Margareta Lilja

Research and teaching interests includes community-based practice and focuses on elderly person ability, need and interests in relation to his/her occupational performance in the home environment. A part of my research is also pedagogical project related to assessment and students clinical practice.

In education responsible for:

Course director for the course Thesis in Occupational Therapy and elaborating and teaching at the Occupational Therapy program. Teaching at master and doctoral student level.

Title of thesis:

Elderly Disabled Persons Living in the Home Setting. Aspects of Activities in Daily Life. Karolinska Institutet, Department of NVS, Division of Occupational Therapy, Stockholm: University press.

• Thesis 2000: Elderly disabled persons in the home setting - aspects of activities in daily life

Supervision:

Main supervisor for doctoral student: Ulrica Lundström, The Department of Health, Luleå Technical University.

Co supervisor for the following doctoral students: Maryanne Saco-Petersson och Christina Schulze, Department of Occupational Therapy, NVS, KI and Cecilia Björklund, The Department of Health, Luleå Technical University.

Main supervision completed: Karin Johansson 2008, Ingela Petersson 2009.

Co supervision completed: Kjersti Vik 2008, Liz Peterson 2009, Anna-Stina Dolva 2009.

Publication list:

Peer-reviewed original papers:

Johansson, K., Lilja, M., Parker, M., and Josephsson, S. (2010). Balancing the good - a critical discourse analyses of home modification services. Sociology of health and Illness 32(4): 563-82.

Johansson, K., Josephsson, S. and Lilja, M. (2009). Creating possibilities for action in the precens of environmental barriers, in the process of ageing in place, Ageing and Society. 29: 49-70.

Vik, K. Nygård, L. and Lilja, M. (2009). Encountering staff in the home; three older adults' experience over six months of home-based rehabilitation. Disability and Rehabilitation, 31(8): 619-629.

Petersson, I., Kottorp, A., Bergström, J., and Lilja, M.(2009). Longitudinal changes in everyday life after home modifications for people aging with disabilities. Scandinavian Journal of Occupational Therapy, 16 (2): 78-87.

Johansson, K., Lilja, M., and Borell, L. (2009). Older persons' navigation through the services system towards home modification resources. Scandinavian Journal of Occupational Therapy, Special issue. 14(1): 1-11.

Nilsson, I:, Fitinghoff, H. and Lilja, M. (2007). Continuing to work after onset of rheumatoid arthritis. Work, 28: 1-8

Dolva, A.S., Lilja, M. and Hemmingsson, H. (2007). Functional Performance characteristics Associated with Postponing Elementary School Entry among Children with Down syndrome. American Journal of Occupational Therapy, 4: 414-420.

Vik, K., Lilja, M. and Nygård, L. (2007) The influence of the environment on participation subsequent to a rehabilitation as experienced by elderly people in Norway. Scandinavian Journal of Occupational Therapy, 14, (2), 86-95.

Vik, K. Nygård, L. and Lilja, M. (2007). Perceive environmental influence on participation among older adults after home based rehabilitation. Physical & Occupational Therapy in Geriatrics, 4: 1-20.

Petersson, I., Fisher, A., Hemmingsson, H. and Lilja, M. (2007). The Client-Clinician Assessment Protocol (C-CAP) Part 1: A first evaluation of its psychometric properties for use people aging with disabilities in need of home modifications. Occupational Therapy Journal of Research, 27 (4), 140-148.

Peterson, I, Kottorp, A., Hammel, J. and Lilja, M. (2008). The impact of home modification services on ability in daily life for people aging with disabilities. Journal of Rehabilitation Medicine 40, 253-260.

Nygård, L., Starkhammar, S. and Lilja, M. (2008). The provision of stove timers to individuals with cognitive impairment. Scandinavian Journal of Occupational Therapy, 15, (1), 4-12.

Johansson, K., Lilja, M., Petersson, I. and Borell, L. (2007). Performance of activities of daily living in a sample of applicants for home modification services. Scandinavian Journal of Occupational Therapy, 14 (1): 44-53.

Dolva, A.S., Coster, W. and Lilja, M. (2004). Functional performance in children with Down syndrome. American Journal of Occupational Therapy, 6: 621-629.

Lilja, M., Månsson, I., Jahlenius, L. and Sacco-Peterson, M. (2003). Disability Policy in Sweden - The Philosophy of Assistive Technology and Home Modification Services. Journal of Disability Policy Studies, 3: 130-135

Lilja, M., Bergh, A., Johansson, L. and Nygård, L. (2003). Attitudes towards rehabilitation needs, assistive technology and support from the social environment among elderly people with disability. Occupational Therapy International, 1: 75-93.

Borell, L., Lilja, M., Anderson-Sviden, G. & Sadlo, G. (2001). Occupations and signs of reduced hope - An explorative study of older adults with functional impairments. American Journal of Occupational Therapy, 3: 311-316

Lilja, M. & Borell, L. (2001). Occupational therapy practice patterns with older Swedish persons at home. Canadian Journal of Occupational Therapy, 1: 51-59

Lilja, M., Nygård. L. & Borell, L. (2000). The transfer of information about geriatric clients in the occupational therapy chain of care: An intervention study. Scandinavian Journal of Occupational Therapy, 2: 51-59.

Lilja, M. (2000). Elderly disabled persons in the home setting, Aspects of daily life. Doctoral dissertation. Neurotec, Sektionen för arbetsterapi, Karolinska Institutet, Stockholm, Sverige.

