Patients in the driver’s seat! A multimethod partnership program on patient-driven innovations

Genia is a mobile patient support system (mPSS) for young cystic fibrosis patients. It’s designed to establish patient, family and health care team partnerships, with an emphasis on placing the young person at the center of the decision-making process.

“Drömfångarprojektet” started in 2018. During the project, we realized that not everyone in healthcare shares the perception that healthcare meetings should, can, or even should be about dreams. Based on our experiences from “Drömfångaren”, we have now developed a website with the goal of facilitating an attitude shift towards “Caring for Dreams”.

“What is good and helpful to know about psychiatry, as a patient or relative?” is the theme of the lecture series “Worth Knowing About Psychiatry and Recovery”. The clinic’s user influence coordinator (BISAM) has developed content and structure based on requests and development proposals from participants in the Patient School, which is now taking a new form.

The Lead Patients innovation aims to support those patients wishing to take a substantial role in advancing their own and others’ self-care and demonstrate to health care and society what some patients are capable of. This is a social innovation that targets improvements in health systems by enabling substantial contributions from patients and informal caregivers.

The Care Maps aims to identify and strengthen social relationships relevant to life-changing events. The use of a Care Map may also facilitate care planning, coordination and communication between stakeholders and contribute to the identification of potentially lacking or unnecessary resources.