Ulrik Kihlbom
About me
I am Professor of Medical Clinical Ethics in the Stockholm Centre for Healthcare Ethics, Department of Learning, Informatics, Management and Ethics (LIME), KI.
My primary research interests include ethical issues related to patients’ perspective and decision-making, the ethics of social care and public health, normative ethics and methodology of bioethics. I am the principal investigator of the interdisciplinary project "In the best interest of the child? Ethical, legal and empirical assessments of decisions in social service to restrict social contact", funden by the Swedish Research Council (2024-2026). It includes researchers from philosophy, public health, law and social work. I am also doing the ethics part in an ERAPerMed funded project, RELIABLE, in which we assess personalized preventive strategies for patients in the early stages of Multiple Sclerosis (MS), 2023-2025. I recently finalised a project that addressed patients’ views and the ethics of precision medicine in hematology within a European consortia, the 3-year project MEET-AML, funded by ERAPerMed.
I teach medical ethics at the medical school at KI, as well giving lectures and seminars for health care professionals around the country. I am a member of the Educational Committee at LIME (Department of Learning, Informatics, Management and Ethics).
I am a member of the Ethics Council of Karolinska University Hospital, the Ethics council of Astrid Lindgren Children's Hospital, and the Scientific Advisory Committee for the Swedish Agency for Health Technology Assessment and Assessment of Social Services (SBU).
Articles
- Journal article: JOURNAL OF BIOETHICAL INQUIRY. 2025;:1-14Inge E; Elmi N; Omar Y; Warner G; Kihlbom U
- Journal article: FRONTIERS IN PSYCHIATRY. 2025;16:1580657Views and experiences on writing certificates for assisted dying: interviews with Swedish physiciansJonsson F; Sjostrand M; Kihlbom U
- Journal article: BMJ OPEN. 2025;15(5):e095552Bywall KS; Kihlbom U; Johansson JV; Pasquini G; Gerli F; Niccolai C; Della Bella S; Portaccio E; Betti M; Amato MP; Martin S
- Article: MULTIPLE SCLEROSIS AND RELATED DISORDERS. 2024;92:106143Martin S; Kihlbom U; Pasquini G; Gerli F; Niccolai C; Della Bella S; Portaccio E; Betti M; Amato MP; Achiron A; Kalron A; Aloni R; Bywall KS
- Article: PATIENT EDUCATION AND COUNSELING. 2023;115:107883Grauman A; Kontro M; Haller K; Nier S; Aakko S; Lang K; Zingaretti C; Meggiolaro E; De Padova S; Marconi G; Martinelli G; Heckman CA; Simonetti G; Bullinger L; Kihlbom U
- Article: FRONTIERS IN PHARMACOLOGY. 2023;14:1192770Janssens R; Barbier L; Muller M; Cleemput I; Stoeckert I; Whichello C; Levitan B; Hammad TA; Girvalaki C; Ventura J-J; Bywall KS; Pinto CA; Schoefs E; Katz EG; Kihlbom U; Huys I
- Article: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING. 2022;17(1):2103137Lampa E; Sarkadi A; Osman F; Kihlbom U; Warner G
- Article: PATIENT EDUCATION AND COUNSELING. 2021;104(10):2577-2585Bywall KS; Veldwijk J; Hansson MG; Baecklund E; Raza K; Falahee M; Kihlbom U
- Article: PATIENT PREFERENCE AND ADHERENCE. 2021;15:1331-1345Russo S; Monzani D; Pinto CA; Vergani L; Marton G; Falahee M; Simons G; Whichello C; Kihlbom U; Pravettoni G
- Article: BMJ OPEN. 2021;11(4):e045851Falahee M; Simons G; DiSantostefano RL; Mendez LV; Radawski C; Englbrecht M; Bywall KS; Tcherny-Lessenot S; Kihlbom U; Hauber B; Veldwijk J; Raza K
- Article: SCHIZOPHRENIA RESEARCH. 2021;228:360-366Dufva YE; Westman H; Khilbom U; Sullivan PF; Johansson V
- Article: RECENT RESULTS IN CANCER RESEARCH. 2021;218:119-134Guizzaro L; Drosos S; Kihlbom U; Pignatti F
- Article: ARTHRITIS RESEARCH & THERAPY. 2020;22(1):288Bywall KS; Kihlbom U; Hansson M; Falahee M; Raza K; Baecklund E; Veldwijk J
- Journal article: JOURNAL OF BIOETHICAL INQUIRY. 2020;17(4):749-755Dawson A; Isaacs D; Jansen M; Jordens C; Kerridge I; Kihlbom U; Kilham H; Preisz A; Sheahan L; Skowronski G
