Childhood cancer health care research

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Research group leader:

Assistant professor

Pernilla Pergert

E-mail: Pernilla.Pergert@ki.se

We perform research in the following areas:

  • Intercultural Care & Clinical ethics (ICE)
  • Psychological and socio-economic childhood cancer research
  • The child and the family in palliative care

Research projects

Intercultural Care & Clinical Ethics (ICE)

Intercultural care includes studies on experiences of healthcare staff, parents and interpreters in childhood cancer care. We also study communication over language barriers in childhood cancer care. Clinical ethics includes studies on ethics case reflections in the health care team as well as studies on the ethical climate and moral distress in childhood cancer care.

  • Communication over language barriers – A national study in childhood cancer care
  • Moral stress and the ethical climate in pediatric cancer care

Psychological and socio-economic childhood cancer research

The research aims at increased knowledge of the situation of parents and siblings of a child diagnosed with cancer. Studies include a national cohort study of mothers and fathers of children diagnosed with cancer 2004-2009, describing the socioeconomic effects of childhood cancer on parents’ gross income, income from employment, and reliance on/use of social benefit. The aim of the SibsCan study is to develop internet-based psycho-social support for siblings. The study covers siblings, aged 15-35, of patients undergoing treatment or whose treatment is complete, as well as siblings who have lost a brother or sister to cancer.  

The child and the family in palliative care

Link to projects at Palliative Research Centre, Ersta Sköndahl University College

Members of the research group

Research leader

Pernilla Pergert, Pediatric Nurse Specialist, PhD, Group leader

Intercultural Care & Clinical Ethics (ICE)

Kim Lützén, Reg. Nurse, PhD, Professor
Margareta af Sandeberg, Pediatric Nurse Specialist, PhD, Postdoc
Elisabet Tiselius, Interpreter, PhD, Postdoc
Cecilia Bartholdson, Pediatric Nurse Specialist, PhD
Johanna Granhagen Jungner, Reg Nurse, MSc., PhD-student

Collaborating researchers

Klas Blomgren, MD, PhD, Professor, KI
Ulla Forinder, Ass Prof, KI
Gert Helgesson, PhD, Professor, KI
Lill Hultman, PhD-student, KI
Bert Molewijk, PhD, Ass Prof, VU Medical Center in Amsterdam, the Netherlands
Marika Wenemark, Statistician, PhD, Linköping University

Psychological and socio-economic childhood cancer research

Annika Lindahl Norberg, Reg. psychologist, PhD, Ass Prof.
Emma Hoven, PhD

Collaborating researchers

Matteo Bottai, Statistician, Professor, KI
Ulla Forinder, Ass Prof, KI
Mats Heyman, MD, Ass Prof, KI
Gun Johansson, PhD, KI
Scott Montgomery, Professor, Örebro University
Anneli Silvén Hagström, PhD student, Linköping University
Teolinda Toft, PhD student, Uppsala University

The child and the family in palliative care

Ulrika Kreicbergs, Affiliated Professor

Link to: Researchers at Palliative Research Centre, Ersta Sköndahl

Networks

Intercultural Care & Clinical Ethics (ICE)

The members of the research group are active in the following networks:

Psychological and socio-economic childhood cancer research

The members of the research group are active in the following networks:

  • U-CARE, Uppsala University
  • Health care research network at Astrid Lindgren Children’s Hospital, Sachs' Children and Youth Hospital and KI
Cancer and OncologyPediatrics