The research group I-CARE
Asst research group leader
The research area
The research in the group is based on the salutogenic idea of what, from the patient’s perspective, promotes health and wellbeing, inner strength and strives for improvement. The emphasis is on the implication of the patient's own statements and the experience of living with a disease and how this is handled in order to improve health and well-being. The research covers method development, intervention studies and implementation carried out in close collaboration between researchers, patients and clinicians. Based on theories of patient participation, interventions are developed and tested from the patients, the care providers and the organizations perspective.
1-Reporting in an application for smartphones and tablets (PhONEME)
Patients are today increasingly treated on outpatient basis which requires the patient to be an expert in their own health but also the provision of safe care from the healthcare givers. This project evaluates an interactive application for use in a smartphone or tablet connected to a Web interface enabling decision support for medical personnel. Via the application the patients reports their symptoms and concerns, and a pre-defined alert system instigates an immediate contact with a nurse when needed. In the application there is also access to evidence-based self-care advice and the possibility to view the reported symptoms through graphs. The content of the application is developed in collaboration with patients and healthcare personnel. The hypothesis is that the application gives extra support and increases the patient’s participation in care which ultimately leads to greater patient safety and cost effectiveness while patients experience a safe and appropriate care.
Ongoing projects include patients with prostate, breast and pancreatic cancer as well as older people receiving home care.
Links to Publications
An important research question is how perceptions and experiences differ between people and if this can be explained by the individual's ability to handle stressful situations, mainly based on the concept of sense of coherence (SOC). The research includes methodological studies of the questionnaire that measures SOC and its predictive value for recovery, relapse and survival.
Members of the research team
Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: a qualitative study from the perspectives of health professionals and family caregivers.