- Article: BMC MEDICAL ETHICS. 2020;21(1):30Matar A; Hoglund AT; Segerdahl P; Kihlbom U
- Article: PATIENT-PATIENT CENTERED OUTCOMES RESEARCH. 2019;12(3):297-305Bywall KS; Veldwijk J; Hansson MG; Kihlbom U
- Journal article: VALUE IN HEALTH. 2019;22(4):491-501Russo S; Jongerius C; Faccio F; Pizzoli SFM; Pinto CA; Veldwijk J; Janssens R; Simons G; Falahee M; de Bekker-Grob E; Huys I; Postmus D; Kihlbom U; Pravettoni G
- Article: PATIENT PREFERENCE AND ADHERENCE. 2019;13:273-282Veldwijk J; Groothuis-Oudshoorn CGM; Kihlbom U; Langenskiold S; Dekker E; Kallenberg FGJ; de Wit GA; Lambooij MS
- Journal article: JOURNAL OF ONCOLOGY PRACTICE. 2017;13(10):679-682Godskesen T; Kihlbom U
- Journal article: VALUE IN HEALTH. 2017;20(9):A540Bywall KS; Veldwijk J; Hansson M; Kihlbom U
- Article: UPSALA JOURNAL OF MEDICAL SCIENCES. 2016;121(4):295-298Kihlbom U
- Article: UPSALA JOURNAL OF MEDICAL SCIENCES. 2016;121(4):289-294Ragnar ME; Tyden T; Kihlbom U; Larsson M
- Article: JOURNAL OF COMMUNITY GENETICS. 2016;7(3):203-214Matar A; Kihlbom U; Hoglund AT
- Article: EUROPEAN JOURNAL OF CANCER CARE. 2016;25(3):516-523Godskesen TM; Kihlbom U; Nordin K; Silen M; Nygren P
- Article: JOURNAL OF MEDICAL ETHICS. 2015;41(2):183-185Verkerk MA; Lindemann H; McLaughlin J; Scully JL; Kihlbom U; Nelson J; Chin J
- Article: EUROPEAN JOURNAL OF CANCER CARE. 2015;24(1):133-141Godskesen T; Hansson MG; Nygren P; Nordin K; Kihlbom U
- Article: SUPPORTIVE CARE IN CANCER. 2013;21(11):3137-3142Godskesen T; Nygren P; Nordin K; Hansson M; Kihlbom U
- Journal article: PHYSICAL CULTURE AND SPORT, STUDIES AND RESEARCH. 2013;59(1):21-32Atry A; Hansson MG; Kihlbom U
- Journal article: SPORT, ETHICS AND PHILOSOPHY. 2012;6(4):467-479Atry A; Hansson MG; Kihlbom U
- Journal article: SPORT, ETHICS AND PHILOSOPHY. 2011;5(2):149-160Atry A; Hansson MG; Kihlbom U
- Article: ACTA PAEDIATRICA. 2009;98(8):1349-1354Concern for privacy in relation to age during physical examination of children: an exploratory studyHansson MG; Kihlbom U; Tuvemo T; Rodriguez A
- Article: JOURNAL OF MEDICAL ETHICS. 2008;34(3):146-149Kihlbom U
- Article: BMC MEDICAL ETHICS. 2007;8:6Hansson MG; Kihlbom U; Tuvemo T; Olsen LA; Rodriguez A
- Show more
All other publications
- Book chapter: ETHICAL CHALLENGES IN CANCER DIAGNOSIS AND THERAPY: RECENT RESULTS IN CANCER RESEARCH. 2021;p. 119-134Ethical Aspects of Regulating Oncology ProductsKihlbom U; Guizzaro L; Drosos S; Pignatti F
- Book chapter: ETHICAL, SOCIAL AND PSYCHOLOGICAL IMPACTS OF GENOMIC RISK COMMUNICATION. 2020;p.IntroductionKihlbom U
- Book chapter: ETHICAL, SOCIAL AND PSYCHOLOGICAL IMPACTS OF GENOMIC RISK COMMUNICATION. 2020;p."They don't really understand"Kihlbom U
- Book: 2020Ethical, Social and Psychological Impacts of Genomic Risk CommunicationKihlbom U; Hansson MG; Schicktanz S
- Book chapter: ETHICAL, SOCIAL AND PSYCHOLOGICAL IMPACTS OF GENOMIC RISK COMMUNICATION. 2020;p.EpilogueKihlbom U
- Book chapter: WHAT ABOUT THE FAMILY? PRACTICES OF RESPONSIBILITY IN CARE. 2019;p.Healthcare DecisionsKihlbom U; Munthe C
- Review: ADVANCES IN AGGREGATION INDUCED EMISSION MATERIALS IN BIOSENSING AND IMAGING FOR BIOMEDICAL APPLICATIONS, PT A. 2018;158:299-323Renzi C; Provencal N; Bassil KC; Evers K; Kihlbom U; Radford EJ; Koupil I; Mueller-Myhsok B; Hansson MG; Rutten BPF
- Published conference paper: BIOETHICS. 2000;14(4):287-309Kihlbom U
Grants
- Swedish Research Council for Health Working Life and Welfare1 January 2025 - 31 December 2027Research problem and specific questionsSuicide prevention is a high-priority public health goal. Assessing patients´ suicide risk is a basis for clinical decisions in psychiatry, including decisions about involuntary care. However, there is currently a lack of clear evidence on how suicide risk should be assessed and how risk assessments should be used, leading to uncertainty and possible inequality in clinical assessments and decisions.