Staffan Josephsson
Professor of Occupational Therapy at Karolinska Institutet with extensive experience in research on narrative practices, elder care, and participation in everyday activities.
About me
I am a Professor in the Division of Occupational Therapy within the Department of Neurobiology, Care Sciences and Society at Karolinska Institutet Sweden. I earned my degree in occupational therapy from the Stockholm College of Health Sciences in 1985. Between 1985 and 1989, I worked as an occupational therapist in geriatric care while also pursuing studies in pedagogy and theatre studies at Stockholm University.
In 1994, I completed my PhD at Karolinska Institutet, examining how everyday activities can serve as meeting places for people living with dementia. During my doctoral training, I spent a period at the University of Illinois at Chicago with anthropologist Cheryl Mattingly, where I was introduced to medical anthropology and deepened my understanding of narrative theory. This work emerged from a shared interest in Paul Ricoeur’s integration of phenomenology and hermeneutics to understand how meaning is shaped through everyday action.
I began my academic career at Karolinska Institutet in 1998 and was appointed full professor in 2011. In 2010, I affiliated with Sør‑Trøndelag University College, and later with the Norwegian University of Science and Technology (NTNU) in Trondheim. At NTNU, I collaborated with Professor Sissel Alsaker to develop a “narrative‑in‑action” approach, exploring how individuals make sense of their world through everyday activities that integrate personal, social, structural, ideological, and existential dimensions.
My scholarly work is continually enriched by international collaborations, including with researchers in Chile and Japan. My parallel engagement as a storyteller and active participant in the local art community also contributes to my understanding of narrative, embodiment, and meaning making across diverse contexts. Together, these experiences constitute the foundation of a research program focused on narrative, everyday practice, and human experience—principles that underpin my current work.
Research
People’s stories matter in health and social care. But how do patients create meaning in relation to the care and support they receive? Today, concepts such as participation, co‑creation, and patient involvement are widely used in research, education, and clinical practice. Yet it is not always clear what these concepts mean in everyday practice, or how evidence‑based care can be combined with patients’ own perspectives and interpretations.
In my work, together with colleagues, I draw on philosopher Paul Ricoeur’s ideas about narrative, action, and interpretation. We focus on empirical research on person‑centred practices within health and social care.
Based on long‑term qualitative studies of older people’s everyday lives, and in close collaboration with residential care facilities and geriatric services, our projects have developed a theoretically grounded and practically useful model for Narratively Engaged Care (NEC).
Although narrative perspectives are central to person‑centred care, there is still a lack of effective ways to integrate narrative meaning‑making into everyday routines and organisational structures. Building on Ricoeur’s theory and our long‑standing research, we have developed a theoretical framework — “narrative‑in‑action” — that describes how lived experience and professional knowledge can be combined to strengthen participation, dignity, and quality of life.
With support from the research council Forte, we are now developing a knowledge resource for eldercare organisations that aim to work more person‑centred and strengthen their competence in meeting people through their everyday stories, thereby enhancing older adults’ influence over their daily lives.
Teaching
My pedagogical positionality has been shaped by my family’s social mobility—from small‑scale farming with limited access to education to positions within the academic middle class. My educational values are further informed by my family’s long-standing engagement in popular movements, including the Scandinavian folk high‑school movement and South American liberation theology. These influences have fostered in me a view of human beings as both vulnerable and capable, and I reject any form of disdain for weakness.
My current educational practice is grounded in theories of learning as a constructive process and in perspectives that highlight the social nature of learning (Piaget 1970; Mogensen 1994). From these theoretical foundations, I regard students’ active work to integrate theoretical knowledge with experiences from lectures and clinical practice as central to the learning process. The role of education, therefore, is to create conditions that support such integration and to cultivate students’ readiness to generate new knowledge when they encounter unfamiliar or complex professional situations.
In my teaching, I have consistently applied both problem‑oriented and problem‑based pedagogical approaches. These approaches share a student‑centred perspective informed by contemporary learning theories and foreground the professional communities of practice into which students are entering. Importantly, they are closely aligned with working methods used in clinical occupational therapy, thereby enhancing the relevance and transferability of learning between university and fieldwork environments.
Ongoing critical reflection and evaluation have been key components of my pedagogical work (Runge et al. 2000; Josephsson, Heuchemer & Thornberg 2006). I view this reflective stance as essential for engaging students in a critical professional culture and for supporting the development of evidence‑based practice (Lave & Wenger 1991). Such reflection must apply not only to clinical practice but also to the pedagogical methods used in education. Therefore, I consider it vital continually to scrutinize, question, and refine the teaching formats that shape students’ learning.
