PREMIS study

Denna sida på svenska

PREMIS

The PREMIS study is a longitudinal study that aims at investigating the associations between the various forms of employment on today’s labour market and health. The project was initiated in 2016 and carried out by the Unit of Occupational Medicine at Karolinska Institutet. We hope that the results from the study will lead to increased knowledge on the health effects of various forms of employment as well as to future preventive action.

About the study

Today’s labour market consists of a growing number of precarious employment forms and flexible work arrangements, such as work as substitute, general temporary employment and employment by the hour. There is still too little known about how these forms of employment affect health, which makes this an important research area.

PREMIS is a collaboration between Karolinska Institute and Lund University, Universitat Pampeu Fabra in Barcelona and Universidad Católica de Chile – all of which are conducting research in the area of labour market and health. PREMIS is financed by FORTE (Swedish Research Council for Health, Working Life and Welfare).

Data collection

Data was collected during the fall of 2016 until spring of 2017. Data was collected from about 500 individuals that lived or worked in Stockholm County and that did not have a permanent fulltime employment. This was done by a web-based questionnaire containing questions on health, work and work environment, economy and living conditions. Thereafter, participants invited 1-4 acquaintances with similar employment conditions.

This type of sampling method is called respondent-driven sampling (RDS). RDS is based on “seeds” – individuals who initiate the data collection by being the first to participate in the study. Once these seeds have completed the survey, they look to their own networks to invite acquaintances who are in similar employment situation who, in turn, participate in the survey. This creates formations of several recruitment chains across the target group.

PREMISS kedjaExample of recruitment chains of participants stemming from seeds A, B, and C. 

The results will be presented at a group level and no individual responses will be released.

Contact

You can reach PREMIS through the contact information below: 

E-mail: Johanna.Jonsson@ki.se 

Postal address: 
PREMIS-studien
Enheten för arbetsmedicin, Institutet för Miljömedicin
Karolinska Institutet
Solnavägen 4
SE-
11365 Stockholm

We will not be able to answer any questions about the results of the study until they are published in a scientific journal. When an article based on the PREMIS-data is published, it will be announced here. 

Secrecy and Data Use

How We Use Your Data

In order to reduce the number of survey questions, and in order to receive answers to our research questions, we will collect complementary data from public registries. Since an individual’s health is affected by heredity and family relationships, we will also collect information on parents, siblings, and children. Information on gender, age, social background, family relationships, marital status, and country of birth, citizenship, housing area, education, occupation, income, social benefits and benefits during sick leave will be collected from Statistiska Centralbyrån (SCB). Information on hospital care, pregnancy and birth, and use of pharmaceutical products will be collected from Socialstyrelsen and Sveriges Kommuner och Landsting (SKL). Stockholms Läns Landsting (SLL) will provide information on care and treatment results, and Försäkringskassan will provide diagnoses in connection with any sick leave or disablement pension (“sjuk- och aktivitetsersättning”). Information from any military enrolment will be collected from Rekryteringsmyndigheten or Krigsarkivet. Finally, the City of Stockholm will provide data on the levels of noise and air pollution in the housing area. When responding to the survey questions, you also agree to the use of this registry information. After completed processing at the SCB, all personal data will be removed, and the material will be handed over to Karolinska Institutet for further processing and analysis. Information from the survey will be used by a number of researchers, but release of any data will always be carried out restrictively, and after careful scrutiny. This research and these statistics are also covered by secrecy of statistics (see below). Since the health of the study participants will be followed over time, we hope that the study will provide important answers to the causes to various illnesses and how these can be prevented. Thus, a new survey may be sent out in a few years. Participation is always voluntary and you will decide at each occasion if you wish to participate. To be able to send out new surveys, and in order to make it possible to supplement new surveys with current registry information, we will keep a record of participants. This information will be saved separately from survey responses and other registry information.

Protection of Survey Responses

Your survey responses will not be identifiable when the results from the study are published. Any information provided to us is protected by secrecy in accordance with “24 kap. 8 §” in the Information and Secrecy Act (“offentlighets- och sekretesslagen”, 2009:400). Employees at KI and SCB working with the study are bound by the rules of document secrecy and professional secrecy. Rules for the processing of personal data are also given in the Personal Data Act (“personuppgiftslagen”, 1998:204), as well as in the Official Statistics Act (“lagen om den offentliga statistiken”, 2001:99) and the Regulation on Official Statistics (“förordningen om den offentliga statistiken”, 2001:100).

Personal Data

KI is the controller of personal data and responsible for the processing of information carried out by KI. SCB is the controller of personal data and responsible for the processing of personal data carried out by SCB. Any individual with a personal record has the right to once per calendar year receive information free of charge by a so called “registerutdrag” (record of the registry) on the personal data handled by the SCB and by KI. A request for a “registerutdrag” must be made in written form and must be signed by the person whom the record concerns. For more information, go to www.scb.se/pul. Should you find that KI or the SCB has treated your personal data in a way that violates the Personal Data Act, you may request to have your personal data corrected, blocked or erased.

Further use of register data

You who participated in the study has consented to the use of complementary data from registers. In addition to data on your occupation and income, we will add certain data on your employer’s sector, branch of industry and some financial key figures.