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About me

I currently work as a assistant professor at Karolinska Institutet, Learning, Informatics, Management  and Ethics, Medical Management Center affiliated to Hospice clinic, Ersta Hospital in Stockholm. My 18 years of clinical experience is primarily from intensive care and specialized palliative care

Education

1989 Registered Nurse, Hälsohögskolan Jägargatan 20, Stockholm

2005 Master of Science in Nursing, Ersta Sköndal University College, Stockholm

2011 PhD, Karolinska Institutet, Stockholm

Research description

My field of research is focused on experiences related to the end of life from the perspective of patients, family and professional caregivers. Ongoing projects intend to enhance knowledge in the areas of:

Co-design at the end of life. In this action research project we will both conduct basic research as well as use innovative participatory approaches to capitalize on experiential knowledge from the perspective of patients, family and staff to improve the environment and quality of care at the end of life.

A support group program delivered to family caregivers caring for a dying person at home. The overall aim of this project is to investigate the effects of a psycho-educational intervention for family caregivers delivered as a randomised control trial in specialized palliative home care.

Palliative care for patients living with congestive heart failure

Links

Publications

Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care
Ewertzon M, Alvariza A, Winnberg E, Leksell J, Andershed B, Goliath I, et al
Journal of advanced nursing 2018;():-

Not just things: the roles of objects at the end of life
Cleeve H, Tishelman C, Macdonald A, Lindqvist O, Goliath I
Sociology of health & illness 2018;40(4):735-749

Symptom Relief and Palliative Care during the Last Week of Life among Patients with Heart Failure: A National Register Study
Årestedt K, Alvariza A, Boman K, Öhlén J, Goliath I, Håkanson C, et al
Journal of palliative medicine 2018;21(3):361-367

Characteristics of the Family Caregivers Who Did Not Benefit From a Successful Psychoeducational Group Intervention During Palliative Cancer Care: A Prospective Correlational Study
Holm M, Årestedt K, Carlander I, Wengström Y, Öhlen J, Alvariza A
Cancer nursing 2017;40(1):76-83

Leading an intervention for family caregivers-a part of nursing in palliative care
Holm M, Goliath I, Södlind H, Alvariza A
International journal of palliative nursing 2017;23(4):166-172

Patients' experiences of care and support at home after a family member's participation in an intervention during palliative care
Norinder M, Goliath I, Alvariza A
Palliative & supportive care 2017;15(3):305-312

Recruiting participants to a randomized controlled trial testing an intervention in palliative cancer care - The perspectives of health care professionals
Holm M, Alvariza A, Furst Cj, Wengstrom Y, Arestedt K, Ohlen J, et al
EUROPEAN JOURNAL OF ONCOLOGY NURSING 2017;:6-11

Beyond the visual and verbal: Using participant-produced photographs in research on the surroundings for care at the end-of-life
Tishelman C, Lindqvist O, Hajdarevic S, Rasmussen Bh, Goliath I
Social science & medicine (1982) 2016;168():120-129

[Important to strengthen family members opportunities to prepare themselves]
Alvariza A, Holm M, Bylund-grenklo T, Goliath I, Kreicbergs U
Lakartidningen 2016;113():-

Palliative Care Research--A Systematic Review of foci, designs and methods of research conducted in Sweden between 2007 and 2012
Henoch I, Carlander I, Holm M, James I, Sarenmalm Ek, Hagelin Cl, et al
Scandinavian journal of caring sciences 2016;30(1):5-25

Short-term and long-term effects of a psycho-educational group intervention for family caregivers in palliative home care - results from a randomized control trial
Holm M, Årestedt K, Carlander I, Fürst Cj, Wengström Y, Öhlen J, et al
Psycho-oncology 2016;25(7):795-802

Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: a qualitative study from the perspectives of health professionals and family caregivers
Holm M, Carlander I, Fürst Cj, Wengström Y, Årestedt K, Öhlen J, et al
BMC palliative care 2015;14():16-

Factors associated with feelings of reward during ongoing family palliative caregiving
Henriksson A, Carlander I, Årestedt K
Palliative & supportive care 2015;13(3):505-12

Feelings of rewards among family caregivers during ongoing palliative care
Henriksson A, Carlander I, Årestedt K
Palliative & supportive care 2015;13(6):1509-17

Meanings of eating deficiencies for people admitted to palliative home care
Wallin V, Carlander I, Sandman Po, Håkanson C
Palliative & supportive care 2015;13(5):1231-9

PA33 Reflections from the intersection of palliative care and design
Kjellgren H, Kleijberg M, Carlander I, Lindqvist O, Tishelman C
BMJ supportive & palliative care 2015;5 Suppl 1():A29-

Preparing for family caregiving in specialized palliative home care: an ongoing process
Holm M, Henriksson A, Carlander I, Wengström Y, Öhlen J
Palliative & supportive care 2015;13(3):767-75

Use of the Preparedness for Caregiving Scale in Palliative Care: A Rasch Evaluation Study
Henriksson A, Hudson P, Öhlen J, Thomas K, Holm M, Carlander I, et al
Journal of pain and symptom management 2015;50(4):533-41

Maintaining ordinariness around food: partners' experiences of everyday life with a dying person
Wallin V, Carlander I, Sandman Po, Ternestedt Bm, Håkanson C
Journal of clinical nursing 2014;23(19-20):2748-56

Space and Place for End-of-Life Care: A Photo-Elicitation Study
Tishelman C, Lindqvist O, Hajdarvic S, Rasmussen Bh, Carlander I
JOURNAL OF PALLIATIVE CARE 2014;30(3):220-220

Being me and being us in a family living close to death at home
Carlander I, Ternestedt Bm, Sahlberg-blom E, Hellström I, Sandberg J
Qualitative health research 2011;21(5):683-95

Four aspects of self-image close to death at home
Carlander I, Ternestedt Bm, Sahlberg-blom E, Hellström I, Sandberg J
International journal of qualitative studies on health and well-being 2011;6(2):-

The modified self: family caregivers' experiences of caring for a dying family member at home
Carlander I, Sahlberg-blom E, Hellström I, Ternestedt Bm
Journal of clinical nursing 2011;20(7-8):1097-105

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