The research group Innovative Care focus on conducting high quality, health care science-relevant research through multi-disciplinary collaboration.
A common focus has been on studying experiences of different aspects of cancer, HIV and other potentially life-threatening but often long-lasting conditions, along the sickness trajectory from risk through diagnosis and treatment, through palliative and end-of-life care. In order to better support the implementation of research in practice we also conduct research on organization, knowledge and change management.
A theoretical and methodological common denominator is a focus on stakeholder experiences to generate new knowledge.
To reach our goals and to strengthen common research themes, we collaborate with well-renowned researchers nationally and internationally. We also connect research grounded in health care sciences with life sciences, social sciences and art/design and by linking research with education and practice we improve its translation into practice.
- Professor Carol Tishelman has just received the 2016 Lifetime Achievement Award from the European Oncology Nursing Society (EONS).
- Max Kleijberg explores how children and elderly people can meet to discuss issues related to dying, death and bereavement to learn from each other.
Joint-Research group leaders
Research group members
|Jane E Ball||PhD student|
|Kerstin Belqaid||PhD student|
|Britt-Marie Bernhardson||Project Manager|
|Lars E Eriksson||Senior lecturer|
|Anna Forsberg||Project coordinator|
|Malin Henriksson||PhD student|
|Therese Johansson||Research assistant|
|Helena Kjellgren||PhD student, Graduate Student|
|Max Kleijberg||PhD student|
|Maria Lindberg Reinius||PhD student, Graduate Student|
|Rikard Lindqvist||Project coordinator|
|Olav Lindqvist||Project Manager|
|Sophia Savage||Project Manager|
|Lisa Smeds Alenius||PhD student, Graduate Student|
Introduction of health promoting palliative care in Sweden. Financed by Swedish Research Council for Health, Working Life and Welfare (Forte).
DöBra-dagen, 24 augusti 2016 (in Swedish)
Design in academic health care, 10 Dec 2015 (in English)
The overall aim of Swe-ACP is to diminish avoidable suffering related to dying, death and bereavement through development and testing of systematic approaches to promote discussion of values and preferences about End of Life care choices, before death is imminent (part of the DöBra programme).
Space and Place in End-of-Life Care
Co-designing experience-based interventions. Financed by National Research School in Health Care Sciences, PICK-UP (ALF-SLL).
Mapping of prediagnostic health changes
Linking subjective experience with clinical, metabolic, and molecular changes to facilitate early detection of lung cancer (Symptom descriptors project). Tishelman, Henoch, O. Lindqvist et al. Financed by The Swedish Cancer Society (Cancerfonden), Swedish Research Council (Vetenskapsrådet), ALF, KI Center for health care sciences (Centrum för Vårdvetenskap).
Multi-dimensional evaluation of chemosensory perceptions in cancer populations at risk for involuntary weight loss
Bernhardson, Tishelman et al. Financed by Swedish Research Council, National post-graduate research school for health care sciences.
We investigate how people with cancer experience that their taste and smell senses are affected in different stages of their cancer disease. We relate these symptoms to other problems, well-being and food intake.
R. Lindqvist, Tishelman et al. Financed by EU 7th Framework, National post-graduate research school for health care sciences, KI Center for health care sciences (Centrum för Vårdvetenskap)
Innovative Care in media
Innovativ vård i media (in Swedish)
Beyond the visual and verbal: Using participant-produced photographs in research on the surroundings for care at the end-of-life.
Soc Sci Med 2016 Nov;168():120-129
Going public: reflections on developing the DöBra research program for health-promoting palliative care in Sweden.
Prog Palliat Care 2016 Jan;24(1):19-24
Room for Death--International museum-visitors' preferences regarding the end of their life.
Soc Sci Med 2015 Aug;139():1-8
Opening the doors a crack wider: palliative care research data in the public domain.
BMJ Support Palliat Care 2016 Mar;6(1):113-5
Development of a Self-Help Web-Based Intervention Targeting Young Cancer Patients With Sexual Problems and Fertility Distress in Collaboration With Patient Research Partners.
JMIR Res Protoc 2016 Apr;5(2):e60