Swedish Twin Registry: For researchers
The Swedish Twin registry is an (inter)national resource. Data from the registry can become available to academic and industry-based researchers. Read more below what is required to initiate research with the Swedish Twin Registry.
KI uses a web based application routine for all core facilities. Please see specific instructions for the Twin Registry on this page.
Regardless of the type of research interest, all potential collaborations or data access agreements must first be reviewed by the steering committee of the STR.
Application procedure to utilize the Swedish Twin Registry
Policy and conditions
The general conditions for collaboration with the Swedish Twin Registry can be found in our policy document. Start the process by reading the policy document so that all conditions can be met. The STR expert committee meets four times per year and decides on all requests.
In order to process your request, a complete application must be received by the STR no later than nine days before an expert committee meeting. For more information, please contact us by e-mail to firstname.lastname@example.org.
Dates for Expert Committee meetings 2023
- 16/2 (deadline to apply before the meeting is 7/2)
- 11/5 (deadline to apply before the meeting is 2/5)
- 28/9 (deadline to apply before the meeting is 19/9)
- 7/12 (deadline to apply before the meeting is 28/11)
How to apply
To be complete, an application must contain the following:
Step 1: prepare documents
- A detailed and complete description of the project comprising 3-5 pages, including:
a) specific aims
b) general background (including relevant literature references)
c) requested variables with inclusion and exclusion criteria
e) description of the research group
- CV of the PI (Principal Investigator)
- Ethical application and ethical approval (for projects not including new contacts). For projects in which contacts with study persons are to be made, it is recommended that the STR steering committee reviews both contact letters and informed consent formulations before these documents are sent for ethical review.
Step 2: web application - NEW WEB BASED ROUTINE!
- Go to the web-based tool for KI core facilities iLab, and register or login.
- Fill out the STR application form and attach the relevant documents (from step 1-3 above).
Step 3: after approval
If your application is approved, see guidelines for required data specifications.
Support on how to register and use iLab:
For those working at Karolinska Institutet: https://staff.ki.se/media/63145/download
For all other users: https://staff.ki.se/media/63165/download
Support pages for iLab: https://help.ilab.agilent.com/35322-getting-started/299372-welcome-to-ilab-help
Studies within the Swedish Twin Registry
In the STR dataportal you can search for metadata included in our cohorts and studies as well as create and download your own variable list: https://strdata.se/
Below you can find some information about our studies grouped by cohorts.
The information comprises:
Questionnaire, a PDF format file (Swedish only, when applicable)
Area of study, variables, codes an Excel format file
All files are password protected.
Contact the Twin Registry to obtain the password by e-mail to email@example.com.
Questionnaires administered in the 60s and the 70s with variable description
Born 1886-1925 Questionnaire 1961
Born 1886-1925 Questionnaire 1963
Born 1886-1925 Questionnaire 1967
Born 1886-1925 Questionnaire 1970
Born 1826-1958 Questionnaire 1973
Questionnaires administered in the 90s with variable description
Born 1886-1958 SALT - Screening Across the Lifespan Twin
Born 1886-1958 TwinGene - Pair of twins from the SALT-study
Born 1944-1958 SALTY - Screening Across the Lifespan Twin Young
Born 1826-1958 Birth - Birth weight and risk of adult disease in offspring: etiologic determinants
Born 1959-1985 STAGE - Swedish Twin Studies of adults: Genes och Environment
Born 1959-1985 STAGE ONE - Swedish Twin Studies of adults: Genes och Environment
Born 1992-1999 CATSS - The Child and Adolescent Twin Study in Sweden
Presentation of the Swedish Twin Registry (pdf, ppt)
Acknowledgement in publications using STR data
In each publication the STR should be acknowledged in the following way:
If you received data before 2023: “We acknowledge The Swedish Twin Registry for access to data. The Swedish Twin Registry is managed by Karolinska Institutet and receives funding through the Swedish Research Council under the grant no 2017-00641.”
If you received data 2023 or later: “We acknowledge The Swedish Twin Registry for access to data. The Swedish Twin Registry is managed by Karolinska Institutet and receives funding through the Swedish Research Council under the grant no 2021-00180.”
Publications based on the Swedish Twin Registry
List of publications (pdf, updated April 25, 2023)