Rehabilitation processes after stroke - needs, interventions and outcomes

There is a lack of knowledge of the long-term impact on daily life in persons who have had a stroke and their significant others, as well as needs for rehabilitation and support in different phases of the rehabilitation process after stroke. There is also a lack of knowledge on how the long-term care and rehabilitation after stroke should be organised.

We have in different studies pursued projects with the aim to increase knowledge on needs for rehabilitation and support in people with stroke and their significant others, and if and how these needs vary over time.

Methods

To highlight various aspects of rehabilitation processes after stroke different methods are used: quantitative, qualitative and mixed methods. Data collection is carried out in different ways, through structured interviews and established measures of functioning, life satisfaction, perceived needs for and satisfaction with health-related services, contextual (personal and environmental) and disease specific factors. From significant others data on caregiver burden is collected. In qualitative interviews experiences of the rehabilitation process and needs for rehabilitation and support in patients and significant others are explored. Register based studies on use of health-related services after stroke are conducted. Several studies are performed in collaboration with the research group HELD at KI, University of Southern Denmark and the research group in Social Work at KI.

Importance

Since stroke often leads to lifelong impact on the life of the individual and his/her family it is important to develop evidence based sub-acute interventions, preferably through increased supply of health maintenance and health promoting activities and to identify factors that can contribute to meet the needs for rehabilitation in people with stroke and their significant others. An increased knowledge of the perceived needs in people with stroke and significant others is a starting point for model development of acute and sub-acute rehabilitation interventions.

Projektledare

Charlotte Ytterberg

Senior lecturer/physcial therapist

Doktorsavhandlingar

Dissertations that completely of partly address research questions within the aim described above.

Malin Tistad: Needs for, use of and satisfaction with health care services in the course of the first year after stroke: the perspective of people with stroke

Susanne Palmcrantz: Long-term effects of stroke seen in young individuals living in the community

Financial support

The research has received funding from Centrum för Vårdvetenskap, Karolinska University Hospital, National Health Care Science Postgraduate School, the Swedish Research Council, Hjärnfonden, the Swedish Stroke Association, Promobilia, KI funds, and the regional agreement on medical training and clinical research between Stockholm County Council and Karolinska Institutet (ALF).

Scientific publications

2021

The manifestation of participation within a co-design process involving patients, significant others and health-care professionals.
Lindblom S, Flink M, Elf M, Laska AC, von Koch L, Ytterberg C
Health Expect 2021 Mar;():

2020

Perceptive Dialogue for Linking Stakeholders and Units During Care Transitions - A Qualitative Study of People with Stroke, Significant Others and Healthcare Professionals in Sweden.
Lindblom S, Ytterberg C, Elf M, Flink M
Int J Integr Care 2020 Mar;20(1):11

Perceptive Dialogue for Linking Stakeholders and Units During Care Transitions - A Qualitative Study of People with Stroke, Significant Others and Healthcare Professionals in Sweden.
Lindblom S, Ytterberg C, Elf M, Flink M
Int J Integr Care 2020 Mar;20(1):11

Healthcare Utilization After Stroke: A 1-Year Prospective Study.
Minet LR, Peterson E, von Koch L, Ytterberg C
J Am Med Dir Assoc 2020 Jul;():

Factors related to met needs for rehabilitation 6 years after stroke.
Ytterberg C, Kristensen HK, Tistad M, von Koch L
PLoS ONE 2020 ;15(1):e0227867

2019

Closeness and life satisfaction after six years for persons with stroke and spouses.
Fugl-Meyer KS, Nilsson MI, von Koch L, Ytterberg C
J Rehabil Med 2019 Jul;51(7):492-498

Abandoned to the strains of daily life: a qualitative study of the long-term experiences in partners to persons after a mild to moderate stroke.
Ytterberg C, von Koch L, Erikson A
Disabil Rehabil 2019 03;41(6):649-655

2017

Discourses in stroke rehabilitation as they present themselves in current physiotherapy and occupational therapy.
Kristensen HK, Præstegaard J, Ytterberg C
Disabil Rehabil 2017 02;39(3):223-235

Association between satisfaction and participation in everyday occupations after stroke.
Bergström A, Guidetti S, Tham K, Eriksson G
Scand J Occup Ther 2017 Sep;24(5):339-348

Experiences of Sexuality Six Years After Stroke: A Qualitative Study.
Nilsson MI, Fugl-Meyer K, von Koch L, Ytterberg C
J Sex Med 2017 06;14(6):797-803

Perceived impact of stroke six years after onset, and changes in impact between one and six years.
Ytterberg C, Dybäck M, Bergström A, Guidetti S, Eriksson G
J Rehabil Med 2017 Aug;49(8):637-643

2016

Research-based evidence in stroke rehabilitation: an investigation of its implementation by physiotherapists and occupational therapists.
Kristensen HK, Ytterberg C, Jones DL, Lund H
Disabil Rehabil 2016 12;38(26):2564-74

Self-Reported Fatigue and Associated Factors Six Years after Stroke.
Elf M, Eriksson G, Johansson S, von Koch L, Ytterberg C
PLoS ONE 2016 ;11(8):e0161942

The Importance of Patient Involvement in Stroke Rehabilitation.
Kristensen HK, Tistad M, Koch Lv, Ytterberg C
PLoS ONE 2016 ;11(6):e0157149

2015

Participation in everyday life and life satisfaction in persons with stroke and their caregivers 3-6 months after onset.
Bergström AL, von Koch L, Andersson M, Tham K, Eriksson G
J Rehabil Med 2015 Jun;47(6):508-15

Post-stroke fatigue and its dimensions over the second half year after stroke.
Delva MY, Delva II, Lytvynenko NV
Wiad. Lek. ;71(2 pt 2):314-317