Jeanette Winterling

Jeanette Winterling

Affiliated to Teaching/Tutoring
Visiting address: Alfred Nobels Allé 23, D2, Flemingsberg, 14183 Huddinge
Postal address: H1 Neurobiologi, vårdvetenskap och samhälle, H1 Omvårdnad Omv enhet 4, 171 77 Stockholm

About me

  • I work as a head of the Psychooncology unit for adult cancer patients and
    the survivorship unit for adults that had cancer as a child at the
    Comprehensive Cancer Centre (Theme Cancer) at the Karolinska University
    Hospital in Stockholm. As a researcher I am conected to Yvonne Wengströms
    research group [1] at Karolinska Institutet.
    Registred Nurse 1997
    Basic education in Psychoterapy 2000
    Magister in Caring Science 2002
    PhD in Caring Science 2007


  • My research has consistently focused on psychosocial aspects of patients and
    relatives with cancer.
    I finished my PhD in 2007 at Uppsala University with the thesis "Hope and
    Despair - Philosophy of life, expectations and optimism in cancer patient and
    their spouses”. The thesis involved life situation, philosophy of life,
    optimism and bereavement in patients with gastrointestinal cancer in a
    palliative phase, and their spouses, as well as on cancer patients'
    expectations on the time coming after they finished a curative cancer
    I did a postdoc in the /Fex-Can r/esearch project which included to examine
    different aspects of children, teens and young adults' situation during and
    after cancer, such as life situation, school situation, sexuality and
    I have mainly two reserach areas at the moment. One focusing on the situation
    of patients who undergo allogeneic stem cell transplantation, their
    caregivers and also donors of stem cells.
    * /The/ /Work after allo /(WaA) /research project/. It is about
    prospectively study sick-leave and return to work up to five years after
    the treatment. In this project is Linda Eriksson a doctoral student [1].
    * /The Donor research project/. It is about investigationd the psychological
    well being of donors in allogenic stem cell transplantation.
    * /The Hold on research project. /It is about developing and feasibility
    testing an individual intervention for caregivers to patients going
    through an allogenic stem cell transplantation.
    * T/he aCent research project/. It is about developing, implementing and
    evaluation a model for person-centred care.
    The other reserach area are the situation of teens and young adults (AYA)
    aged 16-30 years. I am a project leader of an innovation project called
    /MyCode/. It consists of five subprojects with the aim to provide AYAs close
    to diagnosis and under their cancer treatment with support and tools to
    better cope with their cancer journey. Two of the subprojects are research
    projects I am responsible for:
    * /The PRISM research project/. It is about translating and adapting the
    PRISM intervention to a Swedish context and also make in work as in a
    digital version. The PRISM is currently tested in a pilot study at
    Karolinska University Hospital. This is done in cooperation with the PRISM
    developers at the Childerens Hospital in Seattle. You can learn more about
    the project in this video presentation [2]
    * /The PROM for AYA project/. It is about developing a questionnaire adapted
    for teens and young adults that get cancer and through workshops with end
    users and health care professionals explore how this questionnaire can be
    used in clinical care. This is done in cooperatin with the EORTC
    organisation [3].


  • I am course coordinator for the course Rehabilitation within cancer care, 7.5
    hp and also for the course Caring Science within Hematology care 7, 5hp. I am
    also involved in the specialist education for nurses within Oncology.


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