Fex-Can - Fertility and sexuality following cancer
The project investigates sexual problems and fertility-related distress in adolescents and young adults who have undergone treatment for cancer. A self-help web-based intervention has been developed to alleviate sexual problems and fertility-related distress.
The project consists of two parts. Firstly, we will assess sexual function and fertility-related distress in approximately 1000 young persons (16-40 years) one year after being diagnosed with cancer (selected cancer types). A comparison group drawn from the general population will also be included to outline if cancer patients have more problems; the two groups will be followed over several years. In the project’s second part a self-help web-based intervention to alleviate sexual problems and fertility-related distress will be tested; the intervention with educational and behavior change content will be evaluated in an randomized controlled trial, please see trial registration: http://www.isrctn.com/ISRCTN36621459
We use a participatory research approach and have involved patients and significant others as research partners in the project. We hope this will increase the relevance of the project and improve uptake and impact of the intervention.
Cancer Research Foundations of Radiumhemmet
Doctoral School in Health Care Sciences
Swedish Cancer Society
Swedish Childhood Cancer Foundation
The Vårdal Foundation
The Swedish Research Council for Health, Working Life and Welfare
Winterling J, Wiklander M, Micaux Obol C, Lampic C, Eriksson LE, Pelters B, Wettergren L. Development of a self-help web-based intervention targeting young cancer patients with sexual problems and fertility distress in collaboration with patient research partners. JMIR Research Protocols 2016 doi:10.2196/resprot.5499
Winterling J, Wiklander M, Lampic C, Micaux Obol C, Eriksson LE, Wettergren L. Introducing a co-creative participatory process with patient research partners when developing an internet intervention. 42nd EBMT 2016 Annual Meeting, Valencia, Spain, April 3-6 2016. (Oral presentation)
Winterling J, Wiklander M, Lampic C, Micaux Obol C, Eriksson LE, Wettergren L. Development of an internet intervention targeting reproductive and sexual health following cancer. 42nd EBMT 2016 Annual Meeting, Valencia, Spain, April 3-6 2016. (Poster presentation)
Wiklander M, Winterling J, Lampic C, Micaux Obol C, Eriksson LE, Wettergren L. Introducing a co-creative participatory process with patient research partners when developing an internet intervention targeting young cancer survivors. 8th Scientific Meeting of the International Society for Research on Internet Interventions, Seattle, USA, 7-9 April 2016. (Poster presentation)
Wettergren L. Cancer care needs to develop support in sexual issues and intimacy (In Swedish: Cancervården behöver utveckla stöd I frågor kring sexualitet och intimitet). Onkologi I Sverige. 2015; 2: 32-36.