Carina Lundh Hagelin

Publications
CV
Public outreach and news

Articles

Article: BMC PALLIATIVE CARE. 2025;24(1):73
The Support Needs Approach for Patients (SNAP): content validity and response processes from the perspective of patients and nurses in Swedish specialised palliative home care
Hagelin CL; Holm M; Axelsson L; Rosen M; Norell T; Godoy ZS; Farquhar M; Ewing G; Gardener AC; Arestedt K; Alvariza A
Article: CLINICAL NURSING RESEARCH. 2025;34(2):86-94
Patients' Experiences of Person-Centered Care in the Context of Allogenic Stem Cell Transplantation
O'Sullivan A; Hagelin CL; Holmberg K; Bergkvist K; Bala S-V; Wengstrom Y; Kisch AM; Winterling J
Article: BMC PALLIATIVE CARE. 2025;24(1):47
Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study
Lagerin A; Melin-Johansson C; Holmberg B; Godskesen T; Hjorth E; Junehag L; Hagelin CL; Ozanne A; Sundelof J; Udo C
Article: HEALTH SERVICES INSIGHTS. 2025;18:11786329241310735
Healthcare Professionals' Ratings and Views of Person-Centred Care in the Context of Allogeneic Hematopoietic Stem Cell Transplantation
O'Sullivan A; Winterling J; Kisch AM; Bergkvist K; Edvardsson D; Wengstrom Y; Hagelin CL
Article: BMJ SUPPORTIVE & PALLIATIVE CARE. 2024;15(1):141-148
Patient experiences of randomised placebo-controlled trial participation during end-of-life palliative cancer care
Klasson C; Helde Frankling M; Lundh Hagelin C; Bjorkhem-Bergman L; Alvariza A
Article: BMC PALLIATIVE CARE. 2024;23(1):283
Online education in palliative care - A national exploratory multimethod study
Hagelin CL; Melin-Johansson C; Osterlind J; Bisholt B; Pusa S
Article: JOURNAL OF CANCER SURVIVORSHIP. 2024;:1-9
Dismantle and rebuild: the importance of preparedness and self-efficacy before, during and after allogeneic haematopoietic cell transplantation
Holmberg K; Bergkvist K; Wengstrom Y; Hagelin CL
Article: NURSE EDUCATION IN PRACTICE. 2023;73:103832
Postgraduate nursing students' experiences with simulation-based learning in palliative care education: A qualitative study
Skedsmo K; Bingen HM; Hofso K; Steindal SA; Hagelin CL; Hilderson D; Nes AAG; Smis D; Stenseth HV; Olaussen C
Article: BMC NURSING. 2023;22(1):338
Teaching to prepare undergraduate nursing students for palliative care: nurse educators' perspectives
Schenell R; Osterlind J; Browall M; Melin-Johansson C; Hagelin CL; Hjorth E
Article: EUROPEAN JOURNAL OF ONCOLOGY NURSING. 2023;63:102300
Nursing as a balancing act in allogeneic hematopoietic cell transplantation -nurses? experiences through participation in workshops
Holmberg K; Bergkvist K; Adalsteinsdottir S; Wengstrom Y; Hagelin CL
Article: CANCER NURSING. 2023;46(1):77-85
Symptom Burden and Recovery in the First Year After Allogeneic Hematopoietic Stem Cell Transplantation
Eriksson LV; Holmberg K; Lundh Hagelin C; Wengstrom Y; Bergkvist K; Winterling J
Article: HEALTH & SOCIAL CARE IN THE COMMUNITY. 2022;30(5):e2648-e2656
Home care assistants' attitudes and perceptions of caring for people at the end of life in their homes in Sweden
Craftman AG; Pakpour AH; Calderon H; Meling A; Browall M; Hagelin CL
Article: SCANDINAVIAN JOURNAL OF CARING SCIENCES. 2022;36(2):545-557
Teaching about death and dying-A national mixed-methods survey of palliative care education provision in Swedish undergraduate nursing programmes
Hagelin CL; Melin-Johansson C; Ek K; Henoch I; Osterlind J; Browall M
Article: EUROPEAN JOURNAL OF ONCOLOGY NURSING. 2021;55:102044
Living in limbo: Meanings of living with fecal incontinence as narrated by women after treatment for pelvic cancer
Krook C; Hagelin CL; Dunberger G
Article: CANCER NURSING. 2021;44(4):305-313
Development and Psychometric Evaluation of a New Short Version of the Swedish Frommelt Attitudes Toward Care of the Dying Scale.
Browall M; Pakpour AH; Melin-Johansson C; Lundh Hagelin C; Österlind J; Henoch I
Article: NURSE EDUCATION TODAY. 2021;98:104772
Registered nurses and undergraduate nursing students' attitudes to performing end-of-life care
Fristedt S; Grynne A; Melin-Johansson C; Henoch I; Hagelin CL; Browall M
Article: NURSING ETHICS. 2020;27(2):621-633
Caring for older people with dementia reliving past trauma
Craftman AG; Swall A; Bakman K; Grundberg A; Hagelin CL
Article: JOURNAL OF HOSPICE & PALLIATIVE NURSING. 2020;22(1):33-39
Using Cards to Facilitate Conversations About Wishes and Priorities of Patients in Palliative Care
Moller UO; Pranter C; Hagelin CL; Beck I; Malmstrom M; Furst CJ; Rasmussen BH
Article: JOURNAL OF NURSING MANAGEMENT. 2020;28(1):102-111
Leadership in specialist palliative home care teams: A qualitative study
Klarare A; Lind S; Hansson J; Fossum B; Furst CJ; Hagelin CL
Article: JOURNAL OF INTERPROFESSIONAL CARE. 2019;33(5):504-511
Team type, team maturity and team effectiveness in specialist palliative home care: an exploratory questionnaire study
Klarare A; Hansson J; Fossum B; Furst CJ; Hagelin CL
Article: INTERNATIONAL JOURNAL OF PALLIATIVE NURSING. 2019;25(2):65-71
Dog handlers' experiences of therapy dogs' impact on life near death for persons with dementia
Swall A; Craftman A; Grundberg A; Wiklund E; Valiaho N; Hagelin CL
Article: EUROPEAN JOURNAL OF CANCER CARE. 2018;27(6):e12948
