About the Swedish MS registry

The Swedish MS registry (SMSreg) is a government funding quality register designed to ensure optimal health care for patients with multiple sclerosis (MS). All Swedish neurology departments are users and providers of data and currently more than 14 000 patients with MS have been registered. Participation is voluntary and it serves as a tool for decision support and to provide an easy overview of the patient information needed at clinical visits. Moreover it ensures that important health care data is not lost when the patient is moving or changing physician, which is especially important for patients with chronic diseases requiring life-long treatment and support. Recent development includes a portal allowing patients to view a summary of their registered data and to report a set of patient-reported outcomes. The registry serves as a valuable source for research and over 100 scientific publications have been generated from this source.