- How are suicide risk assessments conducted and what basis do they provide for clinical decisions, including decisions about involuntary care?- How do patients perceive suicide risk assessments and what is their view on the role of suicide risk assessments in psychiatry?- How do judges perceive suicide risk assessments and what relevance do they have for court decisions regarding involuntary psychiatric care?- How should suicide risk assessments be conducted and how should they be used in healthcare?Data and methods1) Interviews with psychiatrists about how they conduct suicide risk assessments and how they use their assessments. The data will be analyzed using qualitative content analysis.2) Interviews with patients about their experiences and views of suicide risk assessments. We will use thematic analysis to analyse the data.3) A survey study based on case vignettes and questions on suicide risk assessments and involuntary psychiatric care. The survey will be sent to Swedish psychiatrists. We will use descriptive and inferential methods to analyze the results.4) Focus group interviews with judges in the Administrative Courts regarding suicide risk as a reason for involuntary psychiatric care. We will use qualitative content analysis to analyze the data. 5) Ethical analysis based on studies 1-4 and current research on suicide prediction. The aim is to present an analysis and an ethical framework to guide assessments of suicide risk in healthcare.Social Relevance and utilisationThe overarching goal of the project is to provide a basis for evidence-based, clinically meaningful, equal, and patient-centered assessments of suicide risk.Plan for project realisationThe project will be conducted over three years by an interdisciplinary research team that includes expertise in psychiatry, medical ethics, and law. We intend to publish the results in the form of research articles and also to develop a framework for suicide risk assessments to be used as decision support in healthcare
- Swedish Research Council1 January 2024 - 31 December 2026The overall purpose of this project is to critically explore decision making in social care with a focus on the principle of the “best interest of the child” in matters related to restricting children’s and legal guardians’ right to socialization in compulsory care. We will take an interdisciplinary approach in examining the ethical and legal foundations of the principle of the best interest of the child, exploring how it is understood and applied by social workers in this decision-making context. On these grounds and in collaboration with social workers as research partners, we will develop recommendations and tools to support decision-making.The specific aims of this project are to:Identify and assess the legal and ethical principles and values that underpin the notion of the best interest of the child.Identify how social workers in Sweden understand and apply the notion of the best interest of the child in the context of making decisions about restricting children’s contact with their parents.Formulate the most reasonable ethical and legal requirements for making decisions guided by the best interest of the child in social care.Develop the first stages of an intervention that in may inform and support decisions in social care.By using methods of legal science, analytic philosophy, qualitative and quantitative empirical methodology and social interventions, the results will be relevant to scholars in different fields as well as to social workers and other stakeholders.
- RELIABLE (Targeting subclinical motor and cognitive impairment in patients with early onset Multiple Sclerosis at high Risk of disEase acitivity through a preventive personaLised and InnovAtive rehaBiLitation stratEgy)ERA PerMed/Vinnova1 March 2022 - 28 February 2025
- Swedish Research Council1 January 2021 - 31 December 2022
- Swedish Research Council1 January 2020 - 31 December 2022
- Innovative Medicines Initiative (IMI) 21 October 2016 - 31 May 2022