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Health-related quality of life and needs of care and support among Ugandans with cancer

Project leaders Lars E. Eriksson and Lena Wettergren

Project start: 2012

Clinical research in the field of care sciences in East Africa is almost non-existing. The overall aim of this research project is to investigate the health-related quality of life and explore the needs of care and support among adult Ugandans with cancer. The study aims to map the situation by interviewing (individually and groups) patients and health care providers in addition to collecting selected patient reported outcomes (PRO) to be answered by in and out patients. The European Organization for research and treatment of cancer’s (EORTC) quality of life questionnaire (QLQ-C30) has been translated to Luganda and is currently being pilot tested and culturally adapted for use in Uganda. The project is financed by the Eric and Edith Fernström foundation for medical research.