Susanne Pettersson

Susanne Pettersson

Affiliated to Research
Visiting address: D2:01, Karolinska Universitetssjukhuset, 17176 Stockholm
Postal address: K2 Medicin, Solna, K2 Reuma Antovic A, 171 77 Stockholm
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About me

  • I am a RN, and have been working in rheumatology since 1991.

    In 2004 I became involved in a clinical research project following the cohort of patients with systemic lupus erythematosus (SLE) at the Karolinska University Hospital.

    In 2012 I defended my thesis “Fatigue, perceived, described and assessed in systemic lupus erythematosus” at KI. http://hdl.handle.net/10616/41121 .

    2013 Postdoc at Uppsala University in the research group of Professor Åsenlöf (Department of Neuroscience, Physiotherapy). https://katalog.uu.se/empinfo/?id=N96-6121 .

    2014 -2017 position as University nurse. This position was a three year project facilitating the combination of clinic, teaching and research, with affiliation to the research group of Professor Christina Opava. http://ki.se/nvs/fysisk-aktivitet-och-halsa-vid-reumatisk-sjukdom.
    During this period I was also involved in e-Health projects under 4D arthritis.

    2017 - 2022 Director of Nursing Development, Inflammation and Ageing Theme Karolinska University Hospital.

    From september 2022 I have a combined position focusing on development and reserch at the Medical Unit Gastroenterolgy-Dermatology-Rheumatology at the Karolinska University hospital and the Swedish Rheumatology Quality Register.

    In the end of 2023 I recived the title Docent in nursing

    My reserach affiliation is the research group of Aleksandra  Antovic.

    Additional information:
    Vårdsakkunnig sjuksköterska, RPO Reumatiska sjukdomar 2020-2025 sjukdomar https://vardgivarguiden.se/kunskapsstod/sakkunniga/vardsak/

Research

  • My main reseach focus is "Patients' perceptions of concequences of living with chronic conditions", with special interest on illness perceptions and educational needs. I am currently focusing on the patients groups: systemic lupus erythematosus (SLE), antineutrophilic cytoplasmatic antibody associated vasculitis (AAV), rheumatoid arthritis (RA) and pulmonary fibrosis.


    I am currently main-supervisor to one and co-supervisors to four PhD-students.

    Exemple of clinical implementation:
    The electronic implementation of the Quick Systemic Lupus Activity Questionnaire (Q-SLAQ): a simplified version of SLAQ for patient-reported disease activity, into the Swedish Rheumatology Quality Register https://srq.nu/en/welcome/ .

Articles

All other publications

Grants

  • Yrkesförkovrande stipendium
    Föreningen reumasjuksköterskor i Sverige
    20 September 2022
  • Vårdforskningspris
    Reumatikerförbundet
    1 June 2016

Employments

  • Affiliated to Research, Department of Medicine, Karolinska Institutet, 2024-2026

Degrees and Education

  • Docent, Karolinska Institutet, 2023
  • Degree Of Doctor Of Philosophy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, 2012
  • MSc in Medical Science, Including courses in Rheumatology care and nursing, Uppsala University, 2006
  • BSc in Nursing Education, University of Gothenburg, 1997
  • International Nursing, Red Cross University College of Nursing, 1994
  • Registered nurse (RN), Nursing, Bohusläns Nursing College, 1988

Supervision

  • Supervision to doctoral degree

    • Sara Brolin, Educational needs, quality of life, and health care support in persons with systemic rheumatic disease, 2023-
    • Jenny Wrackefeldt, Development and implication of a digital application for PROMs in patients with chronic kidney disease, 2023-
    • Marie-Louise Karlsson, The impact of lifestyle changes, and treatment adherence in Early Rheumatoid Arthritis, 2023-
    • Carlson Lisa, Impact of pulmonary fibrosis on daily life, 2021-

  • Supervision to licentiate degree

    • Annika Granath, Patients perspective in vasculitis, 2021-

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