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QRC Research Unit

Our vision is to contribute to better health care by facilitating that register holders, decision makers, researchers, pharmaceutical industry, and students regularly use quality register in their work, and that patients request this in health care settings.

QRC Stockholm supports quality registries regionally and nationally in the development of (among other things) operations, improvement work, research support and performance analysis, which in turn will ensure the quality of care. We are also continuously working on developing innovative processes together with register holder and their organizations.

We work mainly with register development, improvement work, partnership with patients, and research. The research conducted at the research unit at LIME, Karolinska Institutet, covers quality improvement and patient-reported outcome measures.

Research group leader

Acting Unit Manager QRC Stockholm Quality Register Center

Anknuten

Seher Korkmaz

Enhet: Forskargrupp H Kieler
E-post: Seher.Korkmaz@ki.se

Group members

Olivia ErnstssonDoktorand, Forskarstuderande

olivia.ernstsson@ki.se

Emelie HeintzAnknuten

emelie.heintz@ki.se

Helena HvitfeldtAnknuten

helena.hvitfeldt.forsberg@ki.se

Susanna LagerstenEnhetschef

susanna.lagersten@ki.se

Teresa TaelProjektsamordnare

teresa.tael@ki.se

Helena TjärnbergAdministratör

helena.tjarnberg@ki.se

Projects

Patient-Reported Outcome Measures (PROMs)

EQ-5D Research Project

The Swedish Research Program of Mutual Interest (SRPMI) will be conducted in 2016-2021, according to the Sweden-EuroQol Research Foundation (ERF) agreement about the use of EQ-5D within the Swedish PROMs Program, a program which supports the use of patient-reported measures within the Swedish National Quality Registers (NQRs).

The focus of the program is the use of large-scale application of EQ-5D data from the Swedish NQRs and the Stockholm County Council health databases to inform decision-making in the Swedish health care system. The work within the program will be done in collaboration with the NQRs and/or other potential users of EQ-5D for decision-making in Sweden (county councils, the Dental and Pharmaceutical Benefits Agency, National Board of Health and Welfare etc.).

Contact

Anknuten

Emelie Heintz

Enhet: QRC KI
E-post: emelie.heintz@ki.se

QRC Coaching Academy

QRC Coaching Academy offers services for improvement work through courses and education programs. For more information

Improvement work supported by quality registers, 15 credits

The course is designed for those who want to pursue sustainable improvement work at a health care clinic, with the help of quality registers while learning and practicing coaching methods. The course is based on four core areas: improvement science, coaching and change management, quality registers and measurements, as well as patient collaboration and partnership.

Use of registers in clinical research

The course is arranged by QRC Stockholm, KI Södersjukhuset and KI Danderyd Hospital. The course is aimed at research-oriented health care professionals, graduate students, and professionals from pharmaceutical and medtech industry.

Research support

QRC Stockholm (QRC) is a Regional registry centre for National Quality Registries (NQR) and also forms a strategic cooperation between Karolinska Institutet (KI) and the Stockholm County Council. Vinnvård finances a half time postdoc position for Emelie Heintz during the period 2016-2019.

Collaborations

EuroQol Foundation

Health Economics and Economic Evaluation Research Group, LIME, Karolinska Institutet

Centrum för utvärdering av medicinsk teknologi (CMT), Avdelningen för hälso- och sjukvårdsanalys (HSA), Linköpings universitet

Articles

29784592

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Boosting Quality Registries with Clinical Decision Support Functionality*. User Acceptance of a Prototype Applied to HIV/TB Drug Therapy.
Wannheden C, Hvitfeldt-Forsberg H, Eftimovska E, Westling K, Ellenius J
Methods Inf Med 2017 Aug;56(4):339-343

Creating a culture of health: evolving healthcare systems and patient engagement.
Lindblad S, Ernestam S, Van Citters A, Lind C, Morgan T, Nelson E
QJM 2017 Mar;110(3):125-129

The External Validity of Mapping MSIS-29 on EQ-5D Among Individuals With Multiple Sclerosis in Sweden.
Ernstsson O, Tinghög P, Alexanderson K, Hillert J, Burström K
MDM Policy Pract ;2(1):2381468317692806

The Swedish RAND-36 Health Survey - reliability and responsiveness assessed in patient populations using Svensson's method for paired ordinal data.
Orwelius L, Nilsson M, Nilsson E, Wenemark M, Walfridsson U, Lundström M, et al
J Patient Rep Outcomes 2017 ;2(1):4

Patient focused registries can improve health, care, and science.
Nelson E, Dixon-Woods M, Batalden P, Homa K, Van Citters A, Morgan T, et al
BMJ 2016 Jul;354():i3319

Continuous innovation: developing and using a clinical database with new technology for patient-centred care--the case of the Swedish quality register for arthritis.
Ovretveit J, Keller C, Hvitfeldt Forsberg H, Essén A, Lindblad S, Brommels M
Int J Qual Health Care 2013 Apr;25(2):118-24

Reports

Värderingssystem för EQ-5D-5L, Raport 2018-04-12 (in Swedish)