Action through Information Management (AIM)
Our vision is a health system where all care is tailored to individuals' needs and preferences and based on adequate use of information, knowledge and resources.
As the physicist and Nobel Prize winner Niels Bohr expressed: "Nothing exists until it is measured" (1930). In Swedish health care, innumerable measurements are recorded daily in thousands of different information systems, comprising laboratory systems, electronic health record systems, quality registers, mobile health applications, adverse drug reaction reporting systems, incident reporting systems, and many more. Information resulting from measurements and assessments is a central building block of health systems whose primary intent is to promote, restore and maintain health. However, the transformation from data into information, from information into knowledge, from knowledge into actions, and from actions into results is an immensely challenging process. The figure below highlights two management gaps in this process that deserve attention. How is available health information used to generate new knowledge? And how is knowledge translated into actions leading to desirable results?
Our research group is particularly interested in methods to enhance collaboration and mutual learning between patients, their social networks, and health care professionals - which we define as co-care. Through action research, we collaborate with different stakeholders to co-design, develop, implement and evaluate both digital and non-digital innovations that enhance co-care. We focus on information that matters to patients and how such information is collected, processed, presented and communicated between different stakeholders within and outside of an organization.
Expertise and research methods
We are a multi-disciplinary research group with subject matter expertise in medical and clinical science, social science, psychology, medical management, medical technology management and health informatics. We have methodological expertise and experience in case study research, mainly using qualitative research methods. However, we also seek to strengthen our expertise in quantitative methods through new collaborations. Please do contact us if you find interest in our research and wish to collaborate or exchange experiences.
Ongoing research projects and funders
Co-Care for individuals with chronic illness
Co-care is a 5-year research program conducted at the Medical Management Center in collaboration with a number of researchers from various academic institutions (Karolinska Institutet, Stockholm School of Economics, the Royal Institute of Technology), as well as representatives from health care and patient organizations. The purpose of the program is to develop, implement and evaluate new models of care and support functions to realize the potential of co-care. Co-care implies that people with chronic illness and their relatives are given the opportunity and tools to take a greater role in self-care based on their individual goals and preferences, and through support from health care and digital services (mHealth, eHealth). The Co-Care research programme is funded by the Swedish Research Council (Vetenskapsrådet) and the Swedish Research Council for Health, Working Life and Welfare (Forte). Read more about the program on the program page (in Swedish only)!
Distributed cognition in co-care
The project explores how healthcare can be improved through eHealth services that are used by both staff and patients to make it easier for the patients to handle their own health - co-care services. Using the theory of distributed cognition the project examines how problem solving and information processing is spread between actors, eHealth services, and over time and space; how this affects interaction and collaboration between patients and staff; how individuals motivation to engage in self-care is affected. Furthermore, we aim to explore whether these kinds of eHealth services contribute to more effective and efficient care and self-care. The project is interdisciplinary and takes place in collaboration with various healthcare organizations. One part is led by Ulrica von Thiele Schwarz in the research group PROCOME and funded by Kamprads stiftelse (2017-2020). The other part is led by Carolina Wannheden and is funded by Forte (2018-2021).
Research group members
Research group leader
Valuable, but challenging! Experiences of codesigning an eHealth service for co-care of Parkinson’s disease.
Revenäs Å, Hvitfeldt H, Granström E, Wannheden C. JMIR Res Protoc (forthcoming). Accepted for publication in August 2018. doi:10.2196/11278
Enhanced patient activation in cancer care transitions – a randomized controlled trial of a tailored eHealth intervention for men with prostate cancer.
Ekstedt M, Schildmeijer K, Wennerberg C, Nilsson L, Wannheden C, Hellström A. JMIR Res Protoc (in review).
Developing an eHealth Tool to Support Patient Empowerment at Home. Studies in health technology and informatics. 2018;247:925-9.
Schildmeijer K, Wannheden C, Nilsson L, Frykholm O, Hellström A, Flink M, Ekstedt M.
Incidence of tuberculosis and the need of prophylactic treatment in persons living with HIV in Stockholm during the era of anti-retroviral therapy 1996-2013.
Norrby M, Wannheden C, Ekström AM, Berggren I, Lindquist L. Infectious Diseases (forthcoming). Accepted for publication in June 2018.
Boosting Quality Registries with Clinical Decision Support Functionality. User Acceptance of a Prototype Applied to HIV/TB Drug Therapy.
Wannheden C, Hvitfeldt-Forsberg H, Eftimovska E, Westling K, Ellenius J. Methods Inf Med [Internet]. 2017 Apr 28;56(4). Available from: https://doi.org/10.3414/ME16-02-0030
Unveiling the Mechanisms of Change: An Explanatory Case Study of Improving Hip Fracture Rehabilitation in Sweden.
Löfgren S, Ryd L, Wannheden C, Brommels M. J Physiother Phys Rehabil. Nov 2016;3(1): 040-045. DOI: 10.17352/2455-5487.000034
Pseudo-understanding: an analysis of the dilution of value in healthcare.
JJ Fredriksson, D Ebbevi, C Savage - BMJ quality & safety, 2015.
Patient reported outcome measures in practice
EC Nelson, E Eftimovska, C Lind, A Hager, JH Wasson, S Lindblad- BMJ, 2015.
Using Patient-Reported Outcomes in Routine Practice: Three Novel Use Cases and Implications
Hvitfeldt Forsberg H, Nelson E, Reid R,Grossman D, Mastanduno M, Torrey Weiss L, Fisher E, Weinstein J. J Ambulatory Care Manage Vol. 38, No. 2, pp. 186–193. 2015.
HIV and tuberculosis coinfection: a qualitative study of treatment challenges faced by care providers
Wannheden C., Westling K., Savage C., Sandahl C., Ellenius J. The International Journal of Tuberculosis and Lung Disease, Volume 17, Number 8, 1 August 2013, pp. 1029-1035(7)
Continuous innovation: developing and using a clinical database with new technology for patient-centred care—the case of the Swedish quality register for arthritis.
J Ovretveit, C Keller, HH Forsberg, A Essén…S Lindblad - International journal for …, 2013 – ISQHC.
Wannheden C. Kvalitetsregister och beslutsstöd – Två sidor av samma mynt [Quality registries and decision support – Two sides of the same coin]. Report 2016-10-01. QRC Stockholm Quality Registry Center. 2016 October. ISBN: 978-91-982324-1-7.