To foster genuine participation and engagement among both students and colleagues, it is necessary to make the theoretical and ideological underpinnings of pedagogical methods explicit. With this in mind, I have initiated and developed critical spaces within the courses I teach—framed as third spaces—where students and teachers can collaboratively reflect on and discuss the pedagogical approaches used in the programme. These meeting places have been instrumental in strengthening transparency, shared understanding, and collective pedagogical development.
Selected publications
- Article: HIGHER EDUCATION RESEARCH & DEVELOPMENT. 2016;35(6):1111-1124Barman L; Josephsson S; Silen C; Bolander-Laksov K
- Review: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2016;23(1):1-12Madsen J; Kanstrup AM; Josephsson S
Articles
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2026;:1-20Linimayr J; Schulze C; Josephsson S
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2025;32(4):597-603Josephsson S
- Journal article: JOURNAL OF RECOVERY IN MENTAL HEALTH. 2025;8(1):23-45Høgås M; Josephsson S; Alsaker S
- Article: OCCUPATIONAL THERAPY IN HEALTH CARE. 2025;39(1):193-215Hoerder R; Josephsson S; Kramer-Roy D
- Article: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING. 2024;19(1):2293130Scholander LH; Bostrom A-M; Josephsson S; Vikstrom S
- Article: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING. 2024;19(1):2367851Scholander LH; Vikstroem S; Bostroem A-M; Josephsson S
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2024;31(1):2394212Hansen BW; Pedersen HA; Berring LL; Josephsson S
- Article: SOCIALMEDICINSK TIDSKRIFT. 2024;101(3):318-326Narrativa relationer som redskap för personcentrering inom geriatrisk vårdHerulf Scholander L; Josephsson S
- Article: OTJR-OCCUPATIONAL THERAPY JOURNAL OF RESEARCH. 2024;44(4):661-670Pineda RC; Abad-Pinlac B; Yao DPG; Toribio FNRB; Josephsson S; Sy MP
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2023;30(4):539-545Josephsson S
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2023;30(4):617-633van der Veen RD; Johansson S; Satink T
- Article: AGEING & SOCIETY. 2023;43(10):2229-2238Asaba E; Mondaca M; Josephsson S; Johansson K
- Article: JOURNAL OF CLINICAL NURSING. 2023;32(13-14):3954-3966Scholander LH; Bostrom A-M; Josephsson S; Vikstrom S
- Article: OCCUPATIONAL THERAPY INTERNATIONAL. 2022;2022:5495055-10Bontje P; Josephsson S; Tamura Y; Ishibashi Y; Sakane Y; Horibe Y; Asaba E
- Article: NURSING PHILOSOPHY. 2022;23(3):e12398Josephsson S; Ohlen J; Mondaca M; Guerrero M; Luborsky M; Lindstrom M
- Article: MEDICAL EDUCATION. 2022;56(6):651-659Barman L; McGrath C; Josephsson S; Silen C; Laksov KB
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2021;28(8):631-642Madsen J; Josephsson S; Kanstrup AM
- Article: JOURNAL OF AGING STUDIES. 2021;58:100940Herulf Scholander L; Vikstrom S; Mondaca M; Josephsson S
- Article: AGING & MENTAL HEALTH. 2020;24(4):679-688Mondaca M; Johansson K; Josephsson S; Rosenberg L
- Article: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING. 2020;15(1):1747252Reed NP; Josephsson S; Alsaker S
- Journal article: 作業科学研究. 2019;13(1):55-66真理 坂; ペイター ボ; JOSEPHSSON S; ALSAKER S
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2019;26(6):441-451Mondaca M; Josephsson S; Borell L; Katz A; Rosenberg L
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2019;26(6):423-432Bontje P; Alsaker S; Asaba E; Kottorp A; Josephsson S
- Article: OCCUPATIONAL THERAPY INTERNATIONAL. 2019;2019:7464607-10Echsel A; Price L; Josephsson S; Schulze C
- Journal article: ASIAN JOURNAL OF OCCUPATIONAL THERAPY. 2019;15(1):53-62Breivik I; Josephsson S; Lidström H
- Article: NURSING INQUIRY. 2018;25(2):e12217Mondaca M; Josephsson S; Katz A; Rosenberg L
- Article: INTERNATIONAL JOURNAL OF MENTAL HEALTH NURSING. 2018;27(2):814-822Reed NP; Josephsson S; Alsaker S
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2017;24(4):393-396Josephsson S
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2017;24(4):430-433Madsen J; Josephsson S
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2017;24(4):412-424Madsen J; Josephsson S
