Fex-Can - Fertility and sexuality following cancer

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Overall aim

The project investigates sexual problems and fertility-related distress in adolescents and young adults who have undergone treatment for cancer. A self-help web-based intervention has been developed to alleviate sexual problems and fertility-related distress.

Project description

The project consists of two parts. Firstly, we will assess sexual function and fertility-related distress in approximately 1000 young persons (16-40 years) one year after being diagnosed with cancer (selected cancer types). A comparison group drawn from the general population will also be included to outline if cancer patients have more problems; the two groups will be followed over several years. In the project’s second part a self-help web-based intervention to alleviate sexual problems and fertility-related distress will be tested; the intervention with educational and behavior change content will be evaluated in an randomized controlled trial, please see trial registration: http://www.isrctn.com/ISRCTN36621459

We use a participatory research approach and have involved patients and significant others as research partners in the project. We hope this will increase the relevance of the project and improve uptake and impact of the intervention.

Claudia Lampic

Lena Wettergren

Collaborators

Lars E Eriksson 

Kathryn Flynn 

Claire Micaux Obol 

Kenny Rodriguez-Wallberg 

Leslie Schover 

Kerstin Sjögren Fugl-Meyer

Ung Cancer 

Maria Wiklander 

Jeanette Winterling 

Kristina Hellman

Maja Wall

Funding

Cancer Research Foundations of Radiumhemmet

Doctoral School in Health Care Sciences

KID-funding

Swedish Cancer Society 

Swedish Childhood Cancer Foundation

The Vårdal Foundation

The Swedish Research Council for Health, Working Life and Welfare

Selected publications 

Development of a self-help web-based intervention targeting young cancer patients with sexual problems and fertility distress in collaboration with patient research partners. Winterling J, Wiklander M, Micaux Obol C, Lampic C, Eriksson LE, Pelters B, Wettergren L. JMIR Research Protocols 2016 doi:10.2196/resprot.5499 

Introducing a co-creative participatory process with patient research partners when developing an internet intervention. Winterling J, Wiklander M, Lampic C, Micaux Obol C, Eriksson LE, Wettergren L.42nd EBMT 2016 Annual Meeting, Valencia, Spain, April 3-6 2016. (Oral presentation)

Development of an internet intervention targeting reproductive and sexual health following cancer. Winterling J, Wiklander M, Lampic C, Micaux Obol C, Eriksson LE, Wettergren L. 42nd EBMT 2016 Annual Meeting, Valencia, Spain, April 3-6 2016. (Poster presentation)

Introducing a co-creative participatory process with patient research partners when developing an internet intervention targeting young cancer survivors. Wiklander M, Winterling J, Lampic C, Micaux Obol C, Eriksson LE, Wettergren L. 8th Scientific Meeting of the International Society for Research on Internet Interventions, Seattle, USA, 7-9 April 2016. (Poster presentation)

Cancer care needs to develop support in sexual issues and intimacy (In Swedish: Cancervården behöver utveckla stöd I frågor kring sexualitet och intimitet). Wettergren L. Onkologi I Sverige. 2015; 2: 32-36.  

Cancer and OncologyNursing