Janne Agerholm

Janne Agerholm

Assistant Senior Lecturer
Telephone: +46852485841
Visiting address: Tomtebodavägen 18 A, 17177 Stockholm
Postal address: H1 Neurobiologi, vårdvetenskap och samhälle, H1 ARC Socialgerontologi Lennartsson, 171 77 Stockholm

About me

  • I am employed as an Assistant senior lecturer at the Aging Research Center (ARC) at Karolinska Institutet. I am part of the research group “Social Gerontology” at the Aging Research Center and the research group “Equity and Health Policy” at the department of Global Public Health.

    My research is within the area of health services research and social gerontology, often with an equity perspective. 

Research

  • Research

    I am the team leader of the research team Health Literacy and Integrated Care at the Aging Research Center (ARC). My research focuses on how health and social care systems can be organised to meet the needs of an ageing population. I am particularly interested in the coordination and integration of health and social care services, equity in health and healthcare, and health literacy from both individual and organisational perspectives.


    I am currently the principal investigator (PI) of a Forte-funded research project on Coordinated Individual Plans (CIPs) for older adults with complex health and social care needs following hospital discharge. The project investigates how CIPs are implemented and used in practice, which factors facilitate or hinder coordination between regional healthcare and municipal care services, and whether access to CIPs is equitable. We also examine associations between receiving a CIP and healthcare outcomes, including hospital readmissions, emergency department visits, and health and social care costs. The project combines qualitative research methods with analyses of large-scale linked register data.


    I am also involved in an intervention study in Norrtälje focusing on integrated care for older adults with complex care needs. Norrtälje's integrated health and social care system provides a valuable setting for investigating how organisational structures and care practices can improve coordination, continuity, and person-centred care.


    In addition, I am Work Package Leader for WP3 within TraCeDem, focusing on person-centred and integrated health and social care for people living with dementia. Our research aims to improve understanding of how health and social care services can be organised and coordinated to better meet the needs of people with dementia and their families, with particular attention to continuity of care, participation, and equity in access to services.

    Another central area of my research is health literacy among older adults. In a mixed-methods project, we investigate health literacy levels in the older Swedish population, as well as older people's experiences of communicating with healthcare professionals, accessing and understanding health information, and participating in decisions about their health and care.


    My previous research includes register-based studies evaluating integrated care and healthcare utilisation among older adults, comparative studies of healthcare systems and care transitions in Nordic countries, and research on how the organisation and quality of health and social care for older people with complex needs can be improved. I have also been involved in studies examining how the organisation of health and social care influenced the experiences and outcomes of older adults during the COVID-19 pandemic.


    A recurring theme throughout my research is how the organisation of health and social care affects different groups of older people, and how care systems can be designed to provide more coordinated, equitable, and person-centred services.

Teaching

  • I have been involved in several different courses both as a lecturer, course designer, and course leader in both Sweden and Denmark. I have primarily been teaching students in Public Health Science, Nursing and Medicine. Currently I am involved as a course director in a doctoral course (Public Health Research- concepts and theories) and a master course (Introduction to Public Health Sciences) at the Department of Public Health.