- Article: CLINICAL REHABILITATION. 2017;31(3):379-393Van de Velde D; Coorevits P; Sabbe L; De Baets S; Bracke P; Van Hove G; Josephsson S; Ilsbroukx S; Vanderstraeten G
- Journal article: 2017
- Journal article: NARRATIVE INQUIRY. 2016;26(1):22-38Ulfseth LA; Josephsson S; Alsaker S
- Article: DISABILITY AND REHABILITATION. 2016;38(24-26):2354-2364Satink T; Josephsson S; Zajec J; Cup EHC; de Swart BJM; Nijhuis-van der Sanden MWG
- Article: BMC NEUROLOGY. 2016;16(1):221Satink T; Josephsson S; Zajec J; Cup EHC; de Swart BJM; Nijhuis-van der Sanden MWG
- Article: EUROPEAN JOURNAL OF PHYSICAL AND REHABILITATION MEDICINE. 2016;52(4):527-540Van De Velde D; Bracke P; Van Hove G; Josephsson S; Viaene A; De Boever E; Coorevits P; Vanderstraeten G
- Article: SCANDINAVIAN JOURNAL OF CARING SCIENCES. 2016;30(1):154-163Bontje P; Asaba E; Josephsson S
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2015;22(4):422-433Ulfseth LA; Josephsson S; Alsaker S
- Journal article: SCANDINAVIAN JOURNAL OF DISABILITY RESEARCH. 2015;17(2):99-114Ulfseth LA; Josephsson S; Alsaker S
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2014;21(4):459-472Nyman A; Josephsson S; Isaksson G
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2014;21(5):348-358van Dongen I; Josephsson S; Ekstam L
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2014;21(5):368-376Nyman A; Josephsson S; Isaksson G
- Journal article: HEALTH AND INTERPROFESSIONAL PRACTICE. 2014;2(2)Fernando M; Hellman T; Josephsson S
- Article: DISABILITY AND REHABILITATION. 2014;36(22):1869-1874Thornberg K; Josephsson S; Lindquist I
- Article: DISABILITY & SOCIETY. 2013;28(5):645-659Van de Velde D; Bracke P; Van Hove G; Josephsson S; Vanderstraeten G
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2013;20(1):73-86Mondaca M; Josephsson S
- Article: JOURNAL OF OCCUPATIONAL SCIENCE. 2013;20(2):108-119Johansson K; Rudman D; Mondaca M; Park M; Luborsky M; Josephsson S; Asaba E
- Article: JOURNAL OF AGING STUDIES. 2012;26(4):410-418Nyman A; Josephsson S; Isaksson G
- Journal article: EUROPEAN GERIATRIC MEDICINE. 2012;3:s12-s13Mild cognitive impairment and early stage dementia: Assessment and treatment of everyday functioningDe Vriendt P; Gorus E; Mets T; Petrovic M; Nygard L; Kottorp A; Rosenberg L; Malinowsky C; Öhman A; Josephsson S; Graff M; Vernooij-Dassen M; Olde-Rikkert M
- Journal article: EUROPEAN JOURNAL OF PHYSIOTHERAPY. 2012;14(2):71-77Thornberg K; Lindquist I; Josephsson S
- Article: OCCUPATIONAL THERAPY INTERNATIONAL. 2012;19(2):98-107Bontje P; Asaba E; Tamura Y; Josephsson S
- Article: DISABILITY AND REHABILITATION. 2012;34(6):491-502Van de Velde D; Bracke P; Van Hove G; Josephsson S; Devisch I; Vanderstraeten G
- Journal article: SCANDINAVIAN JOURNAL OF DISABILITY RESEARCH. 2011;13(1):53-70Stories stirring the quest of the good: narratives of women living with chronic rheumatic conditionsAlsaker S; Josephsson S
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2011;18(1):36-48Heigl F; Kinebanian A; Josephsson S
- Article: INTERNATIONAL JOURNAL OF REHABILITATION RESEARCH. 2010;33(4):346-355Van de Velde D; Bracke P; Van Hove G; Josephsson S; Vanderstraeten G
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2010;17(4):224-230Sakiyama M; Josephsson S; Asaba E
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2010;17(3):168-176Horghagen S; Josephsson S
- Article: SOCIOLOGY OF HEALTH & ILLNESS. 2010;32(4):563-582Johansson K; Lilja M; Park M; Josephsson S
- Article: OTJR-OCCUPATIONAL THERAPY JOURNAL OF RESEARCH. 2010;30(2):58-67Alsaker S; Josephsson S
- Article: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING. 2009;4(4):267-279Yilmaz M; Josephsson S; Danermark B; Ivarsson A-B
- Journal article: PALLIATIVE & SUPPORTIVE CARE. 2009;7(4):469-479la Cour K; Johannessen H; Josephsson S
- Journal article: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING. 2009;4(4)Yilmaz M; Josephsson S; Danermark B; Ivarsson A-B
- Article: NEUROPSYCHOLOGICAL REHABILITATION. 2009;19(5):696-715Neely AS; Vikstrom S; Josephsson S
- Journal article: OTJR-OCCUPATIONAL THERAPY JOURNAL OF RESEARCH. 2009Alsaker S; Josephsson S
