Ulrik Kihlbom
About me
I am Professor of Medical Clinical Ethics in the Stockholm Centre for Healthcare Ethics, Department of Learning, Informatics, Management and Ethics (LIME), KI.
My primary research interests include ethical issues related to patients’ perspective and decision-making, the ethics of social care and public health, normative ethics and methodology of bioethics. Currently I am leading a group that addresses patients’ views and the ethics of precision medicine in hematology within a European consortia (the 3-year project MEET-AML, funded by ERAPerMed. I am also doing the ethics part in another ERAPerMed funded project, RELIABLE, in which we assess personalized preventive strategies for patients in the early stages of Multiple Sclerosis (MS).
From 2024, I am the principal investigator of the interdisciplinary project "In the best interest of the child? Ethical, legal and empirical assessments of decisions in social service to restrict social contact", funden by the Swedish Research Council (2024-2026) and with researchers from philosophy, public health, law and social work.
I teach at various courses on ethical issues at KI as well as for health care professionals in various disciplines.
I am a member of the Ethics Council of Karolinska University Hospital, the Ethics council of Astrid Lindgren Children's Hospital, and the Scientific Advisory Committee for the Swedish Agency for Health Technology Assessment and Assessment of Social Services (SBU).
Articles
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Article: PATIENT EDUCATION AND COUNSELING. 2023;115:107883
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Article: FRONTIERS IN PHARMACOLOGY. 2023;14:1192770
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Article: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING. 2022;17(1):2103137
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Article: PATIENT EDUCATION AND COUNSELING. 2021;104(10):2577-2585
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Article: SCHIZOPHRENIA RESEARCH. 2021;228:360-366
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Article: PATIENT PREFERENCE AND ADHERENCE. 2021;15:1331-1345
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Article: RECENT RESULTS IN CANCER RESEARCH. 2021;218:119-134
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Article: ARTHRITIS RESEARCH & THERAPY. 2020;22(1):288
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Journal article: JOURNAL OF BIOETHICAL INQUIRY. 2020;17(4):749-755
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Article: BMC MEDICAL ETHICS. 2020;21(1):30
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Article: PATIENT-PATIENT CENTERED OUTCOMES RESEARCH. 2019;12(3):297-305
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Journal article: VALUE IN HEALTH. 2019;22(4):491-501
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Article: PATIENT PREFERENCE AND ADHERENCE. 2019;13:273-282
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Article: JOURNAL OF RISK RESEARCH. 2018;21(2):222-235
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Journal article: JOURNAL OF ONCOLOGY PRACTICE. 2017;13(10):679-682
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Journal article: VALUE IN HEALTH. 2017;20(9):A540
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Article: UPSALA JOURNAL OF MEDICAL SCIENCES. 2016;121(4):295-298
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Article: UPSALA JOURNAL OF MEDICAL SCIENCES. 2016;121(4):289-294
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Article: JOURNAL OF COMMUNITY GENETICS. 2016;7(3):203-214
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Article: EUROPEAN JOURNAL OF CANCER CARE. 2016;25(3):516-523
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Article: JOURNAL OF MEDICAL ETHICS. 2015;41(2):183-185
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Article: EUROPEAN JOURNAL OF CANCER CARE. 2015;24(1):133-141
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Article: SUPPORTIVE CARE IN CANCER. 2013;21(11):3137-3142
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Journal article: PHYSICAL CULTURE AND SPORT, STUDIES AND RESEARCH. 2013;59(1):21-32
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Journal article: SPORT, ETHICS AND PHILOSOPHY. 2012;6(4):467-479
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Journal article: SPORT, ETHICS AND PHILOSOPHY. 2011;5(2):149-160
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Article: ACTA PAEDIATRICA. 2009;98(8):1349-1354
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Article: JOURNAL OF MEDICAL ETHICS. 2008;34(3):146-149
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Article: BMC MEDICAL ETHICS. 2007;8:6
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All other publications
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Book chapter: ETHICAL CHALLENGES IN CANCER DIAGNOSIS AND THERAPY: RECENT RESULTS IN CANCER RESEARCH. 2021;p. 119-134Ethical Aspects of Regulating Oncology Products
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Book: 2020Ethical, Social and Psychological Impacts of Genomic Risk Communication
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Book chapter: ETHICAL, SOCIAL AND PSYCHOLOGICAL IMPACTS OF GENOMIC RISK COMMUNICATION. 2020;p.Introduction
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Book chapter: ETHICAL, SOCIAL AND PSYCHOLOGICAL IMPACTS OF GENOMIC RISK COMMUNICATION. 2020;p."They don't really understand"
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Book chapter: ETHICAL, SOCIAL AND PSYCHOLOGICAL IMPACTS OF GENOMIC RISK COMMUNICATION. 2020;p.Epilogue
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Book chapter: WHAT ABOUT THE FAMILY? PRACTICES OF RESPONSIBILITY IN CARE. 2019;p.Healthcare Decisions
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Review: PROGRESS IN NUCLEIC ACID RESEARCH AND MOLECULAR BIOLOGY. 2018;158:299-323
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Published conference paper: BIOETHICS. 2000;14(4):287-309
Grants
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Swedish Research Council1 January 2024 - 31 December 2026
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RELIABLE (Targeting subclinical motor and cognitive impairment in patients with early onset Multiple Sclerosis at high Risk of disEase acitivity through a preventive personaLised and InnovAtive rehaBiLitation stratEgy)ERA PerMed/Vinnova1 March 2022 - 28 February 2025
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Swedish Research Council1 January 2021 - 31 December 2022
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Swedish Research Council1 January 2020 - 31 December 2022
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Innovative Medicines Initiative (IMI) 21 October 2016 - 31 May 2022