The team

The team involved in the research programme consisted of researchers, patients, and professionals in health and social care.

Patient innovators

  • Andreas Hager, relative, cystic fibrosis, founder Genia
  • Siri Klintberg, secretary general, Juvenile Idiopathic Arthritie (JIA) 
  • Sara Riggare, (im-)patient, Parkinson's disease, research assistant Uppsala University
  • Inka Helispää Rodriguez, user influence coordinator, mental illness, Norra Stockholms psykiatri
  • Wille Burnett, anställd på Genia Upstream Team

Responsible researchers

  • Henna Hasson, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • Carolina Wannheden, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet

Participating researchers

  • Ami Bylund, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • Mats Brommels, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • Marie Dahlberg, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • Petra Dannapfel, Division of Prevention, Rehabilitation and Community Medicine, Department of Health, Medicine and Caring Sciences, Linköping University
  • Maria Hägglund, Department of Women's and Children's Health, Uppsala University
  • Hanna Jansson, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • Madelen Lek, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • Pamela Mazzocato, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • John Övretveit, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • Carl Savage, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • Terese Stenfors, Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • Ulrica von Thiele Schwarz, Medical Management Centre at the Department of Learning, Informatics, Management and Ethics, Karolinska Institutet
  • Lina Al- adili, Medical Management Centre, Institutionen för lärande, informatik, management och etik, Karolinska Institutet

Alumni

  • My Sjunnestrand, Uppsala Universitet
  • Therese Scott Duncan, Uppsala Universitet
  • Linnea Luckhaus, Uppsala Universitet
  • Moa Malmqvist, Karolinska Institutet
  • Åsa Steinsaphir, IVO
  • Cajsa Helin Hollstrand, Unga Reumatiker
  • Maria Reinius, Folkhälsomyndigheten
  • Madeleine Beermann, SKR
  • Kim Nilke Nordlund, Reform Society
Content reviewer:
03-08-2026