- Article: QUALITATIVE HEALTH RESEARCH. 2009;19(8):1154-1161Alsaker S; Bongaardt R; Josephsson S
- Article: AGEING & SOCIETY. 2009;29:49-70Johansson K; Josephsson S; Lilja M
- Journal article: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING. 2009;:1-13Yilmaz M; Josephsson S; Danermark B; Ivarsson A-B
- Article: CANADIAN JOURNAL OF OCCUPATIONAL THERAPY-REVUE CANADIENNE D ERGOTHERAPIE. 2008;75(5):262-271Vik K; Nygård L; Borell L; Josephsson S
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2008;15(4):236-246Isaksson G; Josephsson S; Lexell J; Skar L
- Journal article: JOURNAL OF OCCUPATIONAL SCIENCE. 2008;15(3):173-180Tonneijck HIM; Kinebanian A; Josephsson S
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2008;15(3):162-172Yilmaz M; Josephsson S; Danermark B; Ivarsson A-B
- Journal article: DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE. 2008;7(2):251-270Vikström S; Josephsson S; Stigsdotter-Neely A; Nygård L
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2008;15(1):43-51Ohman A; Josephsson S; Nygard L
- Article: DISABILITY AND REHABILITATION. 2007;29(22):1679-1688Isaksson G; Josephsson S; Lexell J; Skaer L
- Article: PALLIATIVE & SUPPORTIVE CARE. 2007;5(3):241-250la Cour K; Josephsson S; Tishelman C; Nygård L
- Article: JOURNAL OF HAND THERAPY. 2007;20(3):262-273Skold A; Josephsson S; Fitinghoff H; Eliasson A-C
- Journal article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2007;14(2):96-107Holthe T; Thorsen K; Josephsson S
- Journal article: TECHNOLOGY AND DISABILITY. 2007;19(2-3):61-71Alwin J; Krevers B; Johansson U; Josephsson S; Haraldson U; Boström C; Rosshagen A; Persson J
- Journal article: OCCUPATIONAL THERAPY INTERNATIONAL. 2007;14(1):42-56Horghagen S; Josephsson S; Alsaker S
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2006;13(3):160-169Heuchemer B; Josephsson S
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2006;13(2):86-93Josephsson S; Asaba E; Jonsson H; Alsaker S
- Journal article: OCCUPATIONAL THERAPY INTERNATIONAL. 2006;13(3):142-159Le Granse M; Kinébanian A; Josephsson S
- Article: OTJR-OCCUPATIONAL THERAPY JOURNAL OF RESEARCH. 2005;25(4):149-159Vikström S; Borell L; Stigsdotter-Neely A; Josephsson S
- Article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2005;12(3):98-109la Cour K; Josephsson S; Luborsky M
- Article: OTJR-OCCUPATIONAL THERAPY JOURNAL OF RESEARCH. 2004;24(4):134-143Gahnström-Strandqvist K; Josephsson S; Tham K
- Article: AMERICAN JOURNAL OF OCCUPATIONAL THERAPY. 2004;58(4):416-425Sköld A; Josephsson S; Eliasson AC
- Journal article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2003;10(4):167-176Alsaker S; Josephsson S
- Journal article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2003;10(2):61-71Hvalsøe B; Josephsson S
- Journal article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2002;9(2):63-70Piškur B; Kinebanian A; Josephsson S
- Article: AMERICAN JOURNAL OF OCCUPATIONAL THERAPY. 2001;55(4):424-432Jonsson H; Josephsson S; Kielhofner G
- Journal article: INTERNATIONAL JOURNAL OF THERAPY AND REHABILITATION. 2000;7(9):374-376Runge U; Fitinghoff H; Josephsson S; Kinébanian A; Sadlo G; Winding K
- Article: AMERICAN JOURNAL OF OCCUPATIONAL THERAPY. 2000;54(5):463-470Jonsson H; Josephsson S; Kielhofner G
- Journal article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2000;7(2):61-66Staffan Josephsson LB
- Journal article: SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY. 2000;7(1):15-25Gahnström-Strandqvist KTK; Josephsson LBS
- Article: INTERNATIONAL PSYCHOGERIATRICS. 1996;8 Suppl 1:141-144Josephsson S
- Journal article: OCCUPATIONAL THERAPY INTERNATIONAL. 1995;2(1):22-35Gahnström‐Strandqvist K; Andersson L; Josephsson S
- Article: OTJR-OCCUPATIONAL THERAPY JOURNAL OF RESEARCH. 1995;15(1):36-49JOSEPHSSON S; BACKMAN L; BORELL L; NYGARD L; BERNSPANG B
- Journal article: INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY. 1993;8(5):395-400JOSEPHSSON S; BACKMAN L; BORELL L; BERNSPANG B; NYGARD L; RONNBERG L
- Journal article: PSYCHOLOGY AND AGING. 1991;6(3):489-492BACKMAN L; JOSEPHSSON S; HERLITZ A; STIGSDOTTER A; VIITANEN M
- Journal article: PSYCHOLOGY AND AGING. 1991;6(3):489-492Bäckman L; Josephsson S; Herlitz A; Stigsdotter A; et al
