Utilizing the Swedish Twin Registry
The Swedish Twin registry is an (inter)national resource. Data from the registry can become available to academic and industry-based researchers. Read more below what is required to initiate research with the Swedish Twin Registry.
Regardless of the type of research interest, all potential collaborations or data access agreements must first be reviewed by the steering committee of the STR.
Policy and conditions
The general conditions for collaboration with the Swedish Twin Registry can be found in our policy document. See this link.
Start the process by reading the policy document so that all conditions can be met. After this step, you may send an application to STR's steering committee.
Decisions are taken by STR's steering committee that meet about 4 times per year.
In order to process your request, a complete application must be at hand with the STR no later than one week before a steering group meeting.The application cost should also be paid before the meeting. For information on when the next steering committee meeting will be held, please contact us: firstname.lastname@example.org
To be complete, an application shall contain the following:
- A filled out Application Form.
- A detailed and complete description of the project comprising 3-5 pages, including:
a) specific aims
b) general background (including relevant references to the literature)
c) data requested with inclusion and exclusion criteria
e) description of research group
- CV of the PI (Principal Investigator)
- Ethical application and ethical approval (for projects not including new contacts). For projects in which contacts with study persons are to be made, it is recommended that STR steering committee reviews contact letters and informed consent formulations before these documents are sent for ethical review.
If your application is approved, see guidelines for required data specifications
Studies within the Swedish Twin Registry
Below you can find some information about our studies grouped by cohorts.
The information comprises:
Questionnaire, a PDF format file (Swedish only, when applicable)
Area of study, variables, codes an Excel format file
All files are password protected.
Contact the Twin Registry to obtain the password.
Questionnaires administered in the 60s and the 70s with variable description
Born 1886-1925 Questionnaire 1961
Born 1886-1925 Questionnaire 1963
Born 1886-1925 Questionnaire 1967
Born 1886-1925 Questionnaire 1970
Questionnaires administered in the 90s with variable description
Born 1886-1958 SALT - Screening Across the Lifespan Twin
Born 1886-1958 TwinGene - Pair of twins from the SALT-study
Born 1826-1958 Birth - Birth weight and risk of adult disease in offspring: etiologic determants
Born 1973 Questionnaire
Born 1959-1985 STAGE - Swedish Twin Studies of adults: Genes och Environment
Born 1959-1985 STAGE ONE - Swedish Twin Studies of adults: Genes och Environment
Born 1992-1999 CATSS - The Child and Adolescent Twin Study in Sweden