Division of Innovative Care Research
Innovative Care focus on conducting high quality, health care science-relevant research through multi-disciplinary collaboration.
A common focus has been on studying experiences of different aspects of cancer, HIV and other potentially life-threatening but often long-lasting conditions, along the sickness trajectory from risk through diagnosis and treatment, through palliative and end-of-life care. In order to better support the implementation of research in practice we also conduct research on organization, knowledge and change management.
A theoretical and methodological common denominator is a focus on stakeholder experiences to generate new knowledge.
To reach our goals and to strengthen common research themes, we collaborate with well-renowned researchers nationally and internationally. We also connect research grounded in health care sciences with life sciences, social sciences and art/design and by linking research with education and practice we improve its translation into practice.
Research group Eriksson
Research group leader, Division Lead
Members of research group Eriksson
- Mohammad Tanvir Ahamed
- Jane E Ball, University of Southampton, UK
- Kerstin Belqaid
- Britt-Marie Bernhardson
- Peter Griffiths, University of Southampton, UK
- Rikard Lindqvist
- Ylva Orrevall
- Sara Runesdotter
- Lena Sharp
- Anette Edin-Liljegren
- Malin Eneslätt
- Therese Johansson
- Max Kleijberg
- Felicia Nilsson
- Sophia Savage
- Carol Tishelman
- Lena Kroik, Graduate student Umeå University
- Lisa Smeds Alenius
- Åsa Olsson
DöBra is a research program that includes a number of different projects. Through a preventive public health perspective, they all aim at strengthening individuals, families and staff to better handle issues related to the end of life.
Researchers: Olav Lindqvist (researcher), Carol Tishelman (professor), Ida Goliath (assistant professor), Malin Eneslätt (PhD student), Max Kleijberg (PhD student), Lena Kroik (PhD student), Therese Johansson (research assistant).
Read more about the research program and the various projects on the website www.dobra.se.
To facilitate diagnosis of lung cancer; combined perspectives from the perceived and the biological body
The Patient EXperience of their bodily changes for Lung Cancer investigation (PEX-LC) examines how subjective experiences can be linked to clinical, metabolic and molecular changes, to facilitate early detection of lung cancer.
Researchers: Lars E Eriksson (PI), Carol Tishelman (professor), Maria Pernemalm (assistant professor), Janne Lehtiö (professor),
Adrian Levitsky (postdoc), Britt-Marie Bernhardson (project leader), Sara Runesdotter (statistician), Mohammad Tanvir Ahamed (PhD student).
In the project we have investigated how people with cancer experience that their taste and smell senses are affected in different stages of their cancer disease. We have also related this to other problems, well-being and food intake.
Researchers: Britt-Marie Bernhardson (PI), Kerstin Belqaid (PhD), Carol Tishelman (professor), Ylva Orrevall (PhD) and Eva Månsson Brahme (PhD).
The Registered Nurse Forecasting in Europe project (RN4CAST) was a multinational project of 16 participating countries aiming at contributing to new innovative ways of assessing the needs for healthcare professionals.
Researchers: Carol Tishelman (professor), Rikard Lindqvist (project coordinator), Lisa Smeds Alenius (doctoral student), Sara Runesdotter (statistician)
Read more about the project.
Disease-related stigma and quality of life for people living with mrsa or HIV infection
The overall objective of the project is to map the life situation of people living with mrsa and HIV, and to investigate the relationships between disease-related stigma and health-related quality of life in these groups.
Researchers: Lars E Eriksson (PI), Lena Wettergren (lecturer), Veronica Svedhem (lecturer), Maria Reinius (PhD student), Gudrun Lindh (lecturer).
Activities and Events
DöBra-dagen, 12 oktober 2017 (in Swedish)
DöBra-dagen, 24 augusti 2016 (in Swedish)
Design in academic health care, 10 Dec 2015 (in English)
Innovative Care in media
Innovativ vård i media (in Swedish)
- Why does it take so long to be diagnosed with lung cancer? Spotlight on lung cancer in the magazine Medical Science, feb. 2018
- Small changes to how doctors conclude consultations could help to improve both survival rates and efficiency. Innovative Care in international research project, City - University of London, 2017-11-22
- Jane Ball´s thesis on nurse staffing and hospital mortality rates receives attention in media, DN 2017-08-06
- Professor Carol Tishelman has just received the 2016 Lifetime Achievement Award from the European Oncology Nursing Society (EONS).
Selected publications and reports
Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naïve Swedish context: Action research within the DöBra research program.
Tishelman C, Eneslätt M, Menkin E, Lindqvist O
Death Stud 2019 Dec;():1-13
Beyond viral suppression: the quality of life of people living with HIV in Sweden.
Zeluf-Andersson G, Eriksson LE, Schönnesson LN, Höijer J, Månehall P, Ekström AM
AIDS Care 2019 Apr;31(4):403-412
The Relationship Between Stigma and Health-Related Quality of Life in People Living with HIV Who Have Full Access to Antiretroviral Treatment: An Assessment of Earnshaw and Chaudoir's HIV Stigma Framework Using Empirical Data.
Reinius M, Wiklander M, Wettergren L, Svedhem V, Eriksson LE
AIDS Behav 2018 Dec;22(12):3795-3806
It is important that the process goes quickly, isn't it?" A qualitative multi-country study of colorectal or lung cancer patients' narratives of the timeliness of diagnosis and quality of care.
Malmström M, Rasmussen BH, Bernhardson BM, Hajdarevic S, Eriksson LE, Andersen RS, et al
Eur J Oncol Nurs 2018 Jun;34():82-88
Patients' initial steps to cancer diagnosis in Denmark, England and Sweden: what can a qualitative, cross-country comparison of narrative interviews tell us about potentially modifiable factors?
MacArtney J, Malmström M, Overgaard Nielsen T, Evans J, Bernhardson BM, Hajdarevic S, et al
BMJ Open 2017 Nov;7(11):e018210
Beyond the visual and verbal: Using participant-produced photographs in research on the surroundings for care at the end-of-life.
Tishelman C, Lindqvist O, Hajdarevic S, Rasmussen BH, Goliath I
Soc Sci Med 2016 11;168():120-129
Going public: reflections on developing the DöBra research program for health-promoting palliative care in Sweden.
Lindqvist O, Tishelman C
Prog Palliat Care 2016 Jan;24(1):19-24
A longitudinal study of changing characteristics of self-reported taste and smell alterations in patients treated for lung cancer.
Belqaid K, Tishelman C, McGreevy J, Månsson-Brahme E, Orrevall Y, Wismer W, et al
Eur J Oncol Nurs 2016 Apr;21():232-41
Room for Death--International museum-visitors' preferences regarding the end of their life.
Lindqvist O, Tishelman C
Soc Sci Med 2015 Aug;139():1-8
Opening the doors a crack wider: palliative care research data in the public domain.
Lindqvist O, Rasmussen BH, Fürst CJ, Tishelman C,
BMJ Support Palliat Care 2016 Mar;6(1):113-5