Föreläsningar och seminarier

Let Patients Help! - in healthcare and research

2014-08-2709:00 to 12:00 David, Tomtebodavägen 18A, floor 1Campus SolnaMMC - Medical Management Centre

Let Patients Help! - in healthcare and research


Welcome to an interactive workshop at Karolinska Institutet on innovative and cutting-edge ways to improve healthcare and research. We are proud to host a workshop in which:

  • e-Patient Dave will talk about his book “Let Patients Help!” and give us his view on why and how patients should be allowed to engage more in their care. 
  • Olga Sabirova Höjerström from Experio Lab will demonstrate their “empathy kit” in which you can temporaily experience how it is being a patient. The “Empathy kit” consists of a suit allowing you to experience how it feels to be 30 years older, with stiff joints, bad eyesight and hard of hearing. There is also equipment for experiencing Parkinson’s disease, tinnitus and different eye conditions. 
  • We will all engage in discussions on How can patients help make research better and literally write a new chapter in patient-focused research,
  • Moderators Pär Höglund, MD, PhD (research leader in value networks and patient engagement, https://twitter.com/Doctor4Quality) and Sara Riggare PhD (student on patient empowerment by IT, optimistic realist with Parkinson's, https://twitter.com/SaraRiggare) will guide us through this exciting workshop

This workshop is a part of the project Dagens Patient  (http://dagenspatient.se/) a project geared towards active selfcare for patients with chronic diseases. The workshop is a collaboration between Karolinska Institutet, LIME (Department of Learning, Informatics, Management and Ethics), KI and SHIFT - Swedish Health Ideas for Tomorrow (www.facebook.com/SHIFT.health).

Dave deBronkart, known on the internet as e-Patient Dave, is the author of the highly rated Let Patients Help: A Patient Engagement Handbook (www.amazon.com/Patients-Help-Patient-Dave-deBronkart/dp/1466306491) and one of the world’s leading advocates for patient engagement. After beating stage IV kidney cancer in 2007 he became a blogger, health policy advisor and international keynote speaker. An accomplished speaker in his professional life before cancer, he is today the best-known spokesman for the patient engagement movement, attending nearly 300 conferences and policy meetings internationally, including testifying in Washington for patient access to the medical record. Dave’s TED Talk Let Patients Help (www.youtube.com/watch?v=2vejkD0Rl3o) went viral, for years was in the top half of the most viewed TED Talks of all time with over a half million views; volunteers have added subtitles in 26 languages, indicating the global appeal of his message. In 2012 the National Library of Medicine announced that it’s capturing his blog in its History of Medicine Division.

Experio Lab is a national center for service design close to patients. We involve professionals, patients and families to create new services for healthcare. More: see www.experiolab.se (in Swedish).

Have questions about Let Patients Help! - in healthcare and research? Contact www.dagenspatient.se, SHIFT (Swedish Health Ideas For Tomorrow)