S, Gottberg K, Einarsson U, Fredrikson S, Holmqvist LW, Ytterberg C. Förändring i funktionstillstånd över tid och prediktorer för förändring och mortalitet hos personer med multipel skleros. Best practice Multipel Skleros 2013 Dec;4:22-25.
Ytterberg C, Lundqvist S, Johansson S. Användning av hälso- och sjukvård under två år hos personer med multipel skleros med respektive utan depressiva symtom. Best practice Multipel Skleros 2014 May;6:12-14.