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Children with Imperforate Anus - psychosocial aspects

Imperforate anus including lack of a normal anorectum is an uncommon malformation.

Projekt leader

Professor, senior

Per-Anders Rydelius

Telefon: +46 (0) 8-517 772 05

In general, children with high and intermediate imperforate anus receive a colostomy immediately after birth to empty their bowels. At the age of three months a new anus is constructed surgically. The reconstructed anus must be dilated to attain adequate width, which requires daily dilations for three months after the surgery. Many children with imperforate anus have functional difficulties including constipation and faecal incontinence for several years. Regular enemas are administered as treatment and as preventive treatment

When a child has a chronic condition - imperforate anus -, there may be implications for the psychosocial well-being of the child and the parents as well as influences on family child-parent relationship that in turn might lead to difficulties with peer-relations. These families may need help through consultation and liaison work between the child psychiatric department and the paediatric disciplines.

The overall aim is to explore psychosocial consequences on children with high or intermediate imperforate anus and their parents in order to have a basis for a forthcoming caring program for the family.

The study is a collaboration between the the child and adolescent psychiatric unit and the paediatric surgery unit at Astrid Lindgren Children's hospital, Department of Women's and Children's Health.

Margret Nisell, RN, PhD