Actions helping expressed or anticipated needs: Patients with advanced cancer and their family caregivers' experiences of specialist palliative home care teams
Klarare A; Rasmussen BH; Fossum B; Hansson J; Furst CJ; Hagelin CL
Article: INTERNATIONAL JOURNAL OF PALLIATIVE NURSING. 2018;24(4):184-192
Undergraduate nursing students' transformational learning during clinical training.
Melin-Johansson C; Österlind J; Hagelin CL; Henoch I; Ek K; Bergh I; Browall M
Article: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING. 2017;12(1):1347013
Stepping out of the shadows of Alzheimer's disease: a phenomenological hermeneutic study of older people with Alzheimer's disease caring for a therapy dog
Swall A; Ebbeskog B; Hagelin CL; Fagerberg I
Article: BMC PALLIATIVE CARE. 2017;16(1):49
Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff
Beck I; Moller UO; Malmstrom M; Klarare A; Samuelsson H; Hagelin CL; Rasmussen B; Furst CJ
Article: NURSE EDUCATION IN PRACTICE. 2017;26:12-20
Undergraduate nursing students' attitudes and preparedness toward caring for dying persons - A longitudinal study
Henoch I; Melin-Johansson C; Bergh I; Strang S; Ek K; Hammarlund K; Hagelin CL; Westin L; Osterlind J; Browall M
Article: PALLIATIVE & SUPPORTIVE CARE. 2017;15(2):181-189
Experiences of security and continuity of care: Patients' and families' narratives about the work of specialized palliative home care teams
Klarare A; Rasmussen BH; Fossum B; Furst CJ; Hansson J; Hagelin CL
Article: JOURNAL OF CLINICAL NURSING. 2016;25(15-16):2223-2231
'Bringing respite in the burden of illness' - dog handlers' experience of visiting older persons with dementia together with a therapy dog
Swall A; Ebbeskog B; Hagelin CL; Fagerberg I
Article: INTERNATIONAL JOURNAL OF PALLIATIVE NURSING. 2016;22(1):28-36
Factors influencing attitude toward care of dying patients in first-year nursing students
Hagelin CL; Melin-Johansson C; Henoch I; Bergh I; Ek K; Hammarlund K; Prahl C; Strang S; Westin L; Osterlind J; Browall M
Article: SCANDINAVIAN JOURNAL OF CARING SCIENCES. 2015;29(4):776-784
End of life of patients treated with haemodialysis as narrated by their close relatives
Axelsson L; Klang B; Hagelin CL; Jacobson SH; Gleissman SA
Article: INTERNATIONAL JOURNAL OF OLDER PEOPLE NURSING. 2015;10(2):84-93
Can therapy dogs evoke awareness of one's past and present life in persons with Alzheimer's disease?
Swall A; Ebbeskog B; Hagelin CL; Fagerberg I
Article: JOURNAL OF CLINICAL NURSING. 2015;24(3-4):447-456
Meanings of being a close relative of a family member treated with haemodialysis approaching end of life
Axelsson L; Klang B; Hagelin CL; Jacobson SH; Gleissman SA
Article: INFORMATICS FOR HEALTH & SOCIAL CARE. 2015;40(1):67-78
Translation and cultural adaptation of research instruments - guidelines and challenges: an example in FAMCARE-2 for use in Sweden
Ljungberg AK; Fossum B; Furst CJ; Hagelin CL
Article: JOURNAL OF PALLIATIVE MEDICINE. 2013;16(9):1062-1069
Team Interactions in Specialized Palliative Care Teams: A Qualitative Study
Klarare A; Hagelin CL; Furst CJ; Fossum B
Article: JOURNAL OF PALLIATIVE MEDICINE. 2013;16(1):38-43
Four Essential Drugs Needed for Quality Care of the Dying: A Delphi-Study Based International Expert Consensus Opinion
Lindqvist O; Lundquist G; Dickman A; Buekki J; Lunder U; Hagelin CL; Rasmussen BH; Sauter S; Tishelman C; Furst CJ
Article: JOURNAL OF CLINICAL NURSING. 2012;21(15-16):2149-2159
Thoughts on death and dying when living with haemodialysis approaching end of life
Axelsson L; Randers I; Hagelin CL; Jacobson SH; Klang B
Article: JOURNAL OF PALLIATIVE MEDICINE. 2012;15(3):308-316
Quality Indicators for Care of Cancer Patients in Their Last Days of Life: Literature Update and Experts' Evaluation
Raijmakers N; Galushko M; Domeisen F; Beccaro M; Hagelin CL; Lindqvist O; Popa-Velea O; Romotzky V; Schuler S; Ellershaw J; Ostgathe C
Article: PLOS MEDICINE. 2012;9(2):e1001173
Complexity in Non-Pharmacological Caregiving Activities at the End of Life: An International Qualitative Study
Lindqvist O; Tishelman C; Hagelin CL; Clark JB; Daud ML; Dickman A; Benedetti FD; Galushko M; Lunder U; Lundquist G; Miccinesi G; Sauter SB; Furst CJ; Rasmussen BH
Article: SUPPORTIVE CARE IN CANCER. 2009;17(5):519-526
Patterns of fatigue related to advanced disease and radiotherapy in patients with cancer-a comparative cross-sectional study of fatigue intensity and characteristics
Hagelin CL; Wengstrom Y; Furst CJ
Article: PALLIATIVE MEDICINE. 2009;23(2):171-178
Fatigue dimensions in patients with advanced cancer in relation to time of survival and quality of life
Hagelin CL; Wengstrom Y; Ahsberg E; Furst CJ
Article: CONTEMPORARY NURSE. 2007;27(1):29-38
Nurses' experiences of clinical use of a quality of life instrument in palliative care
Hagelin CL; Wengstrom Y; Tishelman C; Furst CJ
Article: ACTA ONCOLOGICA. 2007;46(1):97-104
The psychometric properties of the Swedish multidimensional fatigue inventory MFI-20 in four different populations
Hagelin CL; Wengstrom Y; Runesdotter S; Furst CJ
Article: SUPPORTIVE CARE IN CANCER. 2006;14(4):320-328
Quality of life in terminal care-with special reference to age, gender and marital status
Hagelin CL; Seiger Å; Fürst CJ
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All other publications

