Fertility-related communication in cancer care

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Overall aim

Many cancer treatments have a negative impact on future ability to have biological children, and the aim of the project is to study how this is experienced and communicated in cancer care, both from the patient and the physician perspective. 

Project description

The project includes three parts. First, we conducted a population-based survey study with 484 patients that had received treatment for a selection of cancer diagnoses in reproductive age (18-45); questions concerned their desire for children and received information about fertility-related aspects of the cancer treatment. The second part of the project is a longitudinal interview study with 21 patients (20-41 years) that underwent cancer treatment with a potential negative impact on fertility; interviews focused on their experiences and views of fertility-related communication and family building. The third part is a national survey study with physicians working in pediatric oncology (n=58) and oncology/haematology (n=329); questions focus how physicians communicate with patients (and formal caregivers) about treatment impact on fertility and about fertility preserving options. 

Principle Investigators

Claudia Lampic

Lena Wettergren


Gabriela Armuand 

Jenny Nilsson 

Claire Micaux Obol 

Kenny Rodriguez-Wallberg 

Oncologists, haematologists and pediatric oncologists at Karolinska University Hospital, Uppsala Academic hospital and Örebro University hospital 


Doctoral School in Health Care Sciences


Swedish Cancer Society 

Selected publications

Physicians' self-reported practice behaviour regarding fertility-related discussions in paediatric oncology in Sweden.
Armuand GM, Nilsson J, Rodriguez-Wallberg KA, Malmros J, Arvidson J, Lampic C*, Wettergren L* Psycho-oncology 2017;26(10):1684-1690.

Oncologists’ and hematologists’ perceptions of fertility-related communication – a nationwide study. Micaux Obol C, Armuand GM, Rodriguez-Wallberg KA, Ahlgren J, Ljungman P, Wettergren L*, Lampic C*. Acta Oncologica. Epub 5 April 2017.

Facing the negative impact of cancer treatment on fertility. Fertility-related communication and reproductive concerns following a cancer diagnosis.                            Armuand G. Thesis for doctoral degree, Karolinska Institutet: May 2015. 

Women more vulnerable than men when facing risk for treatment-induced infertility: a qualitative study of young adults newly diagnosed with cancer.
Armuand G, Wettergren L, Rodriguez-Wallberg K, Lampic C
Acta Oncol 2015 Feb;54(2):243-52

Desire for children, difficulties achieving a pregnancy, and infertility distress 3 to 7 years after cancer diagnosis.
Armuand G, Wettergren L, Rodriguez-Wallberg K, Lampic C
Support Care Cancer 2014 Oct;22(10):2805-12

Sex differences in fertility-related information received by young adult cancer survivors.
Armuand G, Rodriguez-Wallberg K, Wettergren L, Ahlgren J, Enblad G, Höglund M, et al
J. Clin. Oncol. 2012 Jun;30(17):2147-53

Cancer and OncologyNursing