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All other publications
- Book chapter: PARTICIPATION IN HEALTH AND WELFARE SERVICES. 2017;p. 184-195Alsaker S; Josephsson S; Dickie V
- Book chapter: PARTICIPATION IN HEALTH AND WELFARE SERVICES. 2017;p. 33-40Lilja M; Josephsson S
- Book chapter: PARTICIPATION IN HEALTH AND WELFARE SERVICES. 2017;p. 226-229Josephsson S; Eide AH; Vik K
- Book chapter: PARTICIPATION IN HEALTH AND WELFARE SERVICES. 2017;p. 1-19Eide AH; Josephsson S; Vik K; Ness NE
- Book chapter: TRANSACTIONAL PERSPECTIVES ON OCCUPATION. 2013;p. 65-77Alsaker S; Josephsson S; Dickie VA
- Published conference paper: OTJR-OCCUPATIONAL THERAPY JOURNAL OF RESEARCH. 2009;29(4):154-162la Cour K; Nordell K; Josephsson S
- Conference publication: PSYCHO-ONCOLOGY. 2004;13(8):S6-S7la Cour K; Josephsson S; Luborsky M
- Published conference paper: AMERICAN JOURNAL OF OCCUPATIONAL THERAPY. 2004;58(2):140-149Bontje P; Kinébanian A; Josephsson S; Tamura Y
- Conference publication: ANNALS OF THE RHEUMATIC DISEASES. 2003;62:556Formsma SA; Kinebanian A; Josephsson S
- Conference publication: INTERNATIONAL JOURNAL OF PSYCHOLOGY. 1992;27(3-4):119-120JOSEPHSSON S; BACKMAN L; BORELL L
Grants
- Swiss National Science Foundation1 February 2024 - 31 January 2028Background and Rationale. Persons with disabilities face inequalities in their everyday life due to the inability to participate in community activities and access places of importance. Many of these inequalities are based on environmental restrictions. Mobility is an important prerequisite of community participation and health of persons with and without disabilities However, there are no studies that examine the community participation of persons with disabilities in relation to mobility and health, their satisfaction with community participation, and how this compares to the situation of persons without disabilities. Furthermore, mobility services are often not available and/or accessible for all and are a barrier to community participation. The political goals to adapt public transport services, structures, and vehicles until the end of the year 2023, to provide access for all persons will not be reached, in Switzerland. Thus, there is a societal need and interest to develop policy recommendations to increase the elimination of discrimination of persons with disabilities.The overall objective of this project is to provide evidence and recommendations about mobility, community participation, and health of persons with and without disabilities, in Switzerland. Specifically, we aim to: a) identify if persons with disabilities have a lower frequency of visiting important places and a lower variety of transportation modes used than persons without disabilitiesb) identify if persons with disabilities have a lower degree of self-rated community participation, of self-rated satisfaction with community participation, and self-rated quality of life than persons without disabilitiesc) examine if self-rated degree of and satisfaction with community participation of persons with and without disabilities is associated with frequencies of visiting important places and modes of transportationd) explore and describe the meaning community participation and visiting important places has for persons with disabilitiese) explain affordances/facilitators and barriers that hinder or support visiting important places for community participationf) give a voice to persons with disabilities regarding their transportation/mobility needsg) inform the development and validation of policy recommendations and tailor them to the Swiss federal context to increase persons with disabilities community participation in relation to their needs.Methods. We use a mixed method-design in this project, implementing qualitative and quantitative studies. Participants for the studies will be persons 1) 18 years of age and above, 2) with disabilities and/or chronic conditions3) who need, want and/or are expected to participate in the community by being mobile and using transportation, and 4) who agree to participate in the study. The