Margareta af Sandeberg
E-mail: margareta.af.sandeberg@ki.se
Visiting address: Widerströmska huset, hiss 1, plan 8, Tomtebodavägen 18A, 17177 Stockholm
Postal address: K6 Kvinnors och barns hälsa, K6 Barnonkologi och Barnkirurgi Pergert, 171 77 Stockholm
About me
- I am a nurse specialist in children and adolescents. I have worked in
pediatric cancer care at Karolinska University Hospital, now Astrid
Lindgren's Children's Hospital, since 1977. My various functions in pediatric
cancer care have been divided into 10-year periods: nurse at the ward
outpatient nurse- consultant nurse
- and now education and research. Over the
years, I have been particularly interested in the social lives of children
during ongoing treatment for cancer and in 1977 I started the National
network of consultant nurses in Swedish pediatric cancer care and was until
2014 its leader.
My dissertation on childhood cancer, school and infections took place in
2011. Today, I combine care development work at the pediatric cancer unit
with the responsibility for the National education in paediatric oncology
nursing at KI and research in clinical ethics in Pernilla Pergert's Childhood
Cancer Healthcare Research Group at KI.
In collaboration with paediatric oncology nurses from the other Nordic
countries I started the society of Nordic paediatric oncology nurses (NOBOS)
in. One of the initiators and member of the board of the Nordic Society of
Pediatric Oncology Nurses (NOBOS)
Areas of interest / competence: pediatric oncology nursing / care science and
clinical ethics.
* University pedagogics for teachers and supervisors in work-based education
(7, 5 hp), KI, 2020.
* University diploma in Pediatric oncology care (30 hp), Karolinska
Institutet, 2015.
* Doctor of Philosophy (PhD), Dep. of Neurobiology, Care Science & - Society,
(NVS), KI, 2011.
* 2007 Degree of Master of Health for Children and Adolescents (MSc, 60hp),
Dep. of Women´s and Children´s Health (KBH) 2007.
* Degree of Bachelor with a Major in Nursing, (180hp) Sophiahemmet High
School , 2005.
* Degree of Bachelor of Science (BSc), Pediatric Nursing (60hp), Karolinska
Institutet, (KI).1981.
* Registered Nurse, (157, 5 hp) Sophiahemmet School for Nurses, Stockholm,
1977.
Research
- I am part of the Childhood cancer health care research group, where I conduct
research in clinical ethics with a focus on the ethical climate and moral
distress. Together with Pernilla Pergert, I have translated and culturally
adapted questionnaires about the ethical climate (HECS-S) and moral distress
(MDS-R) into Swedish, later translated and culturally adapted to the other
Nordic languages (Finnish, Danish, Icelandic and Norwegian), and used in a
Nordic study in childhood cancer care.
Teaching
- Over the years, I have taught pediatric oncology nursing and quantitative
methods at for example the specialist educations on children/adolescents and
oncology for nurses and is, since 2012 in charge of the national education in
"Pediatric oncology care for nurses" (30credits), carried out in
collaboration with the executive and professional education at KI and the
Childhood Cancer Foundation.
Articles
- Article: PSYCHO-ONCOLOGY. 2023;32(7):1067-1075
- Article: JOURNAL OF PEDIATRIC HEMATOLOGY/ONCOLOGY NURSING. 2023;40(3):178-187
- Article: NURSING OPEN. 2022;9(4):2108-2116
- Article: NURSING ETHICS. 2021;28(6):1061-1072
- Article: EUROPEAN JOURNAL OF ONCOLOGY NURSING. 2021;52:101950
- Article: BMC MEDICAL ETHICS. 2020;21(1):6
- Article: NURSING ETHICS. 2019;26(7-8):2351-2363
- Article: PSYCHO-ONCOLOGY. 2019;28(4):735-741
- Article: ACTA PAEDIATRICA, INTERNATIONAL JOURNAL OF PAEDIATRICS. 2019;108(2):361-366
- Article: BMC MEDICAL ETHICS. 2018;19(1):35
- Article: PEDIATRIC BLOOD AND CANCER. 2017;64(7):e26397
- Article: BMC MEDICAL ETHICS. 2017;18(1):14
- Article: NURSING ETHICS. 2016;23(8):877-888
- Article: NURSE EDUCATION TODAY. 2016;38:68-73
- Article: JOURNAL OF PEDIATRIC ONCOLOGY NURSING. 2015;32(4):201-208
- Article: JOURNAL OF PEDIATRIC ONCOLOGY NURSING. 2014;31(5):245-251
- Article: PEDIATRIC BLOOD AND CANCER. 2013;60(8):1307-1312
- Article: HEALTH AND QUALITY OF LIFE OUTCOMES. 2010;8:109
All other publications
- Thesis / dissertation: 2011
- Published conference paper: JOURNAL OF PEDIATRIC ONCOLOGY NURSING. 2008;25(5):265-274
Employments
- Lecturer, Department of Women's and Children's Health, Karolinska Institutet, 2019-2024
Degrees and Education
- Degree Of Doctor Of Philosophy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, 2011
- Degree Of Master, Karolinska Institutet, 2007