Improving Health Experiences - Hexi

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Definition of health

We view health along a continuum, which includes both quality of life (QoL) and health-related quality of life (HRQoL). Symptoms can impact health and we believe good health to be the absence of these difficult to deal with, self-reported symptoms. To be able to live an independent and informed life is a prerequisite for health.  

Research Group Leader

Professor/nurse

Yvonne Wengström

Phone: +46-(0)8-524 836 83
Organizational unit: Division of Nursing- Nursing 2
E-mail: Yvonne.Wengstrom@ki.se

Research Focus

The research group study people’s risk for disease from a preventative perspective as well as during illness or injury. This includes exploring approaches to transitions on the illness – health continuum where knowledge, shared decision-making and self-care is studied.

The research questions guide the methods used and mainly use self-reported data collected through individual interviews, focus groups or questionnaires. The research group uses models and methods for instrument development, person centered care, physical activity, health literacy, quality of life and symptoms. The medical research models framework for complex interventions guides the intervention studies. 

Ongoing Projects

OptiTrain

This randomised controlled trial compares the effect of different physical exercise regimens on the physical and mental well-being in women with breast cancer during and after chemo- and hormonal therapy. In a sub-group of participants, mitochondrial biogenesis and function and other molecular processes in skeletal muscle biopsies are studied. In another sub-group, the side-effect profile of the anti-hormonal treatment is investigated. The women are randomly allocated into three arms, a control arm with usual care and two different training arms. In a sub-set of the participants muscle biopsies will be obtained. Some women will also be asked to participate in an interview about the experiences of training during treatment. This study will contribute to increased knowledge about the type, intensity and frequency of training that patients with breast cancer benefit most from with regards to impact on physical and mental wellbeing. Above all, the study will increase the possibility for evidence-based exercise recommendations for women with breast cancer during and after active treatment.

Screening of Swedish Colons (SCREESCO) - Experiences from participants and non-participants

The aim with screening for colorectal cancer is to detect the disease in an early and treatable phase, before being symptomatic, to be able to reduce mortality. This research project entails a national randomized controlled screening program for colorectal cancer, where several outcomes are studied. Members from Hexi study experiences from participants and non-participants in the screening program. Data has been collected from focus group discussions, interviews and online questionnaires. Aspects under study include how the decision to participate or not is being made and to what extent knowledge, values and the involvement of others play a role. In addition, anxiety and health literacy are studied.

PerCent

PI: Carina Lundh Hagelin 

Nurses in the allogeneic stem cell transplant settings have a unique opportunity through person-centered care to meet and support patients under and after transplantation. In this intervention focus will be limitation of the feeling uncertanity in person and increase the feeling of trust in their own capacity after serious illness. The general aim for this project is a nursing intervention by to Mitchell et al. (1998) and Radwin (2002) Refined Quality Health Outcomes Model.  Our hypothesis is that through a person-centered approach and a systematically work according to the model and support from a PROM, nurses can reinforce the patient over the whole period of care. This approach can facilitate transition between the existential threats that the disease involves against an orientation towards a new view of health. The project will contain both qualitative and quantitative methods such as interviews, patient self-reporting symptoms using questionnaires, as well as the nurse way of working, to theoretically create an intervention model that will be tested and evaluated. The project in its entirety will generate knowledge about what effects and reduces the levels of patient insecurity about illness and health in patient, which may increase self-care, and how this affects readmissions and causes for contact with health care after allogen stem cell transplantation.  

TTO Project

PI: Anki vonVogelsang

Time Trade-Off (TTO) is a widely used method to “quality adjust” life years in cost analyses, where respondents are asked to trade off between longevity and quality of life. In this study we investigate how respondents describe their willingness to trade off, or not trade off life years, when using a TTO question ten years after intracranial aneurysm rupture. The study has a mixed method approach where answers to the TTO question are analysed together with self-reported health-related quality of life data. 

Group Members 

Lecturer

Anna Jervaeus

Organizational unit: Division of Nursing- Nursing 2
E-mail: anna.jervaeus@ki.se

Associated

Malin Backman

Organizational unit: Division of Nursing- Nursing 2
E-mail: malin.backman@ki.se

PhD student

Sara Mijwel

Organizational unit: Sundberg Carl Johan group - Molecular Exercise Physiology
E-mail: sara.mijwel@ki.se

PhD student

Johanna Wangmar

Organizational unit: Division of Nursing- Nursing 2
E-mail: johanna.wangmar@ki.se

Associated

Kaisa Fritzell

Organizational unit: Division of Nursing- Nursing 2
E-mail: Kaisa.Fritzell@ki.se

Senior lecturer

Christina Takman

Phone: +46-(0)8-524 837 28
Organizational unit: Division of Nursing- Nursing 2
E-mail: christina.takman@ki.se

Senior lecturer/nurse

Anne-Marie Boström

Phone: +46-(0)8-524 839 19
Organizational unit: Division of nursing- Nursing 1
E-mail: Anne-Marie.Bostrom@ki.se

Senior lecturer

Hanne Konradsen

Organizational unit: Division of Nursing- Nursing 2
E-mail: hanne.konradsen@ki.se

Postdoc

Katherine Bolam

Organizational unit: Division of Nursing- Nursing 2
E-mail: Kate.Bolam@ki.se

Anknuten

Ann-Christin Von Vogelsang

Organizational unit: Neuro Svensson
Department: Department of Clinical Neuroscience (CNS), K8
E-mail: Ann-Christin.Von-Vogelsang@ki.se

Anknuten

Helene Rundqvist

Phone: +46-(0)8-524 879 38
Organizational unit: Johnson
Department: Department of Cell and Molecular Biology (CMB), C5
E-mail: Helene.Rundqvist@ki.se

Lektor

Carina Lundh Hagelin

Phone: +46-(0)8-406 28 91
E-mail: carina.lundhhagelin@shh.se

Selected Publications

Optitrain: a randomised controlled exercise trial for women with breast cancer undergoing chemotherapy 

The importance of people’s values and preferences for colorectal cancer screening participation

A prospective exploration of symptom burden clusters in women with breast cancer during chemotherapy treatment

Physical Activity During and After Adjuvant Treatment for Breast Cancer: An Integrative Review of Women’s Experiences

Characteristics of the Family Caregivers Who Did Not Benefit From a Successful Psychoeducational Group Intervention During Palliative Cancer Care: A Prospective Correlational Study.

Educational Preparation of Nurses Caring for Older People with Cancer: An International Perspective.

Symptoms and self-care strategies during and six months after radiotherapy for prostate cancer - Scoping the perspectives of patients, professionals and literature.

Experiencing health - Physical activity during adjuvant chemotherapy treatment for women with breast cancer.

Short-term and long-term effects of a psycho-educational group intervention for family caregivers in palliative home care - results from a randomized control trial.

Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: a qualitative study from the perspectives of health professionals and family caregivers.

Feasibility of an interactive ICT-platform for early assessment and management of patient-reported symptoms during radiotherapy for prostate cancer.

Patients Experience High Levels of Anxiety 2 Years Following Aneurysmal Subarachnoid Hemorrhage.

Preparing for family caregiving in specialized palliative home care: an ongoing process.

A randomized pilot study with daily walking during adjuvant chemotherapy for patients with breast and colorectal cancer.

Nursing