Articles

All other publications

Grants

  • Coordinated Individual Care Plan as a tool in the transition to care closer to home: A multi-method approach to analysing experiences, effects, and equity
    Swedish Research Council for Health Working Life and Welfare
    1 January 2026 - 31 December 2030
    Research problem and specific questions Sweden’s population is ageing, and the prevalence of multimorbidity and functional limitations is increasing. This puts strong demands on effective coordination between health and social care. The Coordinated Individual Plan (CIP) is intended as a tool to ensure better coordination between health and social care providers. However, previous evaluations show uneven implementation and unclear effects of CIP. This project aims to identify factors that facilitate or hinder CIP implementation, and analyse its impact on healthcare utilisation and costs. The study will also examine differences in access to CIPs based on sociodemographic factors, with the goal of contributing to more equitable care. Finally, concrete strategies will be developed to translate the research findings into actionable recommendations for care practice. Data and methods The project applies a multi-method design. Qualitative interviews with older adults and their relatives will explore experiences of receiving a CIP after discharge. Focus groups with both regional and municipal professionals will identify challenges and best practices for achieving good coordination. Register-based analyses will investigate effects on healthcare utilisation and costs, as well as differences between population groups. In addition, co-creation workshops with staff, decision-makers, and user organisations will be used to develop practical strategies for strengthening the use of CIPs. Societal relevance and utilisation By clarifying barriers and facilitators for the implementation of CIP and analysing its outcomes, the project provides knowledge that can be used to develop more person-centred, equitable, and efficient care. Co-creation workshops with stakeholders will ensure that results are translated into guidelines, training, and new working methods, making them directly applicable in the ongoing transformation towards God och nära vård (care closer to home). Plan for project realisation The project will run for four years and be conducted by an interdisciplinary team with expertise in health services research, social gerontology, epidemiology, and health economics. An advisory board of practitioners and user representatives will be closely involved. Results will be disseminated through scientific and popular science publications, policy briefs, and seminars, with the overall aim of strengthening coordination and improving care for older adults with complex needs.
  • Swedish Research Council for Health Working Life and Welfare
    1 January 2023 - 31 December 2026
    Research problems: The Swedish healthcare system has become very specialised and is often experienced as fragmented and lacking coordination between caregivers. Advanced age is associated with multi-morbidity, which usually requires care from several different caregivers. This makes older people vulnerable to fragmentated care and lack of care coordination. Health literacy (HL) is an essential component of an individual’s ability to gain access to, understand and use information to improve and maintain good health and is an important prerequisite for managing health and care needs. Therefore, knowledge on older people’s HL is vital to efficiently and equitably meet the care needs of the rapidly aging population.Specific questions: The project aim is to gain knowledge on HL in the older population. In this project we will assess to what degree the older population in Sweden is health literate, identify groups that might face challenges due to inadequate HL and explore what older people experience as prerequisites for understanding health information and managing their health and care needs as well as communicate with caregivers.Data and Methods: This project combines both qualitative and quantitative data. The Swedish Panel Study of Living Conditions of the Oldest Old (SWEOLD), linked with register data on healthcare utilisation will allow for measuring the level of health literacy in a nationally representative sample of the Swedish population aged 77 years and over. Semi-structured interviews with older people will be performed to deepen the understanding of contextual barriers and facilitators, and individual internal and external resources to make informed decisions about their health and care needs. Plan for project realisation: The collection of SWEOLD data is in progress and preliminary analyses on a sub-sample have been performed. Information about HL, life situation, health, care utilisation, physical and cognitive ability and social support from relatives are being collected. The project group has extensive knowledge about older adults, health literacy, the health and social care system as well as relevant research methodology, both qualitative and quantitative.Relevance: Knowledge on HL among the older population can be used to tailor communication and directing support to vulnerable groups in order to achieve an efficient and equitable health and social care system, as well as supporting older people in health crisis, like the COVID-19 pandemic.
  • Health literacy among older adults: Exploring older people's prerequisites for understanding health information and making informed health choices.
    Swedish Research Council (FORTE)
    1 January 2023 - 31 December 2025
  • In the wake of Covid-19: How can the structure and quality of health and social care for older people with complex care needs in Sweden be improved?
    Swedish Research Council (FORTE)
    1 November 2021 - 31 October 2025
  • Integrated care for older people with complex health problems. How does it affect health, health care utilization and health equity?
    Swedish Research Council (FORTE)
    1 January 2018 - 31 December 2019

Employments

  • Assistant Senior Lecturer, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, 2024-
  • Assistant Senior Lecturer, Department of Global Public Health, Karolinska Institutet, 2020-2027
  • Analyst, Centrum för epidemiologi och samhällsmedicin, Region Stockholm, 2012-2020

Degrees and Education

  • Degree Of Doctor Of Philosophy, Department of Global Public Health, Karolinska Institutet, 2017

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