Lilja, M. & Borell, L. (1997). Elderly people's Daily Activities and Need for mobility support. Scandinavian Journal of Caring Sciences. Scandinavian Journal of Caring Sciences. 11, 73-80.

Borell, L., Lilja, M., Carlsson-Alm, S., Ståhl, E. (1995). Community-based Occupational Therapy. A study of elderly people with home help in a social-welfare district in Stockholm. Scandinavian Journal of Occupational Therapy. Vol. 2, No. 3-4, 138-144.

Söderback, I., Lilja, M. (1995). A study of activity in the home environment among individuals with disability following a stroke. NeuroRehabilitation, No.5. 347-357

Original manuscripts/chapters in non-referee-reviewed journals/books:

Corcoran, M. (ed) (2003). Geriatric Issues in Occupational Therapy: A Compendium of Leading Research. Chapter 7: Occupations and signs of reduced hope - An explorative study of older adults with functional impairments.Borell, L., Lilja, M., Anderson-Sviden, G. & Sadlo, G. Bethesda, AOTA Press, USA

Carlsson Alm, S., Lilja, M. (1994) Ethic problem in rehabilitation. In Bichofsberger, E. (ED) Ethics in theory and practice. Bonniers, Stockholm

Other publications:

Lundström, U., Lilja, M. (2003). Äldres rehabilitering i särskilt boende (In Swedish). Socialstyrelsens Äldreenhet; artikelnummer: 2003-123-9.

Lilja, M. (2001). Coaching av äldre vid rehabilitering i hemmet (In Swedish).Tidskriften Vård,1: 30-32.

Lilja, M. (2001). Äldres rehabiliteringsbehov i hemmiljö (In Swedish). Socialstyrelsens Äldreenhet; artikelnummer: 2001-123-74.

Ongoing research projects:

1: Tailored intervention program for frail elderly living at home

Aim/objective: The overall aim with the research project is to develop, implement and evaluate a Tailored Intervention Program (TIP) on participation in everyday life among community living frail older persons.

Findings from different research project have indicate that community based rehabilitation interventions can have limited, and even negative effects if the frail older persons individual needs and values are not considered or recognized. Qualitative studies have shown that community based interventions in the home have a potential to restore dignity and decrease feelings of insecurity, if appropriately targeted to the individual. The presented research project is a longitudinal intervention study with a randomized trail design. In addition qualitative data will be collected to capture outcomes that might be unexpected based on the hypothesis of this research project. Qualitative interview data will also be collected related to the implementation process.

Researchers / collaborators: Karin Johansson (KI), Staffan Josephsson (KI), Ingela Petersson (KI), Gerd Andersson Svidén (KI), Laura Gitlin (John Hopkins Institute in Baltimore, USA), Åke Seiger (KI), Malcolm Cutchin (University of North Carolina, USA).

2: Home modification services for older adults with functional limitations living at home

Aim / objective: To provide knowledge concerning environmental impact on occupational performance, community living and participation outcomes for older adults with functional limitations.

The project focuses on the impact of modifying the physical home environment for older adults in the adaptive process of aging in place and how occupation and the environment influences peoples occupational performance. Furthermore it aims to provide theoretical and empirical knowledge of the interactions involved in the encounter between persons who are aging with functional limitations in their home and the service organization related to home modification.

Researchers / collaborators: Karin Johansson (KI), Staffan Josephsson (KI), Ingela Petersson (KI), Anders Kottorp (KI), Gerd Andersson Svidén (KI), Joy Hammel (University of Illinois in Chicago, USA), Maryanne Sacco Petersson (KI), The Department of Home Modification, Stockholm and The Swedish Association for Survivors of Accident and Injury (RTP).

3: To age with a spinal cord injury - activity engagement and participation

Aim / objective: The overall aim with this doctoral project is to describe experiences of ageing with a spinal cord injury and to explore what influence their engagement and participations in everyday activities.

Point of departure in this project is that today persons with a spinal cord injury has the possibility of growing old. One reason for this is the development of new medical treatment. Therefore it is of great importance to study how persons' with spinal cord injury experience growing old and how it affects their possibilities to handle everyday life. Both quantitative and qualitative design is used.

Researcher and collaborators: Gunilla Isaksson and Ulrica Lundström (Luleå Technical University), Jan Lexell (Lund University)

4: Older peoples' activity pattern and life projects from a preventative perspective.

Aim / objects: The overall aim with this doctoral project is to develop knowledge and understanding for older peoples' activity pattern and activity project and how it relates to experiences of health.

Researchers / collaborators: Gunvor Gard and Cecilia Björklund (Luleå Technical University), Kajsa Ellegård (Linköping University)

5: Validation of the Pediatric Evaluation of Disability Inventorty (PEDI) for the German speaking part of Europe - Assessing the ADL skills of children with and without disabilities.

Aim / Objects: The overall aim with this doctoral project is to adapt the PEDI into German and to assess the applicability and validity of the translated version for the German speaking part of Europe.

Researchers / collaborators: Anders Kottorp (KI), Julie Page and Christina Schulze (Zurich University)

6: To explore assessment practices during clinical placement in a occupational therapy

Aim / objectives: This project aims to describe and compare the design of the assessment practice in relation to higher education standards and to describe formal and informal assessment processes related to clinical practice.

This project will gain new knowledge to develop models for assessing students' professional competences during clinical placement. The project will also contribute to the knowledge around the relationships between changes of examination systems on a national level and how it influences on a program level.

Researchers / collaborators: Anna Aldehag and Staffan Josephsson (KI), Åsa Lindberg-Sand, (Lund University)