Long-term outcome in adults with neurodevelopmental disorders

Research and development

Here we describe two register based studies about long-term outcome in adults with neurodevelopmental disorders.

Premature mortality in autism spectrum disorder

Mortality has been suggested to be increased in autism spectrum disorder (ASD). The aim of this study is to examine both all-cause and cause-specific mortality in ASD using nationwide Swedish population-based registers. Register data will be analysed for a cohort of ASD probands (N=27 122, diagnosed between 1987 and 2009) as compared to sex-, age-, and county of residence-matched controls (n= 2 672 185).

Research group: Tatja Hirvikoski, Ellenor Mittendorfer-Rutz, Marcus Boman, Henrik Larsson, Paul Lichtenstein, and Sven Bölte.

Risk- and protective factor for long-term outcome in adults with neurodevelopmental disorders

Long-term follow-up of approximately 800 individuals assessed for neurodevelopmental disorders at adult age. Follow-up is based on data from nationwide Swedish population-based registers. The main focus is on health outcome and health care utilization. Data from registers will be linked to clinical data to identify risk- and protective factors for long-term outcome.

Research group: Tatja Hirvikoski, Svetlana Lajic, Jussi Jokinen, Ellenor Mittendorfer-Rutz.