study will take place in the German, French, and Italian speaking parts of Switzerland. We will collect the data using qualitative and quantitative methods, such as narrative interviews, photo voice, and nationwide surveys using the Participation in Activities Outside Home (ACT-OUT) questionnaire, the European Quality of Life and Health measure (EuroQoL-5D), and other questionnaires focusing on mobility of persons with disabilities. Data analysis is implemented according to the various qualitative and quantitative study designs and depending on the type and distribution of data.Expected Results and Impact. We expect multiple impacts from the project, such as more knowledge on the needs of persons with disabilities regarding mobility, community participation, and health. In addition, the identified barriers and facilitators will provide a better insight into the modifications that need to be implemented in the environment. Lastly, the policy recommendations will be the basis to reduce environmental barriers and to increase accessibility for all.
- Swedish Research Council for Health Working Life and Welfare1 January 2024 - 31 December 2026Research problem and specific questionsIntensifying the need for practical knowledge about how a person-centered approach can be integrated and deepened is the rise of standardization s in health and social care for older persons. Research, theory, and national guidelines identify unrealized potential and importance of "narratively organized" everyday life as central to enacting human values such as dignity and participation. The overall purpose is to contribute in-depth knowledge on how narrativity in everyday life and care can be integrated into working methods and organizational preparedness for the participation and dignity of older persons when they need care. Four research questions will address: the nature of, and co-creation of narratively engaged care among patients, staff, and familyits benefits and limitations: development of a model prototype from findings. Data and methodCollaborative and process-oriented strategies and the MRC/NIHR guidelines for the development of complex interventions, will use qualitative and process-oriented methods triangulating data from older people, staff and management.Relevance and utilizationThe project contributes to new knowledge about narrativity in relation to person-centeredness, meaning, dignity and how narrative practice can be integrated into ordinary care. Furthermore, the project contributes to increased understanding of how practice leadership and social learning can support such integration. The focus will be on developing working methods to bring this new knowledge into actual practice.Plan for project realizationWe intend to involve two groupspartly elderly people with newly diagnosed dementia who live in ordinary housing, partly elderly people with complex conditions and/or mental illness who live in nursing homes, for co-created knowledge about ideals around good meetings, how co-planning of interventions, as well as space to tell, to be heard and understood. We also intend to involve staff in elderly care and management representatives in the development of working methods for a more equal, participatory, and dignified ageing. At the same time, we plan to study conditions for implementation, so that the model is designed in a way that makes it possible to apply. Next, we will synthesize collected knowledge and design a prototype for `Narratively Engaged Care´´ that can be integrated within health and social care, care units or nursing homes.
- Swedish Research Council for Health Working Life and Welfare1 December 2019 - 30 November 2020
- Swedish Research Council for Health Working Life and Welfare1 January 2017 - 31 December 2022
- Guest researcher: Elder council: Development of participatory methods with multicultural older people in relation to home rehabilitationSwedish Research Council for Health Working Life and Welfare1 June 2013 - 31 May 2014
Employments
- Professor, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, 2011-
Degrees and Education
- Docent, Karolinska Institutet, 2007
