STR - FAQ
Frequently asked questions on how to search and find data, applications processes, population registers, data sources, technical issues and much more.
FAQ for researchers
Use the STR metadata portal to search and find phenotypic data of interest. PDF versions of earlier surveys and questionnaires can be found on STR - Questionnaires.
No, but you need to hand in a draft for an ethical application together with other requested documents. In this manner we can help with the description of data, information to participants and consent if needed. No data will be handed out before adequate ethical approval has been obtaine
Since we use “first come - first served” principle, it depends on the number and complexity of requests already in line. A common waiting time is a few months after approval.
Patient register (in- and outpatient specialist care, until 2016), prescribed drug register (until 2017), medical birth register (until 2015), cause of death register (until 2017), cancer register (until 2015), dog ownership (until 2016), conscription register (male twins born 1936-1995).
This is uncertain since our latest request was rejected by the Board of Health and Welfare.
Yes, given ethical approval and a separate application and approval from the Board of Health and Welfare.
Yes, given ethical approval and approval from the external data source.
On STR Core Facility - user guidelines you can read about the application procedure and what documents to include. To find and select the variables of interest you can use the STR metadata portal to create and download your variable list. You submit the application in iLab (corefacilities.org), which is the platform for KI core facilities.
Yes, you may send in your request as a feasibility test in iLab (corefacilities.org). Ethical approval is not needed at this stage and the cost is on hourly basis (900 SEK/hour). We run feasibility tests regularly.
The usual cost for application and delivery of phenotypic data is 31,500 SEK. Genotypic data is accessible for an additional 60,000 SEK. See our current fees.
For data received 2023 or later: “We acknowledge The Swedish Twin Registry for access to data. The Swedish Twin Registry is managed by Karolinska Institutet and receives funding through the Swedish Research Council un-der the grant no 2021-00180.” For data received before 2023: “We acknowledge The Swedish Twin Registry for access to data. The Swedish Twin Registry is managed by Karolinska Institutet and receives funding through the Swedish Research Council under the grant no 2017-00641.”