Corrigendum: BMC PALLIATIVE CARE. 2025;24(1):23
Online education in palliative care-A national exploratory multimethod study (vol 23, 283, 2024)
Hagelin CL; Melin-Johansson C; Osterlind J; Bisholt B; Pusa S
Review: BMC PALLIATIVE CARE. 2023;22(1):30
Simulation-based learning in palliative care in postgraduate nursing education: a scoping review
Skedsmo K; Nes AAG; Stenseth HV; Hofso K; Larsen MH; Hilderson D; Smis D; Hagelin CL; Olaussen C; Solberg MT; Bingen HM; olnes MA; Steindal SA
Review: CANCERS. 2021;13(5):985
Fatigue in Cancer Patients in Palliative Care-A Review on Pharmacological Interventions
Klasson C; Helde Frankling M; Lundh Hagelin C; Bjorkhem-Bergman L
Letter: ACTA ONCOLOGICA. 2018;57(4):560-562
The applicability of the translated Edmonton Symptom Assessment System: revised [ESAS-r] in Swedish palliative care
Hagelin CL; Klarare A; Furst CJ
Review: SCANDINAVIAN JOURNAL OF CARING SCIENCES. 2016;30(1):5-25
Palliative Care Research - A Systematic Review of foci, designs and methods of research conducted in Sweden between 2007 and 2012
Henoch I; Carlander I; Holm M; James I; Sarenmalm EK; Hagelin CL; Lind S; Sandgren A; Ohlen J
Doctoral thesis: 2008
Fatigue in patients with advanced cancer : aspects of assessment and measurements
Hagelin CL

Employments

Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, 2023-2026

Degrees and Education

Doctor Of Philosophy, Department of Oncology-Pathology, Karolinska Institutet, 2008
Bachelor Of Medical Science, Karolinska Institutet, 2000

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