Health-related quality of life and needs of care and support among cancer patients in East Africa

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Overall aim

The project examines health-related quality of life and explores needs of care and support among cancer patients in East Africa.

Project description

Focus group interviews and individual interviews are performed to investigate needs of care and support among patients with cancer in East Africa. Additionally, an established questionnaire (EORTC QLQ-C30), measuring health-related quality of life, has been translated to Kiswahili and Luganda language (Uganda) and culturally adapted to an East Africa context. The questionnaire will be used to assess 250 patients cared for at Uganda Cancer Institute. A mixed-methods study design is employed.

Principle Investigators

Lena Wettergren 

Lars E. Eriksson

Collaborators

Allen Naamala

Jackson Orem

Ylva Thornefors

Peter Wampaalu

Funding

Erik and Edith Fernströms Foundation 

Selected publications

Translation report of the EORTC QLQ-C30 into Luganda language. Wettergren L, Eriksson LE, Abrahamsson Tornefors Y. Report, Karolinska Institutet 2015.

Experiences of patients undergoing chemotherapy - A qualitative study of adults attending Uganda Cancer Institute. Wampaalu PB, Nabirye RC, Eriksson LE, Naamala A, Wettergren L. Resubmitted manuscript.

Hälsorelaterad livskvalitet bland patienter med cancer i Uganda - En pilotstudie. Abrahamsson Tornefors Y, Berg R. Dissertation for Bachelor in Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet: 2014.

Palliative cancer care in Uganda. Nurses’ experiences. Dorrian S, Ekblad K. Dissertation for Bachelor in Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet: June 2013.

Health-related quality of life and needs of care and support of adult Tanzanians with cancer: a mixed-methods study.
Masika G, Wettergren L, Kohi T, von Essen L
Health Qual Life Outcomes 2012 Nov;10():133 

Patients’ experiences and coping with side effects of cancer chemotherapy. A case study of adult patients’ attending Mulago Cancer Institute, Kampala Uganda. Wampaalu P. Dissertation for Bachelor in Nursing, Department of Nursing, Makerere University: June 2011.

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