Swedish Twin Registry: For researchers

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Utilizing the Swedish Twin Registry

The Swedish Twin registry is an (inter)national resource. Data from the registry can become available to academic and industry-based researchers. Read more below what is required to initiate research with the Swedish Twin Registry.

Regardless of the type of research interest, all potential collaborations or data access agreements must first be reviewed by the steering committee of the STR.

Application procedure

Policy and conditions

The general conditions for collaboration with the Swedish Twin Registry can be found in our policy document.

Start the process by reading the policy document so that all conditions can be met. After this step, you may send an application to STR's steering committee.

Decisions are taken by STR's steering committee that meet about 4 times per year.

In order to process your request, a complete application must be at hand with the STR ​​no later than one week before a steering group meeting.The application cost should also be paid before the meeting. For information on when the next steering committee meeting will be held, please contact us:  tvillingregistret@meb.ki.se

Costs

Current price list

To be complete, an application shall contain the following:

  1. A filled out Application Form.
  2. A detailed and complete description of the project comprising 3-5 pages, including:
        a)  specific aims
        b)  general background (including relevant references to the literature)
        c)  data requested with inclusion and exclusion criteria
        d)  methods
        e)  description of research group
  3. CV of the PI (Principal Investigator)
  4. Ethical application and ethical approval (for projects not including new contacts). For projects in which contacts with study persons are to be made, it is recommended that STR steering committee reviews contact letters and informed consent formulations before these documents are sent for ethical review.

If your application is approved, see  guidelines for required data specifications

Studies within the Swedish Twin Registry

Below you can find some information about our studies grouped by cohorts.

The information comprises:

Questionnaire, a PDF format file (Swedish only, when applicable)
Area of study, variables, codes an Excel format file

All files are password protected.

Contact the Twin Registry to obtain the password by e-mail to tvillingregistret@meb.ki.se.

Questionnaires administered in the 60s and the 70s with variable description

Born 1886-1925 Questionnaire 1961

Qustionnaire Q61 ( Swedish only)

Area of study, variables, codes

Born 1886-1925 Questionnaire 1963

Questionnaire Q63 (Swedishq63_red.pdf only)

Area of study, variables, codes

Born 1886-1925 Questionnaire 1967

Questionnaire Q67 (Swedish only)

Area of study, variables, codes

Born 1886-1925 Questionnaire 1970

Questionnaire Q70 (Swedish only)

Area of study, variables, codes

Questionnaires administered in the 90s with variable description

Born 1886-1958 SALT - Screening Across the Lifespan Twin

Interview

Area of study, variables, codes

Born 1886-1958 TwinGene - Pair of twins from the SALT-study

Health questionnaire

Health check up

Area of study, varables, codes

Born 1826-1958 Birth - Birth weight and risk of adult disease in offspring: etiologic determants

Area of study, variables, codes

Born 1944-1958 SALTY - Screening Across the Lifespan Twin Young

SALTY GWAS (Pdf-file, 118 Kb)

Born 1973 Questionnaire

Questionnaire Q73 (Swedish only)

Area of study, variables, codes

Born 1959-1985 STAGE - Swedish Twin Studies of adults: Genes och Environment

Area of study, variables, codes

Born 1959-1985 STAGE ONE - Swedish Twin Studies of adults: Genes och Environment

Area of study, variables, codes

Born 1992-1999 CATSS - The Child and Adolescent Twin Study in Sweden 

Telephone interview (2007-) (Swedish Only)

Telephone interview (2007-) (Swedish Only)

Area of study, variables, codes

CATSS GWAS (Pdf-file, 118 Kb)

Presentation of the Swedish Twin Registry (pdf, ppt)

Presentation of STR (pdf)

Presentation of STR (ppt)

Twin research