We focus on conducting high quality, health care science-relevant research through multi-disciplinary collaboration, and on improving its translation into practice by linking research, education and practice.
To achieve our goals, we collaborate with well-renowned researchers nationally and internationally to strengthen common research themes, and to link research grounded in health care sciences, with life sciences, social sciences, and art-design.
A common focus among researchers in our group has been on studying experiences of different aspects of cancer, HIV and other potentially life-threatening but often long-lasting conditions, along the sickness trajectory from risk through diagnosis and treatment, through palliative and end-of-life care.
One particular focus of our present work is related to End-of-Life (EoL) and Palliative Care; notably, we extend our definition of PC from being cancer-specific and primarily focused on specialist PC to a more public health-based perspective in order to facilitate equal quality in EoL care independent of diagnosis and place of death. Other projects focus on quality of life and disease-related stigma in persons living with HIV and other transmissible diseases. We also use translational health science research integrating the biological and experienced body, for example in projects on early symptom experiences and biomarkers in lung cancer. To better support translation of research into practice, we have expanded our research profile to include research related to organizational understanding, knowledge development and change processes, which also incorporates efforts at capacity building and knowledge translation.
A theoretical and methodological common denominator enjoining the different projects in the group, beyond their specific research approach, is a focus on stakeholder experiences which, at the most basic level, involves using knowledge derived from the experiences of different stakeholders and stakeholder groups to generate new knowledge. We also apply this knowledge through experience-based co-design (influenced by Bate and Robert (2006)), to design and influence changes in health care provision and services.
Research group leader
Deputy research group leader
Research group members
|Jane E Ball||graduate student|
|Kerstin Belqaid||graduate student|
|Malin Henriksson||research assistant|
|Helena Kjellgren||graduate student|
|Anna Klarare||graduate student|
|Max Kleijberg||project assistant|
|Maria Lindberg||graduate student|
|Olav Lindqvist||project coordinator|
|Carina Lundh Hagelin||associated|
|Sophia Savage||project coordinator|
|Lena Sharp||senior researcher|
|Lisa Smeds Alenius||graduate student|
|Mia von Knorring||senior researcher|
DöBra: introduction of health promoting palliative care in Sweden: financed by Swedish Research Council for Health, Working Life and Welfare (Forte)
Swe-ACP: The overall aim of Swe-ACP is to diminish avoidable suffering related to dying, death and bereavement through development and testing of systematic approaches to promote discussion of values and preferences about End of Life care choices, before death is imminent. (part of the DöBra programme)
Space and Place in End-of-Life Care: Co-designing experience-based interventions: Financed by National Research School in Health Care Sciences, PICK-UP (ALF-SLL)
Mapping of prediagnostic health changes: linking subjective experience with clinical, metabolic, and molecular changes to facilitate early detection of lung cancer (Symptom descriptors project): Tishelman, Henoch, O. Lindqvist et al. Financed by The Swedish Cancer Society (Cancerfonden); Swedish Research Council (Vetenskapsrådet), ALF, KI Center for health care sciences (Centrum för Vårdvetenskap)
Multi-dimensional evaluation of chemosensory perceptions in cancer populations at risk for involuntary weight loss: Bernhardson, Tishelman et al. Financed by Swedish Research Council, National post-graduate research school for health care sciences
SOL project: We investigate how people with cancer experience that their taste and smell senses are affected in different stages of their cancer disease. We relate these symptoms to other problems, well-being and food intake.
RN4CAST: R. Lindqvist, Tishelman et al. Financed by EU 7th Framework, National post-graduate research school for health care sciences, KI Center for health care sciences (Centrum för